Restless Legs Syndrome (RLS) Discussion Board

I'm surprised that gabapentin and Lyrica are basically the same. 300 mg. did nothing to help the 2 mg. clonazepam I'm on, but 150 mg. Lyrica has considerably improved symptoms.

And best of luck with whatever you do. Rick

I tampered off Clonazepam a couple of years ago. It was really tough. My doctor gave me 400 mg Gabapentin and told me over three months to taper 3, 2,1, 0 mg. It started out well but I did not sleep for a week when I went to 0. After that scary week I took 1 mg and slept 24 hours. Over the next thre...

I started taking 250 mg Lyrica once a day about six months ago. I'm also taking 2 mg of clonazepam but got off gabapentin. I can live with this state of things but would prefer a little more help. My sensations start as soon as I lay down. I attribute better sleep to Lyrica but the RLS is going the ...

My GP talked to the haematologist in my insurance group who will only treat anaemia with IV Iron. I was prepared for this after reading other's experiences with haematologists. I guess I'll change to Ferrous Sulphate with vitamin C and increase the dose to that specified in the Consensus Clinical Pr...

I was talking to my GP about IV Iron yesterday. I showed her the Consensus Clinical Practice Guidelines for Iron Treatment and she was somewhat receptive to the idea. She's going to talk to the haematologist and have a full iron panel run on me for my next visit. My question is what kind of oral iro...

I'm a lifelong sufferer of severe RLS and resident of Fl. Almost every GP claims they treat RLS in their Bio but few to my experience know more than their computer tells them. DAs -> Extended release DAs -> Gabapentin -> Neupro. I looked all over the state for an expert and found a movement speciali...

My wife's principal complaint is my PLMD. Hard to sleep with someone with this condition but she is a great sport. My symptoms are mostly when I'm asleep but a little in the evenings. I had no idea how bad it was until I took a video even though it's been going on for over 45 years. Without Clonazep...

Stjohn, what exactly is Injectafer? Is that a name brand of the technique? Is it an IV drip or something else? I think you said if your insurance did not cover the procedure it would cost about $2K. Was that for the series of shots, basically a year's dose? I read the study and I'm thinking of bring...

My doctor says she has had patients on DAs for decades for RLS. I have never met one. I know this forum caters to those seeking more help but is there anyone out there that knows one of these people successfully using DAs for decades. I tried and supplements you mention by themselves and still do wi...

Along the lines rotating meds I had an incredibly hard time getting my prescriptions filled in time for vacation. I would have run out of both clonazepam and Lyrica over two weeks. CVS (our pharmacy) at first told them I could get them on Thursday and filled the clonazepam. Because insurance covered...

I had an incredible 2 weeks in London and Portsmouth and the RLS backed off even for long jet rides. I wish I could count on a dose of vacation working and I would plan even more intense traveling. We won a cheap upgrade coming back from Virgin which was a godsend. I watched three movies and was hom...

Thx for the responses. Last few nights have been tolerable I assume because the ebb and flow of pain. Another RLS variable.

I'm on a bucket list vacation next few weeks. I'm hoping to get a reprieve from the worst of RLS as usual when traveling. Knock on wood!

I saw a neurologist about the severity of my RLS. This is the first time I've used one beyond just a consultation. He added Lyrica to the mix of Clonazepam and Gabapentin I was already on. Worked like a champ for five weeks. Now, two months later, I'm about back where I started. My regular doctor wa...

I had read an article where the doctor said he had seen RLS patients who did better later in life. At 62 I'm not real encouraged from what I read above. I've been blessed with such a great life, I guess this is just a burden I have to carry.