Search found 212 matches

by sleepdancer2
Tue Sep 02, 2014 4:41 pm
Forum: Prescription Medications
Topic: Augmentation and mood swings
Replies: 16
Views: 1914

Re: Augmentation and mood swings

Stopping a dopamine agonist abruptly from a high dose (high dose may be key) caused me to develop an odd variant of synesthesia, where the brain glitches and mixes the senses. When I saw my neurologist he said the abrupt stop was the cause of my symptoms. Within a few days after stopping I got this ...
by sleepdancer2
Mon Sep 01, 2014 7:23 am
Forum: Prescription Medications
Topic: Augmentation and mood swings
Replies: 16
Views: 1914

Re: Augmentation and mood swings

I wish I could help you with the meds, but I am not versed on reasons to take or not take them. Been there myself and dealt with augmentation, and yes, it is utterly miserable. I stayed on Mirapex far too long simply because I dreaded (feared) what the weaning process and transition to Requip might ...
by sleepdancer2
Sun Aug 31, 2014 6:41 am
Forum: Prescription Medications
Topic: Bupropion (Wellbutrin)
Replies: 13
Views: 1681

Re: Bupropion (Wellbutrin)

"I have wondered quite a bit lately if we shouldn't completely stop drugs, be miserable, then try new ones. When we try new drugs and we haven't completely gotten the other drugs, I am wondering if the other drugs really can work." In theory that sounds like a clearer path to more definiti...
by sleepdancer2
Sun Aug 31, 2014 6:22 am
Forum: Physical Treatments
Topic: Sequential Compression Devices for RLS
Replies: 18
Views: 9325

Re: Sequential Compression Devices for RLS

Regarding the TENS electrodes, I used to use some that were good for 3 or 4 uses maybe. At some point I tried the ones advertised to last a month and have found 3 weeks is more accurate for me but I have had some that stayed sticky for over a month, and that was without taking the suggested extra pr...
by sleepdancer2
Fri Aug 29, 2014 7:22 am
Forum: Physical Treatments
Topic: Sequential Compression Devices for RLS
Replies: 18
Views: 9325

Re: Sequential Compression Devices for RLS

Out of curiosity I looked over on PubMed and did find mention of a couple studies (not very current) that indicate some people are helped by compression devices. Back when my RLS/WED and PLMD were horrid due to augmentation, I couldn't have tolerated anything touching my legs like that, but at this ...
by sleepdancer2
Wed Aug 20, 2014 5:06 am
Forum: General Topics: RLS/WED
Topic: Monitoring PLMS with a smartphone
Replies: 13
Views: 1731

Re: Monitoring PLMS with a smartphone

With my long history with PLMD I find all this fascinating. Have to keep it in mind if I get a smart phone - hey maybe it's a good excuse to get one. :D I've had numerous sleep studies both on and off meds, as well as without and with use of a TENS Unit for my legs. I would love to do and document m...
by sleepdancer2
Fri Aug 15, 2014 4:48 am
Forum: Physical Treatments
Topic: Newly Approved Device - available in US
Replies: 47
Views: 19067

Re: Newly Approved Device - available in US

Alcharla - just a note to encourage you along this journey. I augmented on Mirapex several years ago. The transitions on meds have always been hellish, but ended up being the only choice. Kinda wish I'd been open to opioids instead of suffering so much. Good luck with finding what will work for you....
by sleepdancer2
Sun Aug 10, 2014 11:18 pm
Forum: General Topics: RLS/WED
Topic: Disease Mongering is Back
Replies: 5
Views: 691

Re: Disease Mongering is Back

ViewsAskew, if you are the commentor named Ann - so very well stated! You presented our case in words that cannot be dismissed by the naysayers. Thank you for doing your part to correct error even outside this venue.
by sleepdancer2
Tue Jul 15, 2014 9:16 am
Forum: Physical Treatments
Topic: CPAP
Replies: 36
Views: 16119

Re: CPAP

...after i began taking Methadone, I got another sleep test... I had now progressed to "central" Sleep Apnea and sent me an oxygen concentrator -- It has a thin tube of 100 oxygen that I put in my CPAP... Doety, I'm wondering if they also changed your machine type after the diagnosis of C...
by sleepdancer2
Fri Jul 11, 2014 5:16 am
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 725
Views: 51822

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Sounds like when you have a bad night it's really bad. I hate to hear that because I remember those times of torment all too well. Good to read that you have things in good working order regarding your sleep apnea treatment. Since you've got the very expensive machine, sounds like you have central s...
by sleepdancer2
Fri Jul 11, 2014 12:35 am
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 725
Views: 51822

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Hey EeFall, is your sleep apnea which you mentioned now under control?
by sleepdancer2
Wed Jul 09, 2014 7:14 am
Forum: Physical Treatments
Topic: Using the CP Relief Wand for RLS
Replies: 13
Views: 2856

Re: Using the CP Relief Wand for RLS

@Phillips2768 Regarding the use of TENS, I was unable to get any relief using the electrodes on my legs. That made my RLS scream at me. However, once I started placing the electrodes on my lower back as when prescribed for low back pain, I found it calmed my legs from PLMD a great deal. It creates i...
by sleepdancer2
Thu Jul 03, 2014 2:33 am
Forum: Prescription Medications
Topic: Requip
Replies: 40
Views: 6541

Re: Requip

Having augmented on a dopamine agonist, I can't emphasize enough the need for a weaning process after being on higher doses of one of these meds. I chose to not wean and stopped abruptly and it caused some long standing neurological symptoms. I never took the weaning warning on meds seriously till t...
by sleepdancer2
Mon Jun 30, 2014 7:41 pm
Forum: Physical Treatments
Topic: CPAP
Replies: 36
Views: 16119

Re: CPAP

There are often limb movements related to sleep apnea that are a part of the struggle to breathe. Those should be delineated on the sleep study report. Those will likely resolve with CPAP treatment. Having limb movements observed on a sleep study is not the same as having PLMD. Movements from actual...
by sleepdancer2
Sun Jun 29, 2014 10:13 pm
Forum: Prescription Medications
Topic: anyone's meds have worked 5 years or more?
Replies: 27
Views: 3204

Re: anyone's meds have worked 5 years or more?

There are meds I've taken for over 5 years, but I can't say they actually worked the whole time as augmentation was an issue for me. I have for over 3 years now maintained a satisfactory degree of success calming my legs using a TENS unit.

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