Search found 346 matches

by Yankiwi
Fri Sep 19, 2014 3:00 am
Forum: General Topics: RLS/WED
Topic: A patron saint for RLS sufferers
Replies: 3
Views: 475

A patron saint for RLS sufferers

Last night after my usual unwanted wake-up call around 2:00am, before I could force myself out of bed, I started to think there must be a patron saint for people with WED/RLS. After all, there's one for everything else. At first I thought of Lazarus but even though getting up in the morning after a ...
by Yankiwi
Thu Sep 18, 2014 5:11 am
Forum: General Topics: RLS/WED
Topic: Open question #4: Why are WED symptoms so erratic?
Replies: 13
Views: 1658

Re: Open question #4: Why are WED symptoms so erratic?

It's hereditary in my family too. My father was in a deepening coma for the last week of his life and his legs were still moving almost until the end. Siblings and cousins have it, I hope my nieces and nephews escape, but, as you implied, more is being learned about it all the time so maybe medical ...
by Yankiwi
Wed Sep 17, 2014 9:42 am
Forum: General Topics: RLS/WED
Topic: What has thisDiscussionBoard meant to you?
Replies: 16
Views: 2001

Re: What has thisDiscussionBoard meant to you?

After joining the foundation a few weeks ago, I just joined the Discussion Board about a week ago and it has offered a lot of moral support. I don't talk about my WED (or any other problem or illness) with friends unless I absolutely have to. For instance, there have been a few times at dinner parti...
by Yankiwi
Wed Sep 17, 2014 8:23 am
Forum: General Topics: RLS/WED
Topic: Open question #4: Why are WED symptoms so erratic?
Replies: 13
Views: 1658

Re: Open question #4: Why are WED symptoms so erratic?

WED is a crazy disease. It's almost surreal the way it comes and goes. Mine comes every night after 2-5 hours sleep, usually 3. I'm thrilled if I am still asleep after three hours. Almost anything can trigger it. Right now I have sciatica but hardly even notice it during the day. At night it seems t...
by Yankiwi
Tue Sep 16, 2014 7:55 am
Forum: Physical Treatments
Topic: Yoga -- long slow sun salutation a help
Replies: 4
Views: 1510

Re: Yoga -- long slow sun salutation a help

I'm sorry your joints are painful, it must make the WED/RLS worse. I trust Yoga Norman, but as with anything found on the internet it pays to be a little skeptical until you have evidence that the information is genuine. About a year ago, at a friend's house, I slept very well on a bad bed with a ba...
by Yankiwi
Mon Sep 15, 2014 9:44 pm
Forum: General Topics: RLS/WED
Topic: Anybody have tips to fool the brain?
Replies: 5
Views: 1296

Re: Anybody have tips to fool the brain?

It's nice to have grandchildren to help remind you, they will know all about schedules and time.
by Yankiwi
Mon Sep 15, 2014 8:22 am
Forum: General Topics: RLS/WED
Topic: Symptoms worse by season
Replies: 12
Views: 1842

Re: Symptoms worse by season

Unlike Coke, nothing goes better with WED/RLS. It seems to exacerbate almost any problem, even things that non RLS people wouldn't even notice.
by Yankiwi
Mon Sep 15, 2014 3:07 am
Forum: General Topics: RLS/WED
Topic: Symptoms worse by season
Replies: 12
Views: 1842

Re: Symptoms worse by season

That's interesting. Ever since menopause my thermostat hasn't worked that well and I overheat easily which causes me to wake up and I often have symptoms when I wake up in the night. I much prefer sleeping in a cold room but that's not possible most of the year. I'm changing different weights of bla...
by Yankiwi
Sun Sep 14, 2014 12:16 am
Forum: Physical Treatments
Topic: Yoga -- long slow sun salutation a help
Replies: 4
Views: 1510

Yoga -- long slow sun salutation a help

Before I was prescribed ropinerol my symptoms were a lot worse and more frequent (at least twice a night when I had to be up for at least an hour). I had practised yoga before and found a video of an elaborate sun salutation on line. I won't say it's complicated, just that it is a lot more involved ...
by Yankiwi
Fri Sep 12, 2014 8:33 am
Forum: General Topics: RLS/WED
Topic: Anybody have tips to fool the brain?
Replies: 5
Views: 1296

Re: Anybody have tips to fool the brain?

Thanks, a timer is a great idea. I'll go set one up on my iPhone now. I, too, do lots of weird leg exercises but if I'm in bed they almost never work. Sometimes a mini backbend that puts pressure on my Achilles works but I have to keep it for about a minute or more. And I try to do it without waking...
by Yankiwi
Fri Sep 12, 2014 4:51 am
Forum: General Topics: RLS/WED
Topic: Anybody have tips to fool the brain?
Replies: 5
Views: 1296

Anybody have tips to fool the brain?

Mostly in the afternoon and evening if I start getting symptoms I can just get up, walk around and do something to distract my brain so it forgets about my achy legs. Last night I took my ropinerol about a half hour later than I should have and missed the window of opportunity to fall asleep. As I l...
by Yankiwi
Fri Sep 12, 2014 4:44 am
Forum: Just Joined?
Topic: Sleep Book
Replies: 4
Views: 698

Re: Sleep Book

More about The Sleep Book. There is a website and while interesting, it doesn't have a whole lot of information: http://www.thesleepschool.org It says on the website "The struggle with sleeplessness prolongs and worsens insomnia. We break this vicious cycle of Insomnia through our globally pio...
by Yankiwi
Thu Sep 11, 2014 9:26 pm
Forum: Just Joined?
Topic: Sleep Book
Replies: 4
Views: 698

Re: Sleep Book

It's really great to be part of the WED/RLS forum. My doctor is a GP, not a sleep specialist, but he is very open to learning about everything and supportive. He prescribed Clonazepam a few years ago but it didn't work at all. I knew about ropinerol but didn't know it was available in New Zealand un...
by Yankiwi
Wed Sep 10, 2014 9:25 am
Forum: General Topics: RLS/WED
Topic: Guest Blog Post?
Replies: 7
Views: 1020

Re: Guest Blog Post?

I'd like to tell my story, it's pretty long but I'd like to get it off my chest.
by Yankiwi
Wed Sep 10, 2014 9:24 am
Forum: General Topics: RLS/WED
Topic: Flying
Replies: 14
Views: 2204

Re: Flying

I live in New Zealand and have made many long flights -- all flights out of here are long! On overnight flights I take a sleeping pill, the only time I ever take one. I walk around a lot during the flight. I've told the attendants I have RLS and they usually understand. I've taken a half a Sinemet w...

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