Search found 172 matches

by Stainless
Wed Feb 13, 2019 2:39 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 14
Views: 422

Re: Neupro Cost

Thanks for replies. I knew going in it was expensive but wow! I could finance a Tesla for that much. I called the neurologist first thing this morning. I'm on meds now and my primary referred me to neurologist to try to improve situation. I take gabapentin now at bedtime with clonazepam and would be...
by Stainless
Tue Feb 12, 2019 9:13 pm
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 14
Views: 422

Neupro Cost

I saw a neurologist this morning (new to me) and at the end of our meeting he prescribed Neupro. I told him I had heard it was very expensive and he was understanding, but said he had no samples so see if pharmacy would sell me 10 to see how it worked. I stopped by pharmacy and asked them to price i...
by Stainless
Fri Feb 01, 2019 3:44 pm
Forum: Physical Treatments
Topic: Is anyone having a successful 'drug free' experience?
Replies: 12
Views: 1609

Re: Is anyone having a successful 'drug free' experience?

IMO do everything you can to not take these meds.
by Stainless
Tue Jan 22, 2019 7:15 pm
Forum: Prescription Medications
Topic: What DA to take
Replies: 12
Views: 770

Re: What DA to take

There was a PowerPoint on this site mostly on RLS and Opioids. I think it was a Mayo Clinic physician. He stated that they had followed every RLS patient at their facility and pramipexole had the best record for length of DA treatment without augmenting. It gave me an instant headache so I went to R...
by Stainless
Tue Jan 22, 2019 6:45 pm
Forum: Physical Treatments
Topic: Plantar Fasciitis Night Sock
Replies: 3
Views: 1073

Re: Plantar Fasciitis Night Sock

You and many others pinpoint your RLS to the calf. I would have said the same thing 20 years ago but now it seems to all be in my thighs. What a strange disease.
by Stainless
Tue Jan 22, 2019 6:38 pm
Forum: Physical Treatments
Topic: Using Trail Camera to observe RLS
Replies: 8
Views: 1194

Re: Using Trail Camera to observe RLS

I've been wearing the Fitbit over a month now and have yet to have a night it says I slept over 3 hours. I don't ever register any sleep until after 2 or 3 in the morning after I've been in bed for 4 or 5 hours (thinking I was sleeping). I assume it is PLMS but I always (if I get a reading at all) g...
by Stainless
Wed Dec 19, 2018 3:51 pm
Forum: Physical Treatments
Topic: Using Trail Camera to observe RLS
Replies: 8
Views: 1194

Re: Using Trail Camera to observe RLS

I just invested in a Fitbit watch to try to gain more insight into sleep. I should have just borrowed my wife's a few more times. Both hers and mine only record 2 or 3 hours of sleep. 20 some minutes of REM. I go to bed at 9 and it does not think I sleep until 3. I wake at 6, I'm not tired during th...
by Stainless
Sat Dec 08, 2018 5:27 pm
Forum: Physical Treatments
Topic: Using Trail Camera to observe RLS
Replies: 8
Views: 1194

Using Trail Camera to observe RLS

I did set up a Trail Camera and observed my RLS the last four nights. It is designed to come on at the first indication of movement record for a preset time and turn off. First two nights I had my wife's Fitbit on monitoring sleep but had to figure out best camera setup. They were terrible nights, I...
by Stainless
Tue Dec 04, 2018 6:00 pm
Forum: Physical Treatments
Topic: Any luck with a sleep study?
Replies: 23
Views: 2889

Re: Any luck with a sleep study?

I've been on clonazepam for over 20 years. I read I should get off that benzo so after six months of reducing 2.5 mg dose I got off using Gabapentin. My RLS (thigh pain and probably PLMS) went 24/7. I tried the DAs and long lasting DAs and after a short good time, things just got worse with signific...
by Stainless
Sun Dec 02, 2018 1:37 pm
Forum: Physical Treatments
Topic: Any luck with a sleep study?
Replies: 23
Views: 2889

Re: Any luck with a sleep study?

I've found that distraction is the only thing that can eliminate RLS for days or even up to a week. A vacation sometimes works but not always. I was just up helping family with hurricane damage and I hardly had a twinge for nearly a week. The week before it was bad as it gets and I actually through ...
by Stainless
Fri Nov 30, 2018 8:59 pm
Forum: Physical Treatments
Topic: Any luck with a sleep study?
Replies: 23
Views: 2889

Re: Any luck with a sleep study?

I just bought a Trail Camera that turns on by sensing motion. It has LED infrared lights and only cost about $60. I doubt the doctors will be interested but I've always wondered what goes on after I go to sleep. I think I'll put a sheet of cardboard in front until I'm feeling like I might fall aslee...
by Stainless
Fri Nov 30, 2018 8:45 pm
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 93
Views: 8301

Re: Experience with Injectafer?

Stjohn. Are you talking about people who have an iron deficiency when you say recommending Injectafer for all but the mildest RLS patients...and 25% will have complete remission …

I'm a sufferer "with RLS who had a ferritin over 90."
by Stainless
Tue Nov 27, 2018 2:00 pm
Forum: Physical Treatments
Topic: Any luck with a sleep study?
Replies: 23
Views: 2889

Any luck with a sleep study?

When I asked my doctor about pain in my thighs during bad bouts of rls she referred me to a neurologist. I've been seeing this doctor for years and talked many times about thigh pain and periodic limb movement for which I was prescribed gabapentin. Now apparently is the time to see a neurologist. I'...
by Stainless
Fri Nov 23, 2018 3:51 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Methylcobalamin b12 drops
Replies: 6
Views: 1279

Re: Methylcobalamin b12 drops

I've been doing this for three months now and I have to agree with badnights there is no effect. Sometimes my legs are terrible and sometimes not so bad. Hard to pin down a benefit when rls is so cyclic. My B12 went from 300 to 1100 pg/mL with normal being 211-946. So methylcobalamin accomplished ge...