Search found 206 matches

by sleepdancer2
Tue Dec 13, 2016 11:03 am
Forum: Physical Treatments
Topic: CPAP For RLS Yet No Apnea
Replies: 3
Views: 3080

Re: CPAP For RLS Yet No Apnea

I use a bi-level cpap machine, but I do have sleep apnea. I have heard of people using cpap just because they prefer breathing filtered air at night as it helps their allergies. As far as for getting more oxygen, have you tested your oxygen levels overnight, either through a lab supplied monitor or ...
by sleepdancer2
Tue Nov 01, 2016 6:28 am
Forum: Just Joined?
Topic: New here...PLMD...struggling
Replies: 13
Views: 1842

Re: New here...PLMD...struggling

I use the TENS in the same manner it was prescribed for lower back pain, but right before bedtime. On occasion I've had to repeat during the night, but not often. When my legs are acting up a lot I go to sleep with it on, helps me be able to fall asleep. Only thing is even though the activity stops ...
by sleepdancer2
Sun Oct 30, 2016 9:02 am
Forum: Just Joined?
Topic: New here...PLMD...struggling
Replies: 13
Views: 1842

Re: New here...PLMD...struggling

Just in case someone might find it helpful, I have successfully managed my PLMD for about 6 years by using a TENS Unit before bedtime. This is not in the treatment plan of any practitioner I've dealt with, but my sleep doctor was very interested and ran a series of sleep studies to see if my claims ...
by sleepdancer2
Tue Aug 16, 2016 12:38 am
Forum: Everything Else...just no RLS/WED!
Topic: Yikes
Replies: 6
Views: 2771

Re: Yikes

One year bats started coming in and we found out a plate covering some sort of vent in the basement to the outside had come off. Unfortunately their entry to my living quarters was where a piece of floorboard was missing - under my bed. In the wee morning hours I heard flapping and scuffling under m...
by sleepdancer2
Tue Aug 16, 2016 12:14 am
Forum: Prescription Medications
Topic: Lost
Replies: 27
Views: 2255

Re: Lost

You are wise to be discerning and cautious. it is easy to be an enthusiast for that which has worked for us, and lose sight of how difficult it is for one hearing so many (and sometimes dissenting) voices. Usually there is a tipping point in any struggle. If you cross it you will find yourself more ...
by sleepdancer2
Mon Aug 15, 2016 9:26 am
Forum: Prescription Medications
Topic: Lost
Replies: 27
Views: 2255

Re: Lost

Sorting through whether one is augmenting or not can be a bit tricky. If you end up finding that your dose (in my opinion a HUGE dose) is causing augmentation, I can tell you that getting off the med is one of the hardest things I've ever done, but staying on the med was even harder. At that dose I ...
by sleepdancer2
Sat Jul 16, 2016 9:51 am
Forum: Just Joined?
Topic: Leg Problems
Replies: 5
Views: 1029

Re: Leg Problems

Hi. I too use a cpap, and I used to take Mirapex. Couple things about your legs... Have you had any follow-up sleep studies since being on Mirapex while using cpap? It could be that your medication is not controlling your legs enough to give you the sleep you need. The sleep clinic ending up having ...
by sleepdancer2
Fri Jul 08, 2016 12:47 am
Forum: Prescription Medications
Topic: Central Apnea, Methadone Withdrawal, and Other Trials and Tribulations
Replies: 233
Views: 6361

Re: Central Apnea, Methadone Withdrawal, and Other Trials and Tribulations

Deb, sure hope things begin to turn around as you manage to get some sleep. I hesitate to add anything to your plate but feel it is important to reinforce that while using a regular bi-pap may make treatment of your obstructive sleep apnea more tolerable, it will not necessarily treat any central sl...
by sleepdancer2
Sun Jun 19, 2016 7:03 am
Forum: Prescription Medications
Topic: Central Apnea, Methadone Withdrawal, and Other Trials and Tribulations
Replies: 233
Views: 6361

Re: Central Apnea, Methadone Withdrawal, and Other Trials and Tribulations

Deb, if methadone gives you your life back, maybe you can get your doctor to order an ASV machine which is like CPAP except it can initiate breaths for you if you have central apnea events. You wouldn't be the first person I've seen post that they had to go that route because stopping the methadone ...
by sleepdancer2
Sun Jun 19, 2016 6:54 am
Forum: Prescription Medications
Topic: Neupro and chronic fatigue
Replies: 4
Views: 522

Re: Neupro and chronic fatigue

Unusual sleepiness is listed as a "minor" side effect. I had sleep attacks on Mirapex and it altered my life. Became unsafe to drive or cook. If you are finding yourself suddenly asleep, please take it very seriously. I kept fighting the good fight until I fell sleep at the wheel. if you f...
by sleepdancer2
Tue Jun 14, 2016 7:23 am
Forum: General Topics: RLS/WED
Topic: How to overcome eating to cope
Replies: 13
Views: 1174

Re: How to overcome eating to cope

Just adding my thoughts to what's already been said. The possible side effect of compulsive behaviors on dopamine agonists is very real. Been through that one. Read recently that Abilify is now said to have that risk, and who knows how many other meds. Any conditions that interfere with healthy quan...
by sleepdancer2
Sun May 22, 2016 3:35 am
Forum: General Topics: RLS/WED
Topic: Are Repeated (Stuck) Thoughts Common In PLMD?
Replies: 14
Views: 720

Re: Are Repeated (Stuck) Thoughts Common In PLMD?

Interesting. Seems the experiences vary - no surprise there. lol Wonder if it depends on if one is medicated or not. When I look back on it, my mind was worst at this when I was augmenting. It still rears it's ugly head now and then, but not so forcefully.
by sleepdancer2
Sun May 22, 2016 3:29 am
Forum: Prescription Medications
Topic: Central Apnea, Methadone Withdrawal, and Other Trials and Tribulations
Replies: 233
Views: 6361

Re: PLMW - Or Jerky Legs

Were are you placing the electrodes on your TENS?
by sleepdancer2
Sun May 22, 2016 3:26 am
Forum: Prescription Medications
Topic: Here I go...
Replies: 79
Views: 2813

Re: Here I go...

Oh my! Scary endeavor. I hope you find that once past the after effects of augmentation that your baseline movements are not as bad as you've been experiencing. The severity of my symptoms that I thought was a progression of the disease turned out to not be. Without augmentation maybe you'll need le...
by sleepdancer2
Sat May 21, 2016 6:44 am
Forum: General Topics: RLS/WED
Topic: Are Repeated (Stuck) Thoughts Common In PLMD?
Replies: 14
Views: 720

Are Repeated (Stuck) Thoughts Common In PLMD?

I've mentioned this before but not seen others mention it, but then again, I didn't outright ask. So now I'm asking. :) When my movements were bad, I experienced what I call "stuck thoughts". It was when one phrase, or one line from a song, or one brief scene repeated maddeningly when I wa...

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