Search found 358 matches

by Yankiwi
Sat Dec 27, 2014 7:05 am
Forum: Prescription Medications
Topic: Hellish night due to not taking my ropinerol
Replies: 42
Views: 5562

Re: Hellish night due to not taking my ropinerol

The book arrived early! Last week I couldn't get an appointment with my GP but got one with another in his practice. She was very open to prescribe hydrocodone for movies and car rides as suggested to me by Dr. B. but it isn't available in New Zealand. She thought my having the book was excellent. I...
by Yankiwi
Sun Dec 21, 2014 7:48 am
Forum: Everything Else...just no RLS/WED!
Topic: A BIT OF FUN
Replies: 9
Views: 2243

Re: A BIT OF FUN

I like making things out of nothing too, also grow my own vegetables, make yoghurt from raw milk, bake bread etc. Some of my favorite tools are a hula hoe and niwashi (Japanese hoe) for weeding—weeds grow very well in New Zealand. I actually like weeding which is a good thing because we have over an...
by Yankiwi
Thu Dec 18, 2014 8:31 am
Forum: Everything Else...just no RLS/WED!
Topic: Just started on Aricept
Replies: 31
Views: 10436

Re: Just started on Aricept

Thank you very much for your honesty and openness in discussing your progressing dementia. You are very brave and kind. I'm sure dementia or the possibility of it is something we all wonder about.
by Yankiwi
Mon Dec 08, 2014 7:13 am
Forum: Prescription Medications
Topic: Hellish night due to not taking my ropinerol
Replies: 42
Views: 5562

Re: Hellish night due to not taking my ropinerol

I just ordered "Clinical Management" from Amazon. I've been meaning to for a while but usually have time in the evening and I can't sit and have trouble concentrating if my legs hurt but I'm okay tonight. I look forward to reading it and sharing the information with my GP. He's supportive ...
by Yankiwi
Mon Dec 01, 2014 3:23 am
Forum: General Topics: RLS/WED
Topic: The lighter side of WED/RLS
Replies: 7
Views: 1059

The lighter side of WED/RLS

I don't for a moment think WED/RLS is funny but there are some quirky offshoots when we have restless legs. • We don't wake up with a stiff neck from sleeping too well. • SRO events are no problem to us. • Housework gets done in the middle of the night, freeing up our daytime hours. • Standing burns...
by Yankiwi
Mon Dec 01, 2014 2:19 am
Forum: Prescription Medications
Topic: Hellish night due to not taking my ropinerol
Replies: 42
Views: 5562

Re: Hellish night due to not taking my ropinerol

Thanks for your support. I'm not new to RLS (20 or so years) but I'm new to medication except for a brief unsuccessful trial with Sinemet about 10 years ago. I'm finding medication to be a two-edged sword and there are no specialists available to me in New Zealand. This forum (and information on the...
by Yankiwi
Sun Nov 30, 2014 8:26 am
Forum: Prescription Medications
Topic: Hellish night due to not taking my ropinerol
Replies: 42
Views: 5562

Hellish night due to not taking my ropinerol

My system to make sure I take my medication is to put the bottles on the bathroom sink top in the morning. At around 8pm I fill a cup with water, pick up my jar of ropinerol, take out two tablets and without putting the jar down, swallow them. Then I put the jar on a small table on the other side of...
by Yankiwi
Sat Nov 22, 2014 6:35 am
Forum: General Topics: RLS/WED
Topic: Graphic: When your brain doesn't sleep
Replies: 3
Views: 502

Re: Graphic: When your brain doesn't sleep

Thanks for the link to the sleep deprived brain graphic. Scientists are making a link between chronic sleep deprivation and dementia. I want to be able to sleep so I don't contribute to my own dementia in the future.
by Yankiwi
Fri Oct 10, 2014 3:35 am
Forum: General Topics: RLS/WED
Topic: Dr. Silber and the Mayo Clinic
Replies: 7
Views: 1063

Re: Dr. Silber and the Mayo Clinic

I just watched the video, it's excellent and I recommend it.
by Yankiwi
Sun Sep 28, 2014 7:29 am
Forum: Physical Treatments
Topic: zen meditation
Replies: 40
Views: 20406

Re: zen meditation

I attended power yoga classes four to five days a week for about four years ten years ago. (I then practiced at home for a few years, now occasionally, mostly in the middle of the night.) Power yoga is vigorous but savasana (corpse pose) at the end nearly drove me up the wall. It's supposed to be re...
by Yankiwi
Thu Sep 25, 2014 9:58 am
Forum: General Topics: RLS/WED
Topic: Decongestants
Replies: 11
Views: 1253

Re: Decongestants

I use a nasal spray, Flixonase (Flonase in the USA). I'm too scared to try any of the tablets but the spray works well for me. And for colds I use nose drops at night after some really bad nights with the OTC night cold medicine. I learned the hard way, long before the RLS lists came out.
by Yankiwi
Fri Sep 19, 2014 5:33 am
Forum: General Topics: RLS/WED
Topic: A patron saint for RLS sufferers
Replies: 3
Views: 479

Re: A patron saint for RLS sufferers

I know RLS doesn't have regard for race, colour, creed etc. To help explain better than I could have off the cuff, I cobbled together a few sentences from various websites. A patron saint is a saint regarded as the special guardian of a person, group, trade, country, etc (eg St Patrick for Ireland o...
by Yankiwi
Fri Sep 19, 2014 3:00 am
Forum: General Topics: RLS/WED
Topic: A patron saint for RLS sufferers
Replies: 3
Views: 479

A patron saint for RLS sufferers

Last night after my usual unwanted wake-up call around 2:00am, before I could force myself out of bed, I started to think there must be a patron saint for people with WED/RLS. After all, there's one for everything else. At first I thought of Lazarus but even though getting up in the morning after a ...
by Yankiwi
Thu Sep 18, 2014 5:11 am
Forum: General Topics: RLS/WED
Topic: Open question #4: Why are WED symptoms so erratic?
Replies: 13
Views: 1663

Re: Open question #4: Why are WED symptoms so erratic?

It's hereditary in my family too. My father was in a deepening coma for the last week of his life and his legs were still moving almost until the end. Siblings and cousins have it, I hope my nieces and nephews escape, but, as you implied, more is being learned about it all the time so maybe medical ...
by Yankiwi
Wed Sep 17, 2014 9:42 am
Forum: General Topics: RLS/WED
Topic: What has thisDiscussionBoard meant to you?
Replies: 16
Views: 2005

Re: What has thisDiscussionBoard meant to you?

After joining the foundation a few weeks ago, I just joined the Discussion Board about a week ago and it has offered a lot of moral support. I don't talk about my WED (or any other problem or illness) with friends unless I absolutely have to. For instance, there have been a few times at dinner parti...

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