Search found 212 matches

by sleepdancer2
Tue Oct 22, 2019 3:31 am
Forum: Physical Treatments
Topic: How to be a guinea pig?
Replies: 9
Views: 421

Re: How to be a guinea pig?

Certainly understand your willingness to "take one for the team". Years ago my sleep doc sent me to a movement disorder specialist for my periodic limb movements and he presented my case at a big neuro conference. Sadly, because my symptoms didn't fit within known boxes (turned out to be a...
by sleepdancer2
Fri Sep 27, 2019 11:08 am
Forum: General Topics: RLS/WED
Topic: Interesting correlation between knee injections and PLMD
Replies: 3
Views: 276

Interesting correlation between knee injections and PLMD

If any here are familiar with my story, you know that I treat my periodic limb movements with a TENS Unit. As the years have passed my degree of "healing" is such that I can skip nights without using the TENS, although those nights are few in a row and largely unpredictable. When it's goin...
by sleepdancer2
Thu Sep 26, 2019 7:16 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: A BIG what if
Replies: 15
Views: 1321

Re: A BIG what if

Interesting question. There's been lots of discussion on here about meds that can either exacerbate RLS or maybe even cause it as a side effect. If you are augmenting on Mirapex, that sounds to me like twice the agony if there are two contributors. Unfortunately the only way to answer those question...
by sleepdancer2
Wed Sep 25, 2019 9:23 am
Forum: Just Joined?
Topic: Tightening in calf
Replies: 10
Views: 268

Re: Tightening in calf

I just joined this forum because I was looking for help with exactly this topic. I take Gabapentin and don't usually have the legs flopping that I used to have and the quality of my sleep has improved. But my legs are often so sore when I wake up. And my calfs are always tight. If I'm cramping in t...
by sleepdancer2
Wed Sep 25, 2019 9:11 am
Forum: Just Joined?
Topic: How do you hold down a job?
Replies: 15
Views: 509

Re: How do you hold down a job?

Hi Taco Bill. Please know that many of us have been at prolonged low points (mine was several years) and feeling beyond dejected at the changes in our lives. In retrospect, augmentation and the post augmentation period was the worst. It can be a journey figuring out what things might help us. My doc...
by sleepdancer2
Thu Aug 08, 2019 12:10 pm
Forum: Just Joined?
Topic: New with a major question: "Just" pain, or weakness, too?
Replies: 9
Views: 259

Re: New with a major question: "Just" pain, or weakness, too?

Not knowing if this pertains to you, please take my words with a grain of salt. If you happen to have periodic limb movements, that could account for weakness. Over years of my legs moving in my sleep and almost never getting the rest and sleep needed for restoration, I experienced progressive weakn...
by sleepdancer2
Tue Jun 25, 2019 9:08 am
Forum: Prescription Medications
Topic: Opioids: sedate or stop movement?
Replies: 7
Views: 261

Re: Opioids: sedate or stop movement?

Yes, Mirapex can cause augmentation, but I don't think everyone runs into that issue. I augmented on it. As to sleeping through movements vs stopping movements, ideally one could stop the movements which would result in better sustained sleep. If one is sedated and still has movements, there will li...
by sleepdancer2
Tue Jun 25, 2019 8:52 am
Forum: Just Joined?
Topic: New here, complicated story
Replies: 12
Views: 386

Re: New here, complicated story

You've got a lot on your hands to sort through. Since you say none of the treatments have helped your bipolar disorder, should we assume none of the meds you are on are for your bipolar disorder? I have to wonder how your body/brain might respond to healthy sleep. Long term sleep disruption can do s...
by sleepdancer2
Tue Jun 25, 2019 8:23 am
Forum: General Topics: RLS/WED
Topic: The Battle
Replies: 19
Views: 626

Re: The Battle

Sorry to read you're still having troubles. Can't say I've got anything definitive, but just trying to think through some things. First thought was that Methadone can cause central sleep apnea, but you said the breathing episodes are happening after stopping the Methadone. Now I'm wondering how long...
by sleepdancer2
Sat Jun 08, 2019 1:38 am
Forum: General Topics: RLS/WED
Topic: The Battle
Replies: 19
Views: 626

Re: The Battle

In my case my legs lost strength, were prone to injury, and never seemed to improve. For those of us who have periodic limb movements with our RLS, our legs work all night. There is chronic depletion with no restoration. At some point the well runs dry. I declined to the point I could no longer go u...
by sleepdancer2
Sat Jun 08, 2019 1:17 am
Forum: Prescription Medications
Topic: Dopamine question - even after all these years.
Replies: 6
Views: 213

Re: Dopamine question - even after all these years.

Thank you for the reference. Will spend some time digesting it.
by sleepdancer2
Fri Jun 07, 2019 7:36 am
Forum: Prescription Medications
Topic: Dopamine question - even after all these years.
Replies: 6
Views: 213

Dopamine question - even after all these years.

Was reading an article and discussing it with the person who shared it with me. It talked about how dopamine meds often have only a temporary effect and the propensity for augmentation. It mentioned how Magnesium, Vitamin D, and Iron are integral to processing dopamine. Makes common sense to me thos...
by sleepdancer2
Sat Apr 13, 2019 10:32 am
Forum: Physical Treatments
Topic: A home TENS unit that works! Ahhh!
Replies: 4
Views: 494

Re: A home TENS unit that works! Ahhh!

Thanks for the recommendation on the TENS Unit. Mine is getting due to be be replaced. These days I find two of the small electrodes on my lower back/buttocks sufficient, but for the first few years I used 4 of them in a square around my buttocks. Wasn't able to find spots of my legs where I could t...
by sleepdancer2
Sat Apr 13, 2019 10:14 am
Forum: Just Joined?
Topic: Hello to all
Replies: 15
Views: 541

Re: Hello to all

While your doc is checking things might be a good idea to also check your Vitamin D and Magnesium. These things among others are important to muscle and nerve health. Your history of trying just about everything sounds familiar. I am lucky in that I am one who can quiet my legs by using a TENS Unit ...
by sleepdancer2
Sat Apr 13, 2019 10:09 am
Forum: Just Joined?
Topic: Is this RLS? So confused and need help
Replies: 6
Views: 397

Re: Is this RLS? So confused and need help

Your mention of your hubby holding your legs down at night certainly sounds like periodic limb movements. Don't know if the jerks when falling asleep are myoclinc jerks or if as you doze off periodic limb movements kick in. I agree with the previous poster who suggests you have your ferritin level c...

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