Search found 367 matches

by Yankiwi
Sun Jan 11, 2015 6:55 am
Forum: Prescription Medications
Topic: Hellish night due to not taking my ropinerol
Replies: 42
Views: 5689

Re: Hellish night due to not taking my ropinerol

Polar Bear, how much codeine do you take for periods of enforced inactivity such as car drives? One night, out of desperation, I took 30mg of codeine sulphate from a 14 year old prescription my husband had. It did absolutely nothing. Maybe it was too little or no longer viable.
by Yankiwi
Wed Jan 07, 2015 8:10 am
Forum: Just Joined?
Topic: New member Hello! And Questions
Replies: 14
Views: 1166

Re: New member Hello! And Questions

How frustrating for you, having had a good medicine that you now can't use. I tried Sinemet about 10 years ago, had rapid augmentation and also diarrhea so I got off of it. Lots of crying in the bathroom at night. I did use the rest of my prescription for long car rides, movies and concerts but can'...
by Yankiwi
Wed Jan 07, 2015 8:00 am
Forum: General Topics: RLS/WED
Topic: Guest Blog Post?
Replies: 7
Views: 1079

Re: Guest Blog Post?

I just made an enquiry, I didn't send the material so if they want it they will have to contact me. Thanks for following it up.
by Yankiwi
Tue Jan 06, 2015 6:29 am
Forum: General Topics: RLS/WED
Topic: What has thisDiscussionBoard meant to you?
Replies: 16
Views: 2054

Re: What has thisDiscussionBoard meant to you?

I want to add that I feel safe on this discussion board. I rarely put comments on any other forum but I know this one is well run, no one is critical and each one of us is taken seriously. Thanks to the moderators for the opportunity to live, share and learn and possibly help others.
by Yankiwi
Tue Jan 06, 2015 6:25 am
Forum: General Topics: RLS/WED
Topic: Guest Blog Post?
Replies: 7
Views: 1079

Re: Guest Blog Post?

I sent an email to info at willis-ekbom.org (I clicked on the link) on December 17 saying I had written my story and also drawn a cartoon and haven't heard back. Maybe they are still on Christmas holidays. It took me ages to write but finally got it done.
by Yankiwi
Fri Jan 02, 2015 6:41 am
Forum: Physical Treatments
Topic: Relaxis Pad
Replies: 36
Views: 13960

Re: Relaxis Pad

It would be great if we could rent one to see if they work. In any case, they won't be available in New Zealand for several years after they are in the US. $750 is a lot of money, I wonder if it comes with a money-back guarantee?
by Yankiwi
Wed Dec 31, 2014 4:22 am
Forum: General Topics: RLS/WED
Topic: Funny story, takes one to know one
Replies: 3
Views: 414

Funny story, takes one to know one

A few evenings ago I was at an outdoor dinner party (remember, it's summer down under). Some adults were sitting around in a circle, others were playing badminton, children were running around on a very pleasant night. I didn't even realise I was squirming that much or occasionally massaging my calv...
by Yankiwi
Mon Dec 29, 2014 6:25 am
Forum: Prescription Medications
Topic: Hellish night due to not taking my ropinerol
Replies: 42
Views: 5689

Re: Hellish night due to not taking my ropinerol

100mg of Tramadol doesn't work in a car or movie either. I think Dihydrocodeine is available in New Zealand, I'll check with my doctor. The NZ drug buying agency has a website and it showed up there. On Christmas day I had a drive from 6am until 9.30am with no problem at all because it was early. Co...
by Yankiwi
Sat Dec 27, 2014 7:09 am
Forum: General Topics: RLS/WED
Topic: Surgery and rls
Replies: 9
Views: 850

Re: Surgery and rls

I had a bad reaction to anesthetics about 20 years ago and my dad and a sister also had serious reactions. When I had subsequent surgery I told the anesthesiologist and wrote on the admitting form that I was very sensitive to anesthetics but couldn't tell them more than that. Luckily he took me seri...
by Yankiwi
Sat Dec 27, 2014 7:05 am
Forum: Prescription Medications
Topic: Hellish night due to not taking my ropinerol
Replies: 42
Views: 5689

Re: Hellish night due to not taking my ropinerol

The book arrived early! Last week I couldn't get an appointment with my GP but got one with another in his practice. She was very open to prescribe hydrocodone for movies and car rides as suggested to me by Dr. B. but it isn't available in New Zealand. She thought my having the book was excellent. I...
by Yankiwi
Sun Dec 21, 2014 7:48 am
Forum: Everything Else...just no RLS/WED!
Topic: A BIT OF FUN
Replies: 9
Views: 2272

Re: A BIT OF FUN

I like making things out of nothing too, also grow my own vegetables, make yoghurt from raw milk, bake bread etc. Some of my favorite tools are a hula hoe and niwashi (Japanese hoe) for weeding—weeds grow very well in New Zealand. I actually like weeding which is a good thing because we have over an...
by Yankiwi
Thu Dec 18, 2014 8:31 am
Forum: Everything Else...just no RLS/WED!
Topic: Just started on Aricept
Replies: 31
Views: 10563

Re: Just started on Aricept

Thank you very much for your honesty and openness in discussing your progressing dementia. You are very brave and kind. I'm sure dementia or the possibility of it is something we all wonder about.
by Yankiwi
Mon Dec 08, 2014 7:13 am
Forum: Prescription Medications
Topic: Hellish night due to not taking my ropinerol
Replies: 42
Views: 5689

Re: Hellish night due to not taking my ropinerol

I just ordered "Clinical Management" from Amazon. I've been meaning to for a while but usually have time in the evening and I can't sit and have trouble concentrating if my legs hurt but I'm okay tonight. I look forward to reading it and sharing the information with my GP. He's supportive ...
by Yankiwi
Mon Dec 01, 2014 3:23 am
Forum: General Topics: RLS/WED
Topic: The lighter side of WED/RLS
Replies: 7
Views: 1107

The lighter side of WED/RLS

I don't for a moment think WED/RLS is funny but there are some quirky offshoots when we have restless legs. • We don't wake up with a stiff neck from sleeping too well. • SRO events are no problem to us. • Housework gets done in the middle of the night, freeing up our daytime hours. • Standing burns...
by Yankiwi
Mon Dec 01, 2014 2:19 am
Forum: Prescription Medications
Topic: Hellish night due to not taking my ropinerol
Replies: 42
Views: 5689

Re: Hellish night due to not taking my ropinerol

Thanks for your support. I'm not new to RLS (20 or so years) but I'm new to medication except for a brief unsuccessful trial with Sinemet about 10 years ago. I'm finding medication to be a two-edged sword and there are no specialists available to me in New Zealand. This forum (and information on the...

Go to advanced search