Search found 27 matches

by EdSoFlo
Fri Dec 22, 2017 3:41 pm
Forum: Prescription Medications
Topic: Starting At Emory
Replies: 13
Views: 1314

Re: Starting At Emory

Welcome to the discussion board. I don't have anything to add about Dr Rye other than that I understand that one of the requirements to become a Foundation Quality Care Clinic is that they must be willing to use opioids to treat RLS in those of us who have experienced augmentation. I share your opi...
by EdSoFlo
Fri Dec 22, 2017 3:31 pm
Forum: Prescription Medications
Topic: Starting At Emory
Replies: 13
Views: 1314

Re: Starting At Emory

Welcome to the board. And thank you for sharing your story. I hope that Dr Rye doesn't disappoint. He has RLS and I would see him if I lived anywhere close to him. Do you mind sharing the name of the Dr you saw in Santa Monica? I moved to So Cal recently. I see Dr. B now, but he is in his mid-60s a...
by EdSoFlo
Fri Dec 22, 2017 4:13 am
Forum: Prescription Medications
Topic: Starting At Emory
Replies: 13
Views: 1314

Starting At Emory

Hi all - Just a brief background. I've had pretty severe RLS my entire life. As a young kid I remember describing it to a doctor as 'crazy legs'. I was officially diagnosed about 11 years ago at a very good sleep disorder clinic in Santa Monica CA, at age 38. Started with the usual DA's, didn't work...
by EdSoFlo
Thu Dec 21, 2017 1:49 pm
Forum: Prescription Medications
Topic: Pending Opioid Withdrawal?
Replies: 13
Views: 1372

Re: Pending Opioid Withdrawal?

I massaged my PA that I had so many pills left and that I was ready for my next prescription. This was on Monday. I have one pill to get me through the night and tomorrow until she might electronically send it to my pharmacy. Hopefully she is acting on this. Last refill, I had to re-message and rem...
by EdSoFlo
Sun Oct 04, 2015 10:24 pm
Forum: Prescription Medications
Topic: BELSOMRA
Replies: 12
Views: 1614

Re: BELSOMRA

My neuro told me about Belsomra (I'm suffering currently from major augmentation from Sinemet and am having, of course, horrible sleep issues. The 'z' class drugs are no good for me, temazepam is OK but I my tolerance builds very quickly, he said this is new, let's try it) and I utilized the free 10...
by EdSoFlo
Tue Sep 29, 2015 12:17 pm
Forum: Augmentation
Topic: Neurologist Has No Clue
Replies: 18
Views: 5772

Re: Neurologist Has No Clue

Thank you both for your replies, and for your support/understanding and ideas. Sorry for delay have been busy (and groggy!) I would happily travel to Jacksonville for proper care and will look into that ASAP. Yes it really is unfortunate that this class of medication of which there is no substitute ...
by EdSoFlo
Tue Sep 15, 2015 12:13 pm
Forum: Augmentation
Topic: Neurologist Has No Clue
Replies: 18
Views: 5772

Neurologist Has No Clue

Hi all - I'll try to be as brief as possible and give the Readers Digest version of my situation. Officially diagnosed pretty severe RLS a bit over 8 years ago, by excellent sleep doc in Los Angeles. Tried all 1st and 2nd line medications, to no avail, arrived at wonderful solution with 5mg Oxycodon...
by EdSoFlo
Mon Jun 22, 2015 12:50 am
Forum: Just Joined?
Topic: New member Hello! And Questions
Replies: 14
Views: 1282

Re: New member Hello! And Questions

Thank you to you both for your replies sorry for the delay in response. I have tried Kratom, I ordered a powder form and it didn't do much but upset my stomach and make me feel kind of funky, mood-wise, the next day. There is a Kava joint that sells a pre-made tea that works a lot better but not gre...
by EdSoFlo
Tue Jun 02, 2015 12:18 pm
Forum: Just Joined?
Topic: New member Hello! And Questions
Replies: 14
Views: 1282

Re: New member Hello! And Questions

Thanks, even when you know something is nutty, it's always nice to hear it back! And that's the thing, I'm not getting relief...due to the crazy cost I ceased treatment there and am back using the Sinemet. That's the most frustrating aspect. I'm going to look more into it, maybe this place just want...
by EdSoFlo
Tue Jun 02, 2015 12:58 am
Forum: Just Joined?
Topic: New member Hello! And Questions
Replies: 14
Views: 1282

Re: New member Hello! And Questions

Hi, I just wanted to post an update, and simultaneously ask a question. I finally found a pain clinic (ONLY such clinics are willing to prescribe opioid medication on a regular basis in Florida to the best of my knowledge) to see me and treat my RLS. After filling our about half a book in forms agre...
by EdSoFlo
Wed Jan 07, 2015 6:29 am
Forum: Just Joined?
Topic: New member Hello! And Questions
Replies: 14
Views: 1282

Re: New member Hello! And Questions

Thank you both very much for all the info above. I actually had a great sleep doc in CA as I said before who was careful to monitor the opoid use, but was perfectly OK with it and even sent my a script here in Florida when I first moved here (which of course pharmacies wouldn't fill here, they looke...
by EdSoFlo
Tue Jan 06, 2015 1:52 pm
Forum: Just Joined?
Topic: New member Hello! And Questions
Replies: 14
Views: 1282

New member Hello! And Questions

Hello to all fellow RLS suffers...just knowing we're not alone has such great value itself. My specific situation: I'd suffered for me entire life (I remember going to the doctor as a kid and describing feeling "crazy legs"), I finally was officially treated at a very highly regarded sleep...