Restless Legs Syndrome (RLS) Discussion Board

Yes Sojourner, 400 mg. Gabapentin. I've taken as much as 900 mg. but I was in the middle of Benzo withdrawal so I was not sure how much it helped. It was a very confusing time. I was watching the recent RLS.org video and they talked about Gabapentin being used to reduce the pain of RLS but I never e...

Thanks PolarBear! I have the book and have had the ferritin test. I did not get the number but will when I see doctor next month. I got an iron supplement to see if it helps until then. I'm having success with 1 mg. Ropinirole but get varying degrees of RLS in the evening. I tried 4 mg. Gabapentin l...

It seems to me that the future of fighting RLS is for new sufferers to know what they are getting into and for people changing prescriptions to know the ramifications. Waiting for the pharmaceutical companies to come up with a cure and then being able to come up with insurance that will pay the bill...

I’ve been on Ropinirole for a week and it has been a miracle drug for me. Within an hour my RLS disappeared for 22 hours, a full 24 the next night and almost two days the third. My severe insomnia also vanished. Research and advice convinced me to contact my doctor and lowed the dose from 2 to 1 mg ...

I just went two nights on one 2 mg. dose of Ropinerole. I'm going to try to get a lower dose. I've never seen anything work so well but the side effects seem worse than Gabapentin. I intend to try Gabapentin again, maybe starting today. Last time I started I was on Clonazepam and at the end of my Be...

Yankiwi, Thanks for the response. I agree with your assessment completely. I am concerned my doctor started me out on too high of a dose Ropinirole at 2 mg. I was only on Sinemet for a few weeks, did not get relief and did not like how I felt so I quit everything. I was going through Clonazepam with...

I should also say my insomnia was also gone and I got the best rest I have had in at least 3 months. About ten hours in bed and nine asleep.

I lasted two more weeks on only supplements. Besides a multi and magnesium I took some amino acids. My severe RLS continued all day which I never experienced while on Klonopin. Saw my doctor yesterday who wanted me back on Gabapentin. I convinced her to write a script for Ropinerole which I took by ...

I only took Carbidopa-Levodopa for 3 weeks. I was taking Gabapentin for the last year when I was tapering off 20 years on Kolonopin. Gabapentin seemed to quit working on the RLS after 11 months, maybe made it worse. Insomnia was the worst side effect. Maybe daytime RLS. Part of my problem is I can't...

I watched your video and feel your PLMD Sleepdancer2. I thought mine was severe but it pales in comparison. What TENS unit are you using, I see there are several. I just finished my third night on no medication and feel better than I have in a long time. I have only taken magnesium so far but intend...

Thanks again Polar Bear. I know I OD'ed on Magnesium but it worked. Don't plan on doing that again and ordered some pills to get a consistent amount. I need to review issues taking multiple supplements. I don't know if holistic approach will work but I am running out of options and hope never to go ...

Last night after suffering all day with RLS, I took nothing for the first time in 20 years. I slept for an hour, woke up and took an overdose of magnesium supplement. Like a light switch RLS turned off and stayed off all night. After some insomnia I finally slept and felt better in the morning than ...

Thanks for your response Polar Bear. I have become suspect of the Carbidopa-Levodopa because in two weeks I have RLS all day long, bad insomnia and head in the clouds. Dr. prescribed it because Mirapex we were going to try instantly gave me a bad headache and I have tried about everything else. I ha...

I have had RLS since I was 16 or younger and am now 59. I just dealt with it until I was 39 when the 1st Dr. prescribed Klonopin. It worked great for 20 years until I found there is a significant increase in chance of Alzheimer's in large Canadian study. I spent the last six months getting off Klono...