Search found 374 matches

by Yankiwi
Sun Jan 28, 2018 4:56 am
Forum: General Topics: RLS/WED
Topic: Mental RLS triggers
Replies: 10
Views: 1524

Re: Mental RLS triggers

When I don't have symptoms my brain just lies in wait thinking it could be any minute now. I'm good in the day if I can keep moving but the witching hour is any time in the evening before or after eight and nine when I take my ropinerole, then every few hours in the night when I wake up with pain an...
by Yankiwi
Sun Jan 28, 2018 3:36 am
Forum: General Topics: RLS/WED
Topic: Progress with my local doctor?
Replies: 36
Views: 4468

Re: Progress with my local doctor?

The whole opiode crisis cause and effect is blown so far out of proportion. Tom Petty died a few months ago and the cause was released last week—an overdose of fentanyl and oxycodone. No reputable doctor is going to prescribe enough fentany patches to OD on. The people dying from fentanyl overdoses ...
by Yankiwi
Fri Jan 26, 2018 3:07 am
Forum: General Topics: RLS/WED
Topic: Hoping for a better night
Replies: 13
Views: 1028

Re: Hoping for a better night

Alcohol is a trigger for me, I might have four glasses of wine a year. It's no hardship though because I don't really like it and more than one glass gives me a headache. Caffeine is too so except for a small amount of really dark chocolate once or twice a week I stay caffeine free.
by Yankiwi
Fri Jan 19, 2018 11:21 pm
Forum: Just Joined?
Topic: New to Site; hello to all
Replies: 58
Views: 8158

Re: New to Site; hello to all

I don't know the brand but magnesium cream is available in New Zealand. Even though I didn't think it would work I bought some and when my legs are really bad rub it in. It doesn't seem to do anything but the rubbing action helps sometimes. I think hand lotion works just as well but it's one of thos...
by Yankiwi
Thu Jan 18, 2018 10:45 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Magnesium and CoQ10
Replies: 37
Views: 5405

Re: Magnesium and CoQ10

That's horrible, Deb. I like to read too and get a lot done at night. Sometimes I need to walk too much so I listen to podcasts. I can almost always get to sleep if I go to bed at the right time but I wake up around one and a half to two hours later. That's when the games begin. Last night it was af...
by Yankiwi
Thu Jan 11, 2018 10:25 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 331
Views: 29267

Re: What Severe RLS is Like

EeFall—your online "diary" along with comments is such a valuable resource. I'm glad you're doing so well and thanks for keeping up the posts.
by Yankiwi
Thu Jan 11, 2018 10:19 pm
Forum: General Topics: RLS/WED
Topic: Flu + RLS + constipation = torture
Replies: 7
Views: 725

Re: Flu + RLS + constipation = torture

I love avocados and cantaloupe. In the past I only bought when prices were low—or at least not astronomical. Now I just buy them. I love the taste and the vitamin c and fiber are essential to me.
by Yankiwi
Wed Jan 10, 2018 8:19 am
Forum: General Topics: RLS/WED
Topic: Flu + RLS + constipation = torture
Replies: 7
Views: 725

Re: Flu + RLS + constipation = torture

Sounds like your body knows what it needs. Maybe you'll stay off the sugars even after you're better Yes, I hope so too. But I have to add, I rarely ate ice cream and keep some in the freezer in the shed and have very small amounts of 72% chocolate a few times a week. I have a pretty good diet but ...
by Yankiwi
Tue Jan 09, 2018 2:36 am
Forum: General Topics: RLS/WED
Topic: Progress with my local doctor?
Replies: 36
Views: 4468

Re: Progress with my local doctor?

Steve, we are lucky to have an intelligent, well informed advocate for opiods for those who need them and don't/won't abuse them. In the past some docs gave out prescriptions for things like oxycodone like they were m&ms and addiction resulted in some cases but nobody can tell me any doctor is p...
by Yankiwi
Tue Jan 09, 2018 2:22 am
Forum: Everything Else...just no RLS/WED!
Topic: Happy New Year! & checking in
Replies: 13
Views: 1733

Re: Happy New Year! & checking in

Congratulations! I hope you can walk around a lot at your new job.
by Yankiwi
Tue Jan 09, 2018 2:21 am
Forum: General Topics: RLS/WED
Topic: Sleep diary
Replies: 4
Views: 624

Re: Sleep diary

I will upload my notes to the computer and give the print out to my doctor. He is wonderful and very compassionate but when I told him I was getting less than six hours sleep, night after night, said that's all he got. Yeah, but in one chunk or two, not in five chunks over eight or ten hours. On the...
by Yankiwi
Tue Jan 09, 2018 2:17 am
Forum: General Topics: RLS/WED
Topic: Flu + RLS + constipation = torture
Replies: 7
Views: 725

Re: Flu + RLS + constipation = torture

Thanks, I'm on day 9, taking a 7 day course of a strong antibiotic and am getting better but I know it will still be a while. At least my constipation is under control, more or less. My favorite foods--ice cream, chocolate ets--are not attractive at all so I'm eating oatmeal with an All Bran garnish...
by Yankiwi
Thu Jan 04, 2018 10:53 pm
Forum: General Topics: RLS/WED
Topic: Sleep diary
Replies: 4
Views: 624

Sleep diary

I've kept sleep diaries in the past but I find it hard to write things down in the night, I'm just too wrung out or agitated. Last night I used "Notes" on my iPhone. I started by talking to Siri but switched to just keying my words in. A cellphone is easy to carry around while doing my wal...
by Yankiwi
Thu Jan 04, 2018 10:47 pm
Forum: General Topics: RLS/WED
Topic: Flu + RLS + constipation = torture
Replies: 7
Views: 725

Flu + RLS + constipation = torture

I'm in my fifth day of knock down, drag out influenza. Everyone who has had it knows you just want to stay in bed but our stupid legs prevent that. About three weeks ago my doctor prescribed iron so that added to my general constipation which I was able to keep under control, mostly with diet. It is...
by Yankiwi
Thu Nov 30, 2017 2:25 am
Forum: Everything Else...just no RLS/WED!
Topic: Moving Mayhem
Replies: 82
Views: 11606

Re: Moving Mayhem

Your new activities in a new life sound wonderful. It would be great if your political group could create fairer elections starting with eliminating gerimandering.

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