Search found 176 matches

by Stainless
Thu Feb 25, 2021 2:07 pm
Forum: Physical Treatments
Topic: PA’s Diagnosis
Replies: 4
Views: 203

Re: PA’s Diagnosis

I have an appointment with another neurologist this month. Told my GP I was dissatisfied with neurologist's communication and 10 seconds later had a referral to someone else in network. I'll ask him about the PA's comments on deterioration of the muscle from long term RLS/PLMS. I hope to improve com...
by Stainless
Thu Feb 25, 2021 1:52 pm
Forum: Physical Treatments
Topic: New RLS Devices...
Replies: 3
Views: 91

Re: New RLS Devices...

So glad to see the investment in these technologies. Shows you how pervasive this insidious disease is.
by Stainless
Mon Feb 08, 2021 6:12 pm
Forum: Prescription Medications
Topic: Clonazepam and Doctors
Replies: 5
Views: 229

Re: Clonazepam and Doctors

Our stories are so very similar. I lived with RLS maybe forever, Jr. High at least. I first heard of RLS in the 80s. In my late 30s I asked a doctor about it & he put me on Clonazepam. Still had to deal with late afternoon & evening Jimmy legs but slept well. Still had a lot of nighttime leg movemen...
by Stainless
Wed Jan 27, 2021 3:17 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: What's the deal with magnesium?
Replies: 8
Views: 806

Re: What's the deal with magnesium?

I have been taking magnesium for 8 years in the form of a product Calm. This has peen at the persistence of my wife mixing us up a glass just before bed. No miracle cure for RLS but no complaints. Keeps you regular if you're old like me.
by Stainless
Tue Jan 12, 2021 4:11 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana in non-recreational US states
Replies: 12
Views: 1238

Re: Medical Marijuana in non-recreational US states

In Fl you don't need to see a doctor "certified to dispense MJ" once a year. It's every three months but can't be the same visit as one covered by insurance. So that's 8 times a year. I would gladly pay a doc once a year. And no, I don't want to be breaking the law or buy from an unknown source. Hop...
by Stainless
Sun Jan 10, 2021 2:15 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: A few questions about iron tablets
Replies: 18
Views: 874

Re: A few questions about iron tablets

I thought we were supposed to take iron with vitamin C on an empty stomach. I researched that and it is understood to be no less 2 hours after a meal and no more than 1 hour before. I find oral iron helps but is no cure. My providers hematologist says no IV unless I am anemic. My numbers are way up ...
by Stainless
Sun Jan 10, 2021 2:02 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana in non-recreational US states
Replies: 12
Views: 1238

Re: Medical Marijuana in non-recreational US states

Florida’s laws are a joke. My neurologist told me he was getting into the marijuana business. He said since I had skin cancer before he could treat me for RLS. I see him now four times a year just to get Clonazepam. For MJ I would have to see him 8 (cash for 4). Then whatever they charge for the pro...
by Stainless
Sun Jan 10, 2021 1:41 pm
Forum: Physical Treatments
Topic: PA’s Diagnosis
Replies: 4
Views: 203

PA’s Diagnosis

Every other time I go to Neurologist I see his PA. Both have heavy accents so communication is not great. Not surprising since a third of US docs are foreign born. Anyways the PA tells me my pain that I take Lyrica for is the deterioration of the muscle in my thighs from repeated jerking day and esp...
by Stainless
Mon Oct 19, 2020 5:34 pm
Forum: Physical Treatments
Topic: BEST MATTRESS FOR RLS
Replies: 11
Views: 682

Re: BEST MATTRESS FOR RLS

I’ve been sold on Tempur-Pedic for a long time. We have a house full now. I picked the most firm one when we finally upgraded to a king. Big mistake. Expensive to do over.
by Stainless
Mon Oct 19, 2020 5:19 pm
Forum: Prescription Medications
Topic: New Consensus Treatment Document
Replies: 6
Views: 397

Re: New Consensus Treatment Document

I never hear why hematologist are so leery of more iron. My MD says it is organ failure related but no details.
by Stainless
Sat Sep 12, 2020 3:07 pm
Forum: Prescription Medications
Topic: Lyrica 300+
Replies: 10
Views: 507

Re: Lyrica 300+

I take 150 mg about 7pm then 150 mg +2 mg clonazepam at bedtime. The goal is to get to sleep quickly. Makes RLS bearable barely. Good weeks followed by bad weeks with no apparent trigger. I have not asked about increasing dosage only because I'm running out of options. Best of Luck Wontok My neurolo...
by Stainless
Wed Aug 05, 2020 2:21 pm
Forum: Prescription Medications
Topic: Movement Disorder Specialist--Really?
Replies: 6
Views: 506

Re: Movement Disorder Specialist--Really?

I'd consider myself lucky if Gabapentin works well for you long run. I think it is about the most benign of the drugs used to treat RLS. I was on Requip XL for a year and it was a horrible, the lost year of my life. A little bit of codeine and I'm all bound up so I can't imagine what a real opiate w...
by Stainless
Sat May 30, 2020 12:54 pm
Forum: Prescription Medications
Topic: Lyrica side effects
Replies: 9
Views: 393

Re: Lyrica side effects

I'm taking 300 mg of Lyrica and 2 mg Clonazepam. I've tried just about everything else and this minimises daytime RLS, allows me to sleep with less PLMS and has minimal side effects. I would not operated heavy machinery after taking it but that goes without saying. I take 150 mg about 7 pm, another ...
by Stainless
Tue Apr 28, 2020 4:04 pm
Forum: Prescription Medications
Topic: Lyrica questions
Replies: 19
Views: 738

Re: Lyrica questions

My Neurologist bumped my Lyrica script up to 2 x 150 mg plus 2 mg Clonazepam and I'm sleeping like a baby. I take 1 cap an hour followed by Clonazepam just before bed. Daytime issues are at a minimum. I never thought I would be putting all these drugs in my body but at 63 I've decided to maximise qu...
by Stainless
Mon Apr 20, 2020 8:35 pm
Forum: Prescription Medications
Topic: IV Iron Revisited
Replies: 3
Views: 214

IV Iron Revisited

Stjohnh, I just read on another post you have achieved complete relief with IV Iron. That is amazing! You are the only person I know of that has achieved that degree of relief and did not just post their complicated supplements and life style changes that befit a monk. Some come on once and claim to...