Search found 173 matches

by Stainless
Sun Mar 08, 2020 3:52 pm
Forum: Physical Treatments
Topic: Nectar bed helps sleep
Replies: 3
Views: 1825

Re: Nectar bed helps sleep

We changed to Tempurpedic about a decade ago. Biggest advantage was my wife was able to live with my increasing PLMS. An improvement in both of our comfort but not RLS symptoms.
by Stainless
Tue Mar 03, 2020 4:38 pm
Forum: Prescription Medications
Topic: Gabapentin--Lyrica?
Replies: 6
Views: 831

Re: Gabapentin--Lyrica?

I've been on Pregabalin 150 mg and Clonazepam 2 mg for over a year without any significant side effects. Before the addition of Pregabalin, RLS had gotten worse and worse to the point of significant pain in my thighs and PLMS in the evening and night. Not like I don't deal with RLS on a daily basis ...
by Stainless
Sat Feb 22, 2020 3:31 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Vitamin B1
Replies: 8
Views: 2148

Re: Vitamin B1

I just popped my first benfotiamine thiamine supplement. What caught my eye was our workout routine and alcohol consumption seem to be similar (although I'm slowing down at 63) and I'm willing to invest $20 in a shot in the dark. I've tried everything else so why not. Fingers crossed. Rick
by Stainless
Tue Feb 11, 2020 2:00 pm
Forum: Physical Treatments
Topic: Iron Infusion Worked for me
Replies: 17
Views: 2653

Re: Iron Infusion Worked for me

Thanks Holland. I'm scheduled to have an iron tested next month before my doctor appointment. I'll take a closer look at the guidelines since my doctor got a resounding "not unless anaemic" response from the haematologist. My basic iron numbers have been all over the place probably because I have no...
by Stainless
Mon Feb 10, 2020 5:14 pm
Forum: Physical Treatments
Topic: Iron Infusion Worked for me
Replies: 17
Views: 2653

Re: Iron Infusion Worked for me

I'd be willing to travel to try infusion. My medical health service is useless. My neurologist has no problem prescribing benzodiazepines and pregabalin but the hematologist will not consider it unless I'm anaemic. How can that make sense. I would have no idea how to doctor shop. I'm in Florida but ...
by Stainless
Fri Jan 31, 2020 2:37 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Magnesium pills
Replies: 8
Views: 1446

Re: Magnesium pills

I've been taking magnesium in pills and powders in tea or water. Besides some help with occasional constipation, I don't get relief from RLS. But my wife keeps pushing it on me so I've been doing this for at least five years and my RLS is worse than ever. No miracle cure but I'm sure it does not hurt.
by Stainless
Sun Jan 19, 2020 6:50 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Melatonin (2nd attempt)
Replies: 9
Views: 1125

Re: Melatonin (2nd attempt)

I've found that it works if used once but not on any kind of regular basis. I save it for last resort.
by Stainless
Sun Jan 19, 2020 6:46 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Cold medicine
Replies: 10
Views: 1229

Re: Cold medicine

I agree, Benadryl is the biggest trigger I've known. First doctor I told I had RLS suggested I try Benadryl. Bad night and that was 25 years ago. NyQuil really sets me off.
by Stainless
Wed Jan 01, 2020 5:27 pm
Forum: Physical Treatments
Topic: Do hot baths work for everyone?
Replies: 3
Views: 968

Do hot baths work for everyone?

I take a very hot bath about every day. Often two. I empty the hot water tank into the tub and get between 108 and 112F. It almost always gives me some relief and often makes the RLS disappear for a while. I sometimes take one in the early evening and usually a second just before bed at 10 pm. I've ...
by Stainless
Wed Jan 01, 2020 5:09 pm
Forum: Physical Treatments
Topic: Sequential compression device/air leg massager
Replies: 25
Views: 3069

Re: Sequential compression device/air leg massager

I looked at Manamed PlasmaFlow online and it looks like it stimulates your calf. But my RLS is in my thighs. I used to think it was in my calfs decades ago when it was more of just a nuisance. Once it tuned into pain it was distinctly in my thighs. Once I controlled that pain with Lyrica the pain ma...
by Stainless
Sun Dec 22, 2019 3:14 pm
Forum: Prescription Medications
Topic: Cannabis
Replies: 179
Views: 10508

Re: Cannabis

Thanks Rustsmith for the explanation of how federal law comes into play. Even our little city has decided not to enforce possession but that does not change the law. At least in Co. you just walk down the street to a legal vendor and buy whatever you want? Don't see that happening here soon.
by Stainless
Sat Dec 21, 2019 6:42 pm
Forum: Prescription Medications
Topic: Cannabis
Replies: 179
Views: 10508

Re: Cannabis

In Florida MM was forced on the legislature by a voter driven constitutional amendment. That's about the only way anything is accomplished here except selling out to the developers and polluters. The legislature passed a law that only Epilepsy, Glaucoma, Cancer, Immune Deficiency, Lateral Sclerosis,...
by Stainless
Sat Dec 21, 2019 6:21 pm
Forum: Prescription Medications
Topic: Ropinirole Dose
Replies: 6
Views: 606

Re: Ropinirole Dose

I'm surprised you didn't get beneficial effect from ropinirole initially. I thought it had cured me of RLS. That lasted a few days. Then higher and extended release doses for a year until I gave up on it. I often wonder if I took it occasionally if it might help but hate to add another drug to the m...
by Stainless
Tue Dec 10, 2019 8:29 pm
Forum: Physical Treatments
Topic: 'Caffeine and RLS
Replies: 10
Views: 1639

Re: 'Caffeine and RLS

Ice Cream is what sets my legs off. I stopped many years ago. Boy I miss mint chocolate chip....
by Stainless
Tue Dec 10, 2019 5:48 pm
Forum: Prescription Medications
Topic: Cannabis
Replies: 179
Views: 10508

Re: Cannabis

I know how you feel. Last time my neurologist said "we are getting into the MM business". I hesitated to try, because I have used it recreationally and that does not help or hurt RLS. Since I live in a state it is still illegal, I don't know the THC/CBD content. I have an appointment in a couple of ...