Search found 212 matches

by sleepdancer2
Mon Apr 11, 2016 7:58 am
Forum: Just Joined?
Topic: RLS PLMD leaving scratches on legs
Replies: 3
Views: 592

Re: RLS PLMD leaving scratches on legs

Just wondering if the scratches look like the repetitive scratching of an itch or more random scratches? I haven't had this problem but just thinking how when I lay on my side I automatically tuck the toes of my upper leg under the calf of the lower leg. It's always the top leg that has the worst PL...
by sleepdancer2
Thu Mar 17, 2016 8:01 am
Forum: General Topics: RLS/WED
Topic: PLMW - Or Jerky Legs
Replies: 61
Views: 3404

Re: PLMW - Or Jerky Legs

Deb, did he specify what type of machine he is thinking of? Does he think Methadone is the culprit causing the central aspect of your events? Since you're not rushing into anything, maybe it would be a good idea to get those answers and ask over on cpaptalk if the information you are getting makes s...
by sleepdancer2
Fri Mar 11, 2016 10:48 am
Forum: Prescription Medications
Topic: is it possible to find a long term solution
Replies: 25
Views: 1438

Re: is it possible to find a long term solution

I too am grieved that those suffering so much have to fight so hard to get the needed help. I've been through a lot of meds too, and been accused of doctor shopping when my insurance changed and I could no longer go to the same doctor. Was treated very badly by the new doctor. Even with my treatment...
by sleepdancer2
Mon Feb 22, 2016 9:16 am
Forum: Augmentation
Topic: RLS Foundation Video
Replies: 4
Views: 3078

Re: RLS Foundation Video

Excellent informative video!
by sleepdancer2
Wed Feb 10, 2016 9:44 am
Forum: Just Joined?
Topic: Over 40 Years of RLS
Replies: 22
Views: 2254

Re: Over 40 Years of RLS

Laura, I will contact you. As to the PLMD, seems even the docs don't agree on terminology. Some doctors are of the mind that limb movements in the presence of another sleep disorder are not to be termed PLMD. My limb movements have always been classified as PLMD even in the presence of other sleep d...
by sleepdancer2
Mon Jan 11, 2016 8:11 am
Forum: Just Joined?
Topic: Over 40 Years of RLS
Replies: 22
Views: 2254

Re: Over 40 Years of RLS

Not sure if this qualifies as holistic, but it is non pharmaceutical. I have severe PLMD and went through years of various meds and augmentation. For 5 years now I have successfully treated my nighttime legs issues solely with a TENS Unit. I use it before bedtime as prescribed for low back pain, hav...
by sleepdancer2
Thu Dec 24, 2015 10:57 am
Forum: Physical Treatments
Topic: Where to go from here
Replies: 19
Views: 6163

Re: Where to go from here

Sleepnot, i don't know what all your doctor has tried before giving up, but I'm guessing there's things left to try. I do hope you can see someone who can bring ideas to you, or at least if that doesn't happen, is open to you bringing ideas to them. I spent many years suffering and going through aug...
by sleepdancer2
Sun Dec 20, 2015 9:25 am
Forum: General Topics: RLS/WED
Topic: PLMW - Or Jerky Legs
Replies: 61
Views: 3404

Re: PLMW - Or Jerky Legs

As far as your CPAP treatment, I think you getting another sleep study is a good idea, especially if your meds have changed since the last time. Do discuss the meds you take before you have the study. Without knowing all the details, I'll speak in general. Take what applies and leave the rest. Some ...
by sleepdancer2
Tue Dec 08, 2015 9:32 am
Forum: Just Joined?
Topic: tingle, heavy feeling the day after a bad episode
Replies: 5
Views: 573

Re: tingle, heavy feeling the day after a bad episode

"It was from my hips down and that part of my body jumped really high. The only way I can describe it is violent, they were violent." This description makes me wonder if what you experienced was anything like what is shown in my sleep video in my signature. If so, mine turned out to be aug...
by sleepdancer2
Fri Dec 04, 2015 9:33 am
Forum: Prescription Medications
Topic: DAWS post Mirapex
Replies: 11
Views: 814

Re: DAWS post Mirapex

I found it hard to distinguish depression from the lethargy of sleep deprivation. I was one who still struggled with limb movements disrupting sleep as well as sleep apnea, and I was on meds that had this side effect. I also had the impulse disorders side effect. I would say it was a few months afte...
by sleepdancer2
Sat Nov 21, 2015 9:54 am
Forum: Physical Treatments
Topic: CPAP
Replies: 36
Views: 16270

Re: CPAP

My worst sleep doctor even for just the sleep apnea part was a pulmonologist. My best sleep doctor was a pulmonologist who not only handled my sleep apnea well but also was well versed and eager to learn even more about the neuro side of my sleep issues. In theory, a sleep doctor should be trained i...
by sleepdancer2
Sat Nov 21, 2015 9:36 am
Forum: Physical Treatments
Topic: CPAP
Replies: 36
Views: 16270

Re: CPAP

I was also "pushed" into taking a sleep study and getting a CPAP. Fortunately, because I do not open my mouth when asleep, I can use the nasal cushions and a mask that allows me to sleep on my side. (I cannot sleep well on my back and often wake with back pain when I do). I used the CPAP ...
by sleepdancer2
Wed Nov 18, 2015 9:29 am
Forum: General Topics: RLS/WED
Topic: Drug Holiday
Replies: 11
Views: 845

Re: Drug Holiday

Thank you for coming back and sharing that. When I got off a med due to augmentation, my RLS was much improved too. My PLMD when no longer augmenting was much improved but still needed treatment. Always good to hear a story such as yours. Glad it worked out this way for you.
by sleepdancer2
Sat Oct 31, 2015 8:21 am
Forum: Prescription Medications
Topic: Severe RLS/PLMD, nothing is working
Replies: 7
Views: 504

Re: Severe RLS/PLMD, nothing is working

I cannot begin to know the extent of your depression and anxiety or your need for meds. I'd never suggest someone stop a med that was saving their life or their sense of well being. What I do want to say I've talked to countless people on forums (including myself) whose depression and anxiety decrea...
by sleepdancer2
Mon Oct 26, 2015 8:33 am
Forum: Prescription Medications
Topic: itching, histamine release
Replies: 7
Views: 660

Re: itching, histamine release

I'm just curious, is your itching localized or over large areas? I had some itching issues in the past but didn't consider meds as the source.

Go to advanced search