Search found 207 matches

by sleepdancer2
Mon Jan 11, 2016 8:11 am
Forum: Just Joined?
Topic: Over 40 Years of RLS
Replies: 22
Views: 2112

Re: Over 40 Years of RLS

Not sure if this qualifies as holistic, but it is non pharmaceutical. I have severe PLMD and went through years of various meds and augmentation. For 5 years now I have successfully treated my nighttime legs issues solely with a TENS Unit. I use it before bedtime as prescribed for low back pain, hav...
by sleepdancer2
Thu Dec 24, 2015 10:57 am
Forum: Physical Treatments
Topic: Where to go from here
Replies: 19
Views: 6114

Re: Where to go from here

Sleepnot, i don't know what all your doctor has tried before giving up, but I'm guessing there's things left to try. I do hope you can see someone who can bring ideas to you, or at least if that doesn't happen, is open to you bringing ideas to them. I spent many years suffering and going through aug...
by sleepdancer2
Sun Dec 20, 2015 9:25 am
Forum: General Topics: RLS/WED
Topic: PLMW - Or Jerky Legs
Replies: 61
Views: 3309

Re: PLMW - Or Jerky Legs

As far as your CPAP treatment, I think you getting another sleep study is a good idea, especially if your meds have changed since the last time. Do discuss the meds you take before you have the study. Without knowing all the details, I'll speak in general. Take what applies and leave the rest. Some ...
by sleepdancer2
Tue Dec 08, 2015 9:32 am
Forum: Just Joined?
Topic: tingle, heavy feeling the day after a bad episode
Replies: 5
Views: 553

Re: tingle, heavy feeling the day after a bad episode

"It was from my hips down and that part of my body jumped really high. The only way I can describe it is violent, they were violent." This description makes me wonder if what you experienced was anything like what is shown in my sleep video in my signature. If so, mine turned out to be aug...
by sleepdancer2
Fri Dec 04, 2015 9:33 am
Forum: Prescription Medications
Topic: DAWS post Mirapex
Replies: 11
Views: 787

Re: DAWS post Mirapex

I found it hard to distinguish depression from the lethargy of sleep deprivation. I was one who still struggled with limb movements disrupting sleep as well as sleep apnea, and I was on meds that had this side effect. I also had the impulse disorders side effect. I would say it was a few months afte...
by sleepdancer2
Sat Nov 21, 2015 9:54 am
Forum: Physical Treatments
Topic: CPAP
Replies: 36
Views: 15844

Re: CPAP

My worst sleep doctor even for just the sleep apnea part was a pulmonologist. My best sleep doctor was a pulmonologist who not only handled my sleep apnea well but also was well versed and eager to learn even more about the neuro side of my sleep issues. In theory, a sleep doctor should be trained i...
by sleepdancer2
Sat Nov 21, 2015 9:36 am
Forum: Physical Treatments
Topic: CPAP
Replies: 36
Views: 15844

Re: CPAP

I was also "pushed" into taking a sleep study and getting a CPAP. Fortunately, because I do not open my mouth when asleep, I can use the nasal cushions and a mask that allows me to sleep on my side. (I cannot sleep well on my back and often wake with back pain when I do). I used the CPAP ...
by sleepdancer2
Wed Nov 18, 2015 9:29 am
Forum: General Topics: RLS/WED
Topic: Drug Holiday
Replies: 11
Views: 816

Re: Drug Holiday

Thank you for coming back and sharing that. When I got off a med due to augmentation, my RLS was much improved too. My PLMD when no longer augmenting was much improved but still needed treatment. Always good to hear a story such as yours. Glad it worked out this way for you.
by sleepdancer2
Sat Oct 31, 2015 8:21 am
Forum: Prescription Medications
Topic: Severe RLS/PLMD, nothing is working
Replies: 7
Views: 487

Re: Severe RLS/PLMD, nothing is working

I cannot begin to know the extent of your depression and anxiety or your need for meds. I'd never suggest someone stop a med that was saving their life or their sense of well being. What I do want to say I've talked to countless people on forums (including myself) whose depression and anxiety decrea...
by sleepdancer2
Mon Oct 26, 2015 8:33 am
Forum: Prescription Medications
Topic: itching, histamine release
Replies: 7
Views: 643

Re: itching, histamine release

I'm just curious, is your itching localized or over large areas? I had some itching issues in the past but didn't consider meds as the source.
by sleepdancer2
Sat Oct 24, 2015 8:54 am
Forum: Prescription Medications
Topic: New Symtoms - Need help w what to do
Replies: 7
Views: 802

Re: New Symtoms - Need help w what to do

As I advanced in augmentation, the pain in my knees, hips, legs and lower back increased. My interpretation was it was the accumulation of overuse - movements when the body should have been resting and being restored. I augmented on Mirapex then Ropinerole. I am fortunate to be one who has found use...
by sleepdancer2
Sat Oct 10, 2015 9:38 am
Forum: Just Joined?
Topic: Unrefreshing sleep: RLS+PLMs or depression?
Replies: 13
Views: 831

Re: Unrefreshing sleep: RLS+PLMs or depression?

I've been at this since 1998 when I was first diagnosed with PLMD during a sleep study. I've had several of them as I had to sort through also having sleep apnea. My movements on the studies have been all over the place just due to differences in whether the sleep apnea was treated or how well the m...
by sleepdancer2
Tue Oct 06, 2015 10:19 am
Forum: General Topics: RLS/WED
Topic: Daily Sufferers: How are we Doing?
Replies: 15
Views: 1383

Re: Daily Sufferers: How are we Doing?

I was hesitant to post to this thread - guess it's something similar to survivor's guilt. Then I thought of the many years of utter misery and figured I do have a place here. So here we go. Meds: None for my limb movements. On blood pressure and blood sugar meds. Take supplements. Other Treatments: ...
by sleepdancer2
Tue Oct 06, 2015 9:51 am
Forum: Just Joined?
Topic: Unrefreshing sleep: RLS+PLMs or depression?
Replies: 13
Views: 831

Re: Unrefreshing sleep: RLS+PLMs or depression?

I'm impressed that you are able to gather your thoughts so orderly. I'm one who does better with lists too - helps me focus my thoughts. One hard thing about all this is separating the symptoms when there is so much overlap. With my experiences these last 15+ years I've learned to not underestimate ...
by sleepdancer2
Tue Sep 29, 2015 6:35 am
Forum: Prescription Medications
Topic: Help Crazy Joe
Replies: 6
Views: 414

Re: Help Crazy Joe

I did it the other way around. Augmented on Mirapex then transitioned to Requip. Maybe someone will come along and report that changing to another dopamine agonist worked for them. For me, after just weeks the 2nd option began to cause augmentation and had to go through another round of getting off.

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