Restless Legs Syndrome (RLS) Discussion Board

I'm a lifelong sufferer of severe RLS and resident of Fl. Almost every GP claims they treat RLS in their Bio but few to my experience know more than their computer tells them. DAs -> Extended release DAs -> Gabapentin -> Neupro. I looked all over the state for an expert and found a movement speciali...

My wife's principal complaint is my PLMD. Hard to sleep with someone with this condition but she is a great sport. My symptoms are mostly when I'm asleep but a little in the evenings. I had no idea how bad it was until I took a video even though it's been going on for over 45 years. Without Clonazep...

Stjohn, what exactly is Injectafer? Is that a name brand of the technique? Is it an IV drip or something else? I think you said if your insurance did not cover the procedure it would cost about $2K. Was that for the series of shots, basically a year's dose? I read the study and I'm thinking of bring...

My doctor says she has had patients on DAs for decades for RLS. I have never met one. I know this forum caters to those seeking more help but is there anyone out there that knows one of these people successfully using DAs for decades. I tried and supplements you mention by themselves and still do wi...

Along the lines rotating meds I had an incredibly hard time getting my prescriptions filled in time for vacation. I would have run out of both clonazepam and Lyrica over two weeks. CVS (our pharmacy) at first told them I could get them on Thursday and filled the clonazepam. Because insurance covered...

I had an incredible 2 weeks in London and Portsmouth and the RLS backed off even for long jet rides. I wish I could count on a dose of vacation working and I would plan even more intense traveling. We won a cheap upgrade coming back from Virgin which was a godsend. I watched three movies and was hom...

Thx for the responses. Last few nights have been tolerable I assume because the ebb and flow of pain. Another RLS variable.

I'm on a bucket list vacation next few weeks. I'm hoping to get a reprieve from the worst of RLS as usual when traveling. Knock on wood!

I saw a neurologist about the severity of my RLS. This is the first time I've used one beyond just a consultation. He added Lyrica to the mix of Clonazepam and Gabapentin I was already on. Worked like a champ for five weeks. Now, two months later, I'm about back where I started. My regular doctor wa...

I had read an article where the doctor said he had seen RLS patients who did better later in life. At 62 I'm not real encouraged from what I read above. I've been blessed with such a great life, I guess this is just a burden I have to carry.

My doctor put me on B12 and threatened shots if it did not come up. She said it might help RLS but it didn't. I tried those gummy bear ones from CVS for 3 months and it didn't get any better. I went to methylcobalamin B12 drops I buy from Amazon for $30 for 30 mL and my number shot up to 361 pg/mL. ...

I'm on three psychotropic medications so I asked my neurologist if I could try to get off Gabapentin (which I thought was not doing much). I took a half dose and it triggered intense RLS in the middle of the night after 6 weeks of relative peace with my legs. I took the other half and got through th...

Views, when the Neupro proved to be too expensive, I asked the neurologist's nurse and he said 800 mg was the max recommended. Previously I unintentionally took 2 pills a night for a week until I realized what I was doing and saw no improvement at all. The Lyrica worked in a day. I did not expect th...

I started Lyrica four weeks ago as an afterthought phone prescription because the Neupro that my neurologist prescribed cost $800 a month out of pocket. I can't even remember Lyrica ever coming up with my GPs or neurologists and had a fear of the drug from the side effects listed in their ads. This ...

Thx for response Oyx. 5 days in and Lyrica is working so well it is scaring the hell out of me. Ropinirole worked great for a few days and then everything went to hell. My legs have been so calm I forgot what it felt like. Virtually no pain, day and night, even after long hard elliptical sessions. U...

How much Kratom do you take. I tried it once (and probably still have some around) but I could not figure how to choke down several tablespoons. I even tried brownies but who can eat a big brownie every night without blowing up. And all it did was make the brownies taste bad. Good luck staying off m...