Restless Legs Syndrome (RLS) Discussion Board

I have an appointment with another neurologist this month. Told my GP I was dissatisfied with neurologist's communication and 10 seconds later had a referral to someone else in network. I'll ask him about the PA's comments on deterioration of the muscle from long term RLS/PLMS. I hope to improve com...

So glad to see the investment in these technologies. Shows you how pervasive this insidious disease is.

Our stories are so very similar. I lived with RLS maybe forever, Jr. High at least. I first heard of RLS in the 80s. In my late 30s I asked a doctor about it & he put me on Clonazepam. Still had to deal with late afternoon & evening Jimmy legs but slept well. Still had a lot of nighttime leg movemen...

I have been taking magnesium for 8 years in the form of a product Calm. This has peen at the persistence of my wife mixing us up a glass just before bed. No miracle cure for RLS but no complaints. Keeps you regular if you're old like me.

In Fl you don't need to see a doctor "certified to dispense MJ" once a year. It's every three months but can't be the same visit as one covered by insurance. So that's 8 times a year. I would gladly pay a doc once a year. And no, I don't want to be breaking the law or buy from an unknown source. Hop...

I thought we were supposed to take iron with vitamin C on an empty stomach. I researched that and it is understood to be no less 2 hours after a meal and no more than 1 hour before. I find oral iron helps but is no cure. My providers hematologist says no IV unless I am anemic. My numbers are way up ...

Florida’s laws are a joke. My neurologist told me he was getting into the marijuana business. He said since I had skin cancer before he could treat me for RLS. I see him now four times a year just to get Clonazepam. For MJ I would have to see him 8 (cash for 4). Then whatever they charge for the pro...

Every other time I go to Neurologist I see his PA. Both have heavy accents so communication is not great. Not surprising since a third of US docs are foreign born. Anyways the PA tells me my pain that I take Lyrica for is the deterioration of the muscle in my thighs from repeated jerking day and esp...

I’ve been sold on Tempur-Pedic for a long time. We have a house full now. I picked the most firm one when we finally upgraded to a king. Big mistake. Expensive to do over.

I never hear why hematologist are so leery of more iron. My MD says it is organ failure related but no details.

I take 150 mg about 7pm then 150 mg +2 mg clonazepam at bedtime. The goal is to get to sleep quickly. Makes RLS bearable barely. Good weeks followed by bad weeks with no apparent trigger. I have not asked about increasing dosage only because I'm running out of options. Best of Luck Wontok My neurolo...

I'd consider myself lucky if Gabapentin works well for you long run. I think it is about the most benign of the drugs used to treat RLS. I was on Requip XL for a year and it was a horrible, the lost year of my life. A little bit of codeine and I'm all bound up so I can't imagine what a real opiate w...

I'm taking 300 mg of Lyrica and 2 mg Clonazepam. I've tried just about everything else and this minimises daytime RLS, allows me to sleep with less PLMS and has minimal side effects. I would not operated heavy machinery after taking it but that goes without saying. I take 150 mg about 7 pm, another ...

My Neurologist bumped my Lyrica script up to 2 x 150 mg plus 2 mg Clonazepam and I'm sleeping like a baby. I take 1 cap an hour followed by Clonazepam just before bed. Daytime issues are at a minimum. I never thought I would be putting all these drugs in my body but at 63 I've decided to maximise qu...

Stjohnh, I just read on another post you have achieved complete relief with IV Iron. That is amazing! You are the only person I know of that has achieved that degree of relief and did not just post their complicated supplements and life style changes that befit a monk. Some come on once and claim to...