Search found 113 matches

by Madmom02
Tue Sep 13, 2016 6:05 pm
Forum: Just Joined?
Topic: Specific doc at Mayo MN + How to Choose and Talk to Your Doctor
Replies: 40
Views: 4423

Re: Specific doc at Mayo MN

RustSmith, Clever woman, your wife. I'm very sorry she's keeping company with the MonSter and RLS and that you're fighting the RLS, too. My husband has PLMD but denies it - we don't share a bed because he says my jiggly legs drive him nuts. Heat - anything above about 68` (sorry, no degree sign on m...
by Madmom02
Tue Sep 13, 2016 4:48 pm
Forum: Prescription Medications
Topic: Withdrawal from .125mg Pramipexole after ST use?
Replies: 16
Views: 1175

Re: Withdrawal from .125mg Pramipexole after ST use?

Thanks, Holland! I was kind of leaning that way since the oxycodone doesn't seem to be helping a all that much (& it's such scary stuff anyway).
by Madmom02
Tue Sep 13, 2016 4:46 pm
Forum: Just Joined?
Topic: Specific doc at Mayo MN + How to Choose and Talk to Your Doctor
Replies: 40
Views: 4423

Re: Specific doc at Mayo MN

Thank you Rustsmith and badnights for your help in pointing me in some good directions! I'm really struggling with all this, as so many of us are. I'm antidepressant-free for the first time since 1991 because of resistance and nortriptyline-induced high blood pressure and I know I need sleep to prev...
by Madmom02
Tue Sep 13, 2016 3:08 pm
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 61
Views: 18297

Re: RLS, Depression and Anti-depressants

I've been on just about every SSRI, many SNRIs, and several atypical antidepressants. Some helped the depression, some didn't. Some worsened the RLS, some didn't. The help may have been placebo but saved my life twice. The most recent may be taking my life. The last antidepressant I was on was nortr...
by Madmom02
Tue Sep 13, 2016 2:16 pm
Forum: Prescription Medications
Topic: Withdrawal from .125mg Pramipexole after ST use?
Replies: 16
Views: 1175

Withdrawal from .125mg Pramipexole after ST use?

I stopped taking Pramipexole 9/10 because it wasn't working anymore. I'd been taking .125 mg since mid-August and it worked brilliantly - until 9/7 when the RLS came creeping (pun intended) back. I've augmented previously on carbidopa levodopa so I thought that I was augmenting on the Pramipexole. A...
by Madmom02
Mon Sep 12, 2016 9:23 pm
Forum: Just Joined?
Topic: Specific doc at Mayo MN + How to Choose and Talk to Your Doctor
Replies: 40
Views: 4423

Re: Specific doc at Mayo MN

I saw the list of drs. but f o rgot about it (thanks MS and sleep deprivation). Thank you for pointing it out! The new edition of the Clinical Mgmt book is $30.00 so it's out of my budget for now but I'd like to recommend it to my neuro (who, btw, has been wrong about a big MS thing, too). I just do...
by Madmom02
Mon Sep 12, 2016 9:09 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Are Carbs and sugar rls triggers?
Replies: 17
Views: 4974

Re: Are Carbs and sugar rls triggers?

I've reduced my consumption of simple carbs in a big way over the last few months in part because I think I see a correlation between them and the RLS. I do know, although I haven't eaten one in probably 10 years, that a McDonald's Quarter Pounder triggered the RLS within 20 minutes of my eating one...
by Madmom02
Mon Sep 12, 2016 7:58 pm
Forum: Just Joined?
Topic: Specific doc at Mayo MN + How to Choose and Talk to Your Doctor
Replies: 40
Views: 4423

Specific doc at Mayo MN + How to Choose and Talk to Your Doctor

Hi! New poster but longtime lurker. Have had RLS since 1987, when I was 26. It has gotten progressively worse until I now have it anytime I'm not moving. It's in my legs, arms, trunk, and back of my neck. It was originally a tugging feeling, then creepy crawlies, and now it feels like little bugs ar...

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