Restless Legs Syndrome (RLS) Discussion Board

Stjohnh, you said you took 8 grams of Kratom a day. How did you take that much? Was it in powder form? I got some red vein Borneo but have a hard time getting 2 grams down. 8 grams would be overwhelming.

I baked a teaspoon in each big brownie and ate one each evening before my RLS kicked in. I could feel it like a mild buzz but not enough to take much of an edge off my RLS. I continued to take 1 mg. ropinerole which gives me about 22 hours of relief. I finished off half of the brownies, quit and don...

Scalding hot water is one of the few things that helps every time with me. Not a cure but relief.

Is anyone out there taking a DA and Gabapentin, one at a time or alternating, with success?

I choked down a heaping teaspoon in hot tea about 5 pm. It was like mud. It seemed to take the edge off until I took ropinirole an hour before bed but not a drastic difference. I'm going to pick up something to bake it in today. I'll take your advise Jul and try a lower dose.

Kazul, I have the same side effects from Ropinirole except it helps significantly with my RLS (for now). I haven't got into trouble yet but had to clear the pantry to keep from blowing up like a tick from compulsive snacking. Horny all the time. First I tried Mirapex but it instantly gave me a screa...

I just got some Red Vein Borneo to try as a supplement to ropinirole. I hope to lower the 1 mg. I am taking now or at least hold it steady. It would be nice if this was a replacement so we'll see how that goes. I am planning on taking it in the early evening when my RLS kicks into high gear, because...

I used clonazepam for 20 years every night. I started with .5 mg and slowly increased to 3 the last two years. I had no side effects or hangover and slept like I was knocked out, because I was. My whole life I only had RLS in the late afternoon to varying degrees and then again at bedtime. I just de...

Very interesting webinar. The graph of the failure of various DAs over time compared to methadone was eye opening. I'll definitely bring that to my next doctor appointment.

Yes Sojourner, 400 mg. Gabapentin. I've taken as much as 900 mg. but I was in the middle of Benzo withdrawal so I was not sure how much it helped. It was a very confusing time. I was watching the recent RLS.org video and they talked about Gabapentin being used to reduce the pain of RLS but I never e...

Thanks PolarBear! I have the book and have had the ferritin test. I did not get the number but will when I see doctor next month. I got an iron supplement to see if it helps until then. I'm having success with 1 mg. Ropinirole but get varying degrees of RLS in the evening. I tried 4 mg. Gabapentin l...

It seems to me that the future of fighting RLS is for new sufferers to know what they are getting into and for people changing prescriptions to know the ramifications. Waiting for the pharmaceutical companies to come up with a cure and then being able to come up with insurance that will pay the bill...

I’ve been on Ropinirole for a week and it has been a miracle drug for me. Within an hour my RLS disappeared for 22 hours, a full 24 the next night and almost two days the third. My severe insomnia also vanished. Research and advice convinced me to contact my doctor and lowed the dose from 2 to 1 mg ...

I just went two nights on one 2 mg. dose of Ropinerole. I'm going to try to get a lower dose. I've never seen anything work so well but the side effects seem worse than Gabapentin. I intend to try Gabapentin again, maybe starting today. Last time I started I was on Clonazepam and at the end of my Be...

Yankiwi, Thanks for the response. I agree with your assessment completely. I am concerned my doctor started me out on too high of a dose Ropinirole at 2 mg. I was only on Sinemet for a few weeks, did not get relief and did not like how I felt so I quit everything. I was going through Clonazepam with...