Search found 212 matches

by sleepdancer2
Sun Jun 19, 2016 6:54 am
Forum: Prescription Medications
Topic: Neupro and chronic fatigue
Replies: 4
Views: 565

Re: Neupro and chronic fatigue

Unusual sleepiness is listed as a "minor" side effect. I had sleep attacks on Mirapex and it altered my life. Became unsafe to drive or cook. If you are finding yourself suddenly asleep, please take it very seriously. I kept fighting the good fight until I fell sleep at the wheel. if you f...
by sleepdancer2
Tue Jun 14, 2016 7:23 am
Forum: General Topics: RLS/WED
Topic: How to overcome eating to cope
Replies: 13
Views: 1238

Re: How to overcome eating to cope

Just adding my thoughts to what's already been said. The possible side effect of compulsive behaviors on dopamine agonists is very real. Been through that one. Read recently that Abilify is now said to have that risk, and who knows how many other meds. Any conditions that interfere with healthy quan...
by sleepdancer2
Sun May 22, 2016 3:35 am
Forum: General Topics: RLS/WED
Topic: Are Repeated (Stuck) Thoughts Common In PLMD?
Replies: 14
Views: 781

Re: Are Repeated (Stuck) Thoughts Common In PLMD?

Interesting. Seems the experiences vary - no surprise there. lol Wonder if it depends on if one is medicated or not. When I look back on it, my mind was worst at this when I was augmenting. It still rears it's ugly head now and then, but not so forcefully.
by sleepdancer2
Sun May 22, 2016 3:29 am
Forum: Prescription Medications
Topic: Central Apnea, Methadone Withdrawal, and Other Trials and Tribulations
Replies: 233
Views: 6977

Re: PLMW - Or Jerky Legs

Were are you placing the electrodes on your TENS?
by sleepdancer2
Sun May 22, 2016 3:26 am
Forum: Prescription Medications
Topic: Here I go...
Replies: 79
Views: 3069

Re: Here I go...

Oh my! Scary endeavor. I hope you find that once past the after effects of augmentation that your baseline movements are not as bad as you've been experiencing. The severity of my symptoms that I thought was a progression of the disease turned out to not be. Without augmentation maybe you'll need le...
by sleepdancer2
Sat May 21, 2016 6:44 am
Forum: General Topics: RLS/WED
Topic: Are Repeated (Stuck) Thoughts Common In PLMD?
Replies: 14
Views: 781

Are Repeated (Stuck) Thoughts Common In PLMD?

I've mentioned this before but not seen others mention it, but then again, I didn't outright ask. So now I'm asking. :) When my movements were bad, I experienced what I call "stuck thoughts". It was when one phrase, or one line from a song, or one brief scene repeated maddeningly when I wa...
by sleepdancer2
Sat May 14, 2016 6:18 am
Forum: Prescription Medications
Topic: Cold Turkey off Ropinerole... Day5 of no sleep, how do I know if it's still augmentation
Replies: 49
Views: 6755

Re: Cold Turkey off Ropinerole... Day5 of no sleep, how do I know if it's still augmentation

Mine is set to shut off after a bit too. Often I restart it and go through a couple cycles. I've read that people have experimented with placing the electrodes on trigger points or something like that. Well, let me tell you, I tried placing the electrodes on my legs. Made me almost willing to cut my...
by sleepdancer2
Fri May 13, 2016 9:01 am
Forum: Prescription Medications
Topic: Cold Turkey off Ropinerole... Day5 of no sleep, how do I know if it's still augmentation
Replies: 49
Views: 6755

Re: Cold Turkey off Ropinerole... Day5 of no sleep, how do I know if it's still augmentation

I was using TENS while weaning off Mirapex. While I can miss an occasional night, I've never had an extended period of not needing treatment. What I did find is that after living through augmentation, my "normal" symptoms that I once thought were intolerable that drove me to treatment were...
by sleepdancer2
Thu May 12, 2016 8:24 pm
Forum: Prescription Medications
Topic: Cold Turkey off Ropinerole... Day5 of no sleep, how do I know if it's still augmentation
Replies: 49
Views: 6755

Re: Cold Turkey off Ropinerole... Day5 of no sleep, how do I know if it's still augmentation

Your description of "thrashing" reminds me of when my periodic limb movements were augmenting on Sinemet. My later movements were better described as flailing when on Mirapex. (There's a link in my profile to a home video if you're interested.) For me, once I finally went off all dopamine ...
by sleepdancer2
Wed May 11, 2016 7:51 am
Forum: Physical Treatments
Topic: The itch cure that works for me
Replies: 2
Views: 2798

Re: The itch cure that works for me

Creative problem solving. Love it! It's the same principle that makes using a TENS Unit work for me.
by sleepdancer2
Mon May 02, 2016 8:25 am
Forum: Everything Else...just no RLS/WED!
Topic: Got sleep? What's your jam?
Replies: 24
Views: 6163

Re: Got sleep? What's your jam?

When I get up with a bit more energy, I get restless. The clutter starts to bother me, so I usually end up cleaning. I too find it satisfying. Although that run (would be walk for me) through the woods Steve described sure sounds idyllic since I'm a country girl at heart. These city streets where I ...
by sleepdancer2
Wed Apr 27, 2016 7:07 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief
Replies: 77
Views: 18497

Re: Another year of relief

@notnowdad I can understand your eagerness to have conversations about the things you are discovering as you search for solutions. It's hard when you feel you are on to something but others don't share your enthusiasm. Years ago I was on Sinemet and was having an awful time of it with inconsistent r...
by sleepdancer2
Wed Apr 20, 2016 6:38 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: ESRD and 24/7 RLS
Replies: 3
Views: 3141

Re: ESRD and 24/7 RLS

But now I have RLS during the day, during dialysis and at night until the opioids kick in... I've been to several doctors and my vitamin B,D and iron ferritin levels are fine... I'm in a life or death situation. RLS all the time AND dealing with dialysis is too much. I drink caffeine and chew tobac...
by sleepdancer2
Wed Apr 13, 2016 7:02 am
Forum: Prescription Medications
Topic: Depression....again
Replies: 58
Views: 3127

Re: Depression....again

Hope things are better for you by now. Sorry to hear you're going through this.
by sleepdancer2
Wed Apr 13, 2016 6:58 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Midnight Carbohydrate Snack
Replies: 13
Views: 2798

Re: Midnight Carbohydrate Snack

@debbluebird I'm curious about you saying "the Mirapex made me hungry". Did it make you want to eat to the point it was like a compulsive behavior? When I was on it I would get up during the night and cook. A snack just wasn't enough. It is a known possible side effect. http://www.pdf.org/...

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