Search found 136 matches

by Stainless
Sat Oct 05, 2019 6:49 pm
Forum: Prescription Medications
Topic: Gabapentin: Neurotin or Horizant (gabapentin enacarbil)
Replies: 9
Views: 96

Re: Gabapentin: Neurotin or Horizant (gabapentin enacarbil)

I'm surprised that gabapentin and Lyrica are basically the same. 300 mg. did nothing to help the 2 mg. clonazepam I'm on, but 150 mg. Lyrica has considerably improved symptoms.
by Stainless
Wed Aug 21, 2019 3:02 pm
Forum: Prescription Medications
Topic: Tapering clonazepam before methadone treatment
Replies: 11
Views: 172

Re: Tapering clonazepam before methadone treatment

And best of luck with whatever you do. Rick
by Stainless
Wed Aug 21, 2019 3:00 pm
Forum: Prescription Medications
Topic: Tapering clonazepam before methadone treatment
Replies: 11
Views: 172

Re: Tapering clonazepam before methadone treatment

I tampered off Clonazepam a couple of years ago. It was really tough. My doctor gave me 400 mg Gabapentin and told me over three months to taper 3, 2,1, 0 mg. It started out well but I did not sleep for a week when I went to 0. After that scary week I took 1 mg and slept 24 hours. Over the next thre...
by Stainless
Mon Aug 19, 2019 3:54 pm
Forum: Prescription Medications
Topic: Lyrica
Replies: 9
Views: 292

Re: Lyrica

I started taking 250 mg Lyrica once a day about six months ago. I'm also taking 2 mg of clonazepam but got off gabapentin. I can live with this state of things but would prefer a little more help. My sensations start as soon as I lay down. I attribute better sleep to Lyrica but the RLS is going the ...
by Stainless
Sat Aug 10, 2019 1:44 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: What kind of Oral Iron?
Replies: 7
Views: 197

Re: What kind of Oral Iron?

My GP talked to the haematologist in my insurance group who will only treat anaemia with IV Iron. I was prepared for this after reading other's experiences with haematologists. I guess I'll change to Ferrous Sulphate with vitamin C and increase the dose to that specified in the Consensus Clinical Pr...
by Stainless
Wed Aug 07, 2019 11:43 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: What kind of Oral Iron?
Replies: 7
Views: 197

What kind of Oral Iron?

I was talking to my GP about IV Iron yesterday. I showed her the Consensus Clinical Practice Guidelines for Iron Treatment and she was somewhat receptive to the idea. She's going to talk to the haematologist and have a full iron panel run on me for my next visit. My question is what kind of oral iro...
by Stainless
Sun Jul 14, 2019 4:36 pm
Forum: Prescription Medications
Topic: Methadone in Florida?
Replies: 4
Views: 141

Re: Methadone in Florida?

I'm a lifelong sufferer of severe RLS and resident of Fl. Almost every GP claims they treat RLS in their Bio but few to my experience know more than their computer tells them. DAs -> Extended release DAs -> Gabapentin -> Neupro. I looked all over the state for an expert and found a movement speciali...
by Stainless
Wed Jul 03, 2019 2:09 pm
Forum: Prescription Medications
Topic: PLMD experience?
Replies: 3
Views: 102

Re: PLMD experience?

My wife's principal complaint is my PLMD. Hard to sleep with someone with this condition but she is a great sport. My symptoms are mostly when I'm asleep but a little in the evenings. I had no idea how bad it was until I took a video even though it's been going on for over 45 years. Without Clonazep...
by Stainless
Wed Jul 03, 2019 1:50 pm
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 74
Views: 3000

Re: Experience with Injectafer?

Stjohn, what exactly is Injectafer? Is that a name brand of the technique? Is it an IV drip or something else? I think you said if your insurance did not cover the procedure it would cost about $2K. Was that for the series of shots, basically a year's dose? I read the study and I'm thinking of bring...
by Stainless
Sun Jun 16, 2019 5:03 pm
Forum: Prescription Medications
Topic: Dopamine question - even after all these years.
Replies: 6
Views: 197

Re: Dopamine question - even after all these years.

My doctor says she has had patients on DAs for decades for RLS. I have never met one. I know this forum caters to those seeking more help but is there anyone out there that knows one of these people successfully using DAs for decades. I tried and supplements you mention by themselves and still do wi...
by Stainless
Thu May 30, 2019 12:38 pm
Forum: Prescription Medications
Topic: Rotating Meds
Replies: 23
Views: 351

Re: Rotating Meds

Along the lines rotating meds I had an incredibly hard time getting my prescriptions filled in time for vacation. I would have run out of both clonazepam and Lyrica over two weeks. CVS (our pharmacy) at first told them I could get them on Thursday and filled the clonazepam. Because insurance covered...
by Stainless
Wed May 29, 2019 3:27 pm
Forum: Prescription Medications
Topic: Rotating Meds
Replies: 23
Views: 351

Re: Rotating Meds

I had an incredible 2 weeks in London and Portsmouth and the RLS backed off even for long jet rides. I wish I could count on a dose of vacation working and I would plan even more intense traveling. We won a cheap upgrade coming back from Virgin which was a godsend. I watched three movies and was hom...
by Stainless
Sun May 12, 2019 6:09 pm
Forum: Prescription Medications
Topic: Rotating Meds
Replies: 23
Views: 351

Re: Rotating Meds

Thx for the responses. Last few nights have been tolerable I assume because the ebb and flow of pain. Another RLS variable.

I'm on a bucket list vacation next few weeks. I'm hoping to get a reprieve from the worst of RLS as usual when traveling. Knock on wood!
by Stainless
Wed May 08, 2019 6:13 pm
Forum: Prescription Medications
Topic: Rotating Meds
Replies: 23
Views: 351

Rotating Meds

I saw a neurologist about the severity of my RLS. This is the first time I've used one beyond just a consultation. He added Lyrica to the mix of Clonazepam and Gabapentin I was already on. Worked like a champ for five weeks. Now, two months later, I'm about back where I started. My regular doctor wa...
by Stainless
Fri Apr 19, 2019 4:03 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Nonmedication strategies for RLS by Shalini Paruthi,MD
Replies: 14
Views: 673

Re: Nonmedication strategies for RLS by Shalini Paruthi,MD

I had read an article where the doctor said he had seen RLS patients who did better later in life. At 62 I'm not real encouraged from what I read above. I've been blessed with such a great life, I guess this is just a burden I have to carry.

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