Search found 173 matches

by Stainless
Sat Mar 12, 2016 8:03 pm
Forum: Prescription Medications
Topic: Switching from pramipexole to an opiate - What to expect
Replies: 19
Views: 1068

Re: Switching from pramipexole to an opiate - What to expect

Stjohnh, you said you took 8 grams of Kratom a day. How did you take that much? Was it in powder form? I got some red vein Borneo but have a hard time getting 2 grams down. 8 grams would be overwhelming.
by Stainless
Fri Mar 11, 2016 4:44 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom Advise
Replies: 5
Views: 2708

Re: Kratom Advise

I baked a teaspoon in each big brownie and ate one each evening before my RLS kicked in. I could feel it like a mild buzz but not enough to take much of an edge off my RLS. I continued to take 1 mg. ropinerole which gives me about 22 hours of relief. I finished off half of the brownies, quit and don...
by Stainless
Fri Mar 04, 2016 8:59 pm
Forum: Physical Treatments
Topic: Temperature Shock
Replies: 9
Views: 2890

Re: Temperature Shock

Scalding hot water is one of the few things that helps every time with me. Not a cure but relief.
by Stainless
Fri Mar 04, 2016 8:20 pm
Forum: Prescription Medications
Topic: Pramipexole to move on or not to move on
Replies: 13
Views: 663

Re: Pramipexole to move on or not to move on

Is anyone out there taking a DA and Gabapentin, one at a time or alternating, with success?
by Stainless
Sat Feb 27, 2016 5:23 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom Advise
Replies: 5
Views: 2708

Re: Kratom Advise

I choked down a heaping teaspoon in hot tea about 5 pm. It was like mud. It seemed to take the edge off until I took ropinirole an hour before bed but not a drastic difference. I'm going to pick up something to bake it in today. I'll take your advise Jul and try a lower dose.
by Stainless
Sat Feb 27, 2016 5:13 pm
Forum: Prescription Medications
Topic: Getting off pramipexole etc.
Replies: 92
Views: 7706

Re: Getting off pramipexole etc.

Kazul, I have the same side effects from Ropinirole except it helps significantly with my RLS (for now). I haven't got into trouble yet but had to clear the pantry to keep from blowing up like a tick from compulsive snacking. Horny all the time. First I tried Mirapex but it instantly gave me a screa...
by Stainless
Thu Feb 25, 2016 3:17 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom Advise
Replies: 5
Views: 2708

Kratom Advise

I just got some Red Vein Borneo to try as a supplement to ropinirole. I hope to lower the 1 mg. I am taking now or at least hold it steady. It would be nice if this was a replacement so we'll see how that goes. I am planning on taking it in the early evening when my RLS kicks into high gear, because...
by Stainless
Thu Feb 25, 2016 2:54 pm
Forum: Prescription Medications
Topic: Requip to Gabapentin... When does it get better?
Replies: 16
Views: 1325

Re: Requip to Gabapentin... When does it get better?

I used clonazepam for 20 years every night. I started with .5 mg and slowly increased to 3 the last two years. I had no side effects or hangover and slept like I was knocked out, because I was. My whole life I only had RLS in the late afternoon to varying degrees and then again at bedtime. I just de...
by Stainless
Sun Feb 21, 2016 5:04 pm
Forum: Prescription Medications
Topic: Opiate low level 24 hr vs treat just symptoms
Replies: 5
Views: 493

Re: Opiate low level 24 hr vs treat just symptoms

Very interesting webinar. The graph of the failure of various DAs over time compared to methadone was eye opening. I'll definitely bring that to my next doctor appointment.
by Stainless
Sun Feb 14, 2016 8:45 pm
Forum: Prescription Medications
Topic: How can I Avoid Augmentation?
Replies: 8
Views: 792

Re: How can I Avoid Augmentation?

Yes Sojourner, 400 mg. Gabapentin. I've taken as much as 900 mg. but I was in the middle of Benzo withdrawal so I was not sure how much it helped. It was a very confusing time. I was watching the recent RLS.org video and they talked about Gabapentin being used to reduce the pain of RLS but I never e...
by Stainless
Fri Feb 12, 2016 2:12 pm
Forum: Prescription Medications
Topic: How can I Avoid Augmentation?
Replies: 8
Views: 792

Re: How can I Avoid Augmentation?

Thanks PolarBear! I have the book and have had the ferritin test. I did not get the number but will when I see doctor next month. I got an iron supplement to see if it helps until then. I'm having success with 1 mg. Ropinirole but get varying degrees of RLS in the evening. I tried 4 mg. Gabapentin l...
by Stainless
Thu Feb 11, 2016 2:02 pm
Forum: Prescription Medications
Topic: How can I Avoid Augmentation?
Replies: 8
Views: 792

Re: How can I Avoid Augmentation?

It seems to me that the future of fighting RLS is for new sufferers to know what they are getting into and for people changing prescriptions to know the ramifications. Waiting for the pharmaceutical companies to come up with a cure and then being able to come up with insurance that will pay the bill...
by Stainless
Tue Feb 02, 2016 4:33 pm
Forum: Prescription Medications
Topic: How can I Avoid Augmentation?
Replies: 8
Views: 792

How can I Avoid Augmentation?

I’ve been on Ropinirole for a week and it has been a miracle drug for me. Within an hour my RLS disappeared for 22 hours, a full 24 the next night and almost two days the third. My severe insomnia also vanished. Research and advice convinced me to contact my doctor and lowed the dose from 2 to 1 mg ...
by Stainless
Fri Jan 29, 2016 1:00 pm
Forum: Just Joined?
Topic: Over 40 Years of RLS
Replies: 22
Views: 2764

Re: Over 40 Years of RLS

I just went two nights on one 2 mg. dose of Ropinerole. I'm going to try to get a lower dose. I've never seen anything work so well but the side effects seem worse than Gabapentin. I intend to try Gabapentin again, maybe starting today. Last time I started I was on Clonazepam and at the end of my Be...
by Stainless
Wed Jan 27, 2016 2:34 pm
Forum: Just Joined?
Topic: Over 40 Years of RLS
Replies: 22
Views: 2764

Re: Over 40 Years of RLS

Yankiwi, Thanks for the response. I agree with your assessment completely. I am concerned my doctor started me out on too high of a dose Ropinirole at 2 mg. I was only on Sinemet for a few weeks, did not get relief and did not like how I felt so I quit everything. I was going through Clonazepam with...