Search found 176 matches
- Thu Feb 25, 2021 2:07 pm
- Forum: Physical Treatments
- Topic: PA’s Diagnosis
- Replies: 4
- Views: 203
Re: PA’s Diagnosis
I have an appointment with another neurologist this month. Told my GP I was dissatisfied with neurologist's communication and 10 seconds later had a referral to someone else in network. I'll ask him about the PA's comments on deterioration of the muscle from long term RLS/PLMS. I hope to improve com...
- Thu Feb 25, 2021 1:52 pm
- Forum: Physical Treatments
- Topic: New RLS Devices...
- Replies: 3
- Views: 91
Re: New RLS Devices...
So glad to see the investment in these technologies. Shows you how pervasive this insidious disease is.
- Mon Feb 08, 2021 6:12 pm
- Forum: Prescription Medications
- Topic: Clonazepam and Doctors
- Replies: 5
- Views: 229
Re: Clonazepam and Doctors
Our stories are so very similar. I lived with RLS maybe forever, Jr. High at least. I first heard of RLS in the 80s. In my late 30s I asked a doctor about it & he put me on Clonazepam. Still had to deal with late afternoon & evening Jimmy legs but slept well. Still had a lot of nighttime leg movemen...
- Wed Jan 27, 2021 3:17 pm
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: What's the deal with magnesium?
- Replies: 8
- Views: 806
Re: What's the deal with magnesium?
I have been taking magnesium for 8 years in the form of a product Calm. This has peen at the persistence of my wife mixing us up a glass just before bed. No miracle cure for RLS but no complaints. Keeps you regular if you're old like me.
- Tue Jan 12, 2021 4:11 pm
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: Medical Marijuana in non-recreational US states
- Replies: 12
- Views: 1238
Re: Medical Marijuana in non-recreational US states
In Fl you don't need to see a doctor "certified to dispense MJ" once a year. It's every three months but can't be the same visit as one covered by insurance. So that's 8 times a year. I would gladly pay a doc once a year. And no, I don't want to be breaking the law or buy from an unknown source. Hop...
- Sun Jan 10, 2021 2:15 pm
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: A few questions about iron tablets
- Replies: 18
- Views: 874
Re: A few questions about iron tablets
I thought we were supposed to take iron with vitamin C on an empty stomach. I researched that and it is understood to be no less 2 hours after a meal and no more than 1 hour before. I find oral iron helps but is no cure. My providers hematologist says no IV unless I am anemic. My numbers are way up ...
- Sun Jan 10, 2021 2:02 pm
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: Medical Marijuana in non-recreational US states
- Replies: 12
- Views: 1238
Re: Medical Marijuana in non-recreational US states
Florida’s laws are a joke. My neurologist told me he was getting into the marijuana business. He said since I had skin cancer before he could treat me for RLS. I see him now four times a year just to get Clonazepam. For MJ I would have to see him 8 (cash for 4). Then whatever they charge for the pro...
- Sun Jan 10, 2021 1:41 pm
- Forum: Physical Treatments
- Topic: PA’s Diagnosis
- Replies: 4
- Views: 203
PA’s Diagnosis
Every other time I go to Neurologist I see his PA. Both have heavy accents so communication is not great. Not surprising since a third of US docs are foreign born. Anyways the PA tells me my pain that I take Lyrica for is the deterioration of the muscle in my thighs from repeated jerking day and esp...
- Mon Oct 19, 2020 5:34 pm
- Forum: Physical Treatments
- Topic: BEST MATTRESS FOR RLS
- Replies: 11
- Views: 682
Re: BEST MATTRESS FOR RLS
I’ve been sold on Tempur-Pedic for a long time. We have a house full now. I picked the most firm one when we finally upgraded to a king. Big mistake. Expensive to do over.
- Mon Oct 19, 2020 5:19 pm
- Forum: Prescription Medications
- Topic: New Consensus Treatment Document
- Replies: 6
- Views: 397
Re: New Consensus Treatment Document
I never hear why hematologist are so leery of more iron. My MD says it is organ failure related but no details.
- Sat Sep 12, 2020 3:07 pm
- Forum: Prescription Medications
- Topic: Lyrica 300+
- Replies: 10
- Views: 507
Re: Lyrica 300+
I take 150 mg about 7pm then 150 mg +2 mg clonazepam at bedtime. The goal is to get to sleep quickly. Makes RLS bearable barely. Good weeks followed by bad weeks with no apparent trigger. I have not asked about increasing dosage only because I'm running out of options. Best of Luck Wontok My neurolo...
- Wed Aug 05, 2020 2:21 pm
- Forum: Prescription Medications
- Topic: Movement Disorder Specialist--Really?
- Replies: 6
- Views: 506
Re: Movement Disorder Specialist--Really?
I'd consider myself lucky if Gabapentin works well for you long run. I think it is about the most benign of the drugs used to treat RLS. I was on Requip XL for a year and it was a horrible, the lost year of my life. A little bit of codeine and I'm all bound up so I can't imagine what a real opiate w...
- Sat May 30, 2020 12:54 pm
- Forum: Prescription Medications
- Topic: Lyrica side effects
- Replies: 9
- Views: 393
Re: Lyrica side effects
I'm taking 300 mg of Lyrica and 2 mg Clonazepam. I've tried just about everything else and this minimises daytime RLS, allows me to sleep with less PLMS and has minimal side effects. I would not operated heavy machinery after taking it but that goes without saying. I take 150 mg about 7 pm, another ...
- Tue Apr 28, 2020 4:04 pm
- Forum: Prescription Medications
- Topic: Lyrica questions
- Replies: 19
- Views: 738
Re: Lyrica questions
My Neurologist bumped my Lyrica script up to 2 x 150 mg plus 2 mg Clonazepam and I'm sleeping like a baby. I take 1 cap an hour followed by Clonazepam just before bed. Daytime issues are at a minimum. I never thought I would be putting all these drugs in my body but at 63 I've decided to maximise qu...
- Mon Apr 20, 2020 8:35 pm
- Forum: Prescription Medications
- Topic: IV Iron Revisited
- Replies: 3
- Views: 214
IV Iron Revisited
Stjohnh, I just read on another post you have achieved complete relief with IV Iron. That is amazing! You are the only person I know of that has achieved that degree of relief and did not just post their complicated supplements and life style changes that befit a monk. Some come on once and claim to...