Search found 213 matches

by sleepdancer2
Fri Jul 21, 2017 8:20 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Looking for natural treatments
Replies: 14
Views: 3144

Re: Looking for natural treatments

Agree with the suggestions above. Sometimes a little bit of help from each of multiple sources can have enough of a compiled effect to give some relief. I take a few supplements (after testing by my doctor), including a calcium/magnesium/zinc combo with vitamin D as well as iron. Because I made so m...
by sleepdancer2
Thu May 18, 2017 3:40 pm
Forum: General Topics: RLS
Topic: Two hours of sleep
Replies: 147
Views: 15863

Re: Two hours of sleep

With the meds for limb movements, it became important for me to ask if the med was intended to help me sleep through the movements or lessen the movements. Continuity of sleep is one issue. Allowing the leg muscles to have time of quiet for tissues to rest and restore is another. Even when a med all...
by sleepdancer2
Thu May 18, 2017 3:24 pm
Forum: Physical Treatments
Topic: My new Relaxis
Replies: 65
Views: 17715

Re: My new Relaxis

Often those with periodic limb movements during sleep are unaware of their presence until reported by an observer or bed partner. Instead the sufferer just knows their sleep feels restless, or their bed is messy, or they think they just change positions a lot. When a movement does wake us, it is oft...
by sleepdancer2
Wed May 03, 2017 8:38 am
Forum: General Topics: RLS
Topic: Two hours of sleep
Replies: 147
Views: 15863

Re: Two hours of sleep

About those jerks - have you timed them to see if there's any pattern to the jerks? When I was having augmentation my movements encroached on my semi-awake time. If the movements are patterned (like maybe every 20 seconds or so) that would make me think are periodic limb movements.
by sleepdancer2
Wed May 03, 2017 8:07 am
Forum: Just Joined?
Topic: New Uer - RLS Since Young Age
Replies: 16
Views: 3468

Re: New Uer - RLS Since Young Age

Even if you do start taking iron OTC, please do still request a ferritin level and come up with some sort of doctor advised plan or schedule for followup. Too much iron is not a good thing either. I know this has already been said so I'm just co-signing to please not accept news that your ferritin l...
by sleepdancer2
Sat Mar 18, 2017 9:11 am
Forum: Prescription Medications
Topic: Legs feeling very heavy
Replies: 6
Views: 1041

Re: Legs feeling very heavy

Sorry to take so long to respond to this. First of all, I agree with having another neurologist hear your symptoms in case something is being missed. Fresh eyes never hurt. Since your heaviness in the legs is progressive over the long term, your description reminds me of a period of time in my RLS/P...
by sleepdancer2
Mon Jan 23, 2017 8:18 am
Forum: General Topics: RLS
Topic: What is "Good Sleep Hygiene" RLS Style?
Replies: 13
Views: 2200

Re: What is "Good Sleep Hygiene" RLS Style?

I too have adapted standard sleep hygiene suggestions to fit my own needs. I remember when at my worst I would provide myself the atmosphere conducive for sleep, then just hope for the best. I do still limit caffeine to earlier hours as I see the difference in my sleep when I have it in the late eve...
by sleepdancer2
Tue Dec 13, 2016 11:03 am
Forum: Physical Treatments
Topic: CPAP For RLS Yet No Apnea
Replies: 3
Views: 3201

Re: CPAP For RLS Yet No Apnea

I use a bi-level cpap machine, but I do have sleep apnea. I have heard of people using cpap just because they prefer breathing filtered air at night as it helps their allergies. As far as for getting more oxygen, have you tested your oxygen levels overnight, either through a lab supplied monitor or ...
by sleepdancer2
Tue Nov 01, 2016 6:28 am
Forum: Just Joined?
Topic: New here...PLMD...struggling
Replies: 13
Views: 2005

Re: New here...PLMD...struggling

I use the TENS in the same manner it was prescribed for lower back pain, but right before bedtime. On occasion I've had to repeat during the night, but not often. When my legs are acting up a lot I go to sleep with it on, helps me be able to fall asleep. Only thing is even though the activity stops ...
by sleepdancer2
Sun Oct 30, 2016 9:02 am
Forum: Just Joined?
Topic: New here...PLMD...struggling
Replies: 13
Views: 2005

Re: New here...PLMD...struggling

Just in case someone might find it helpful, I have successfully managed my PLMD for about 6 years by using a TENS Unit before bedtime. This is not in the treatment plan of any practitioner I've dealt with, but my sleep doctor was very interested and ran a series of sleep studies to see if my claims ...
by sleepdancer2
Tue Aug 16, 2016 12:38 am
Forum: Everything Else...just no RLS!
Topic: Yikes
Replies: 6
Views: 3390

Re: Yikes

One year bats started coming in and we found out a plate covering some sort of vent in the basement to the outside had come off. Unfortunately their entry to my living quarters was where a piece of floorboard was missing - under my bed. In the wee morning hours I heard flapping and scuffling under m...
by sleepdancer2
Tue Aug 16, 2016 12:14 am
Forum: Prescription Medications
Topic: Lost
Replies: 27
Views: 2723

Re: Lost

You are wise to be discerning and cautious. it is easy to be an enthusiast for that which has worked for us, and lose sight of how difficult it is for one hearing so many (and sometimes dissenting) voices. Usually there is a tipping point in any struggle. If you cross it you will find yourself more ...
by sleepdancer2
Mon Aug 15, 2016 9:26 am
Forum: Prescription Medications
Topic: Lost
Replies: 27
Views: 2723

Re: Lost

Sorting through whether one is augmenting or not can be a bit tricky. If you end up finding that your dose (in my opinion a HUGE dose) is causing augmentation, I can tell you that getting off the med is one of the hardest things I've ever done, but staying on the med was even harder. At that dose I ...
by sleepdancer2
Sat Jul 16, 2016 9:51 am
Forum: Just Joined?
Topic: Leg Problems
Replies: 5
Views: 1128

Re: Leg Problems

Hi. I too use a cpap, and I used to take Mirapex. Couple things about your legs... Have you had any follow-up sleep studies since being on Mirapex while using cpap? It could be that your medication is not controlling your legs enough to give you the sleep you need. The sleep clinic ending up having ...
by sleepdancer2
Fri Jul 08, 2016 12:47 am
Forum: Prescription Medications
Topic: Central Apnea, Methadone Withdrawal, and Other Trials and Tribulations
Replies: 233
Views: 7426

Re: Central Apnea, Methadone Withdrawal, and Other Trials and Tribulations

Deb, sure hope things begin to turn around as you manage to get some sleep. I hesitate to add anything to your plate but feel it is important to reinforce that while using a regular bi-pap may make treatment of your obstructive sleep apnea more tolerable, it will not necessarily treat any central sl...