Search found 142 matches

by Stainless
Sun Aug 21, 2016 2:27 pm
Forum: Prescription Medications
Topic: Finished with Ropinirole
Replies: 3
Views: 575

Re: Finished with Ropinirole

Thanks for the replies. In no way did I mean opiates are not a acceptable treatment for rls but just getting a controlled substance like clonazepam is bad enough. After 20 years I had to sign a statement that I would not get another doctor to prescribe from a different pharmacy. My wife gave me the ...
by Stainless
Wed Aug 17, 2016 10:59 am
Forum: Prescription Medications
Topic: Finished with Ropinirole
Replies: 3
Views: 575

Finished with Ropinirole

Since I went through a four month nightmare getting off clonazepam, I’ve tried gabapentin, pramipexole, sinemet, , ropinirole, ropinirole ER, kratom, Maryjane, iron, magnesium and red wine, even nothing. Even gave up caffeine. Now I’m going back on clonazepam and see if I can get back to where I was...
by Stainless
Sun Aug 14, 2016 12:56 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Caffeine
Replies: 12
Views: 3239

Re: Caffeine

My wife clandestinely weened me off caffeine in a week after a lifetime of drinking it. I was amazed how smoothly it went since I used to get a headache if I skipped it for one day. It seemed to help a bit with rls but more than that it significantly improved my bowels and I don't miss it much. I st...
by Stainless
Sun Aug 14, 2016 12:44 pm
Forum: Prescription Medications
Topic: Lost
Replies: 27
Views: 2365

Re: Lost

Wow, 8 mg! I have been on ropinirole for the better part of a year and had my ups and downs with it. I started at 1, quickly to 2 and when my doctor said 4 mg. of extended release I thought it would be a train wreck. The extended release greatly decreased the physical pain in my thighs and controlle...
by Stainless
Tue Jul 26, 2016 8:59 pm
Forum: Prescription Medications
Topic: Gabapentin
Replies: 12
Views: 997

Re: Gabapenton

I'm surprised nobody mentioned dehydration. I took gabapentin for a year and dealt with dehydration on a daily basis. Lately I have been taking 300 mg and waking up parched in the middle of the night. I'm giving gabapentin one more chance. Most of these drugs increase my appetite, or is it just my a...
by Stainless
Fri Jul 22, 2016 7:51 pm
Forum: Physical Treatments
Topic: Newly Approved Device - available in US
Replies: 47
Views: 19067

Re: Newly Approved Device - available in US

Walking through a mall with my rls screaming, I sat in a massage chair and the rls stopped. I ended up buying one, enjoyed it for many years, but it worked great but did little for my rls. Like so much more that works for my rls, I think it was the distraction.
by Stainless
Thu Jul 21, 2016 8:16 pm
Forum: Prescription Medications
Topic: Reducing opioid meds - cessation of symptoms?
Replies: 7
Views: 580

Re: Reducing opioid meds - seccation of symptoms?

What was your doctors opinion? "(utilized a clonazepam to assist prior to hearing my Dr's opinion on the matter)

I'm using to about once a week just to survive on ropinirole and thinking of going back to it full time. Rick
by Stainless
Sat Jul 09, 2016 1:56 pm
Forum: Prescription Medications
Topic: Is it possible to "reset" your level of Sinemet?
Replies: 8
Views: 642

Re: Is it possible to "reset" your level of Sinemet?

I don't know why doctors even prescribe Sinemet. I took it for a short while and felt like I was tripping on lsd, no exaggeration, and still had rls. Two days after quitting I surfed some big beautiful waves and it was the most surreal out of body experience I have had in a long time. I kept going b...
by Stainless
Wed Jun 29, 2016 7:04 pm
Forum: Physical Treatments
Topic: New Foot Wrap
Replies: 5
Views: 3337

Re: New Foot Wrap

They have some good illustrations of the muscles at play on Wiki. The photo of the device on the JAOA article is worth a million words. Just leaves which muscles to target.
by Stainless
Tue Jun 28, 2016 2:33 pm
Forum: Physical Treatments
Topic: New Foot Wrap
Replies: 5
Views: 3337

Re: New Foot Wrap

Targeted Pressure on Abductor Hallucis and Flexor Hallucis Brevis Muscles to Manage Moderate to Severe Primary Restless Legs Syndrome to be precise. I just wonder why it took 4 years to publish and with such good results. I did a web search and had no luck finding more about her or the device. The o...
by Stainless
Tue Jun 07, 2016 1:44 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Where is my caffeine?
Replies: 7
Views: 2684

Where is my caffeine?

I have been struggling on 4 mg. ropinirole er for two months and was considering going another direction when I see my doctor this month. I had good days and bad but bad days started as early as noon and lasted the rest of the day. I was not sure if I was augmenting or just struggling. Then I starte...
by Stainless
Sat Jun 04, 2016 10:16 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Are Carbs and sugar rls triggers?
Replies: 17
Views: 5007

Re: Are Carbs and sugar rls triggers?

I've known for over 40 years that ice cream can trigger bad rls in me. Way before I had ever heard of rls. Not always a trigger but enough times that we don't keep it in the house. I always assumed it was the sugar. And I love ice cream!
by Stainless
Mon May 23, 2016 1:18 pm
Forum: Prescription Medications
Topic: GENERIC VS GENERIC
Replies: 12
Views: 613

Re: GENERIC VS GENERIC

Ann, I very well could be augmenting but I have as many good days as bad. Hard to tell if symptoms are earlier or worse when every day is different. The extended release does seem to have some benefit and is probably better than taking such a high dose of the standard medicine.
by Stainless
Mon May 23, 2016 12:59 pm
Forum: Prescription Medications
Topic: Clonazepam for Sleep
Replies: 63
Views: 3263

Re: Clonazepam for Sleep

I read a lot about better deep sleep once you are off clonazepam. I now have insomnia now that I am benzo free that I never had in my life. Everyone is different.
by Stainless
Thu May 19, 2016 2:19 pm
Forum: Prescription Medications
Topic: GENERIC VS GENERIC
Replies: 12
Views: 613

Re: GENERIC VS GENERIC

I just started taking 4 mg. Ropinirole ER and had no idea it was a generic based on cost. I looked at bottle and it says generic and TRI so I assume Trigen and fits your description. My observation is it is a wild ride on one brand with very bad days followed by great days. ER seemed to work better ...

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