Search found 343 matches

by leggo_my_legs
Tue Oct 25, 2016 1:03 pm
Forum: General Topics: RLS/WED
Topic: Sleep monitor
Replies: 34
Views: 5675

Re: Sleep monitor

I use a free app called Camera Trigger to motion trigger videotape on my samsung S2 tablet. I was using Wardencam but this is better. I find it helpful, validating, (and right now upsetting because I'm not doing well yet). But I like it bc it gives me data for the doctor. For example, I know there's...
by leggo_my_legs
Tue Oct 25, 2016 5:41 am
Forum: Prescription Medications
Topic: Worse on GABA? Or crazy?
Replies: 10
Views: 813

Worse on GABA? Or crazy?

Hi all, it seems 1/2 to 1 hr after taking gabapentin for plmd, I am actually getting restless leg movements while awake ( which I don't usu have), very large jerky movements. Is this possible or do I have "medical student syndrome" and going nutty? Thanks.
by leggo_my_legs
Sun Oct 23, 2016 1:56 am
Forum: Just Joined?
Topic: New here...PLMD...struggling
Replies: 13
Views: 1870

Re: New here...PLMD...struggling

midnight, OMG 3x/min you poor thing! I'm glad it's improved a bit. Wardencam is truly the name of the app. It's awesome but you have to be very careful when you upgrade from free to paid version (one time fee of 5.99, very cheap!) I upgraded wrong and now it won't work. Tried to get help from them a...
by leggo_my_legs
Thu Oct 20, 2016 1:15 am
Forum: Prescription Medications
Topic: Gabapentin side effect question
Replies: 6
Views: 874

Re: Gabapentin side effect question

thanks viewsaskew. No, no easy answers. I'm having that phenomenon where the rls becomes less tolerable when you feel like it's close to ending. Like after you turn in resignation for a job and suddenly can't stand to go another day.
by leggo_my_legs
Wed Oct 19, 2016 7:14 am
Forum: Prescription Medications
Topic: Gabapentin side effect question
Replies: 6
Views: 874

Re: Gabapentin side effect question

I would like to add that I'm scared trying all these new drugs. I live alone and am not the kind of person who has friends who come and stay etc.
by leggo_my_legs
Wed Oct 19, 2016 6:42 am
Forum: Prescription Medications
Topic: Dangers of Tramadol
Replies: 6
Views: 1026

Re: Dangers of Tramadol

That sounds awful! I'm so sorry that happened to youi!

For me, tramadol gave me really bad heart palpitations. I can take 1 a week that's about it.
by leggo_my_legs
Wed Oct 19, 2016 6:36 am
Forum: Prescription Medications
Topic: Pharma Sticky
Replies: 37
Views: 36249

Re: Pharma Sticky

I have to add to the phenergan nightmare. OMG. Was given that once for food poisoning and I was moving everything! Trunk movements bolting up in bed every few secs. It was horrendous. They called the MD in who said cooly, 'I think you're having a reaction to the medication." I was so far gone I...
by leggo_my_legs
Wed Oct 19, 2016 6:29 am
Forum: Prescription Medications
Topic: Gabapentin side effect question
Replies: 6
Views: 874

Gabapentin side effect question

My MD is aware but wanted me to try gaba for a few more days...so tonight is the first night of that re-trial. I'm wondering of those who have been on it, did it make you dizzy? The sensation of dizziness is like my brain rolling around in my head. Like if I lean forward, there's a part of my brain ...
by leggo_my_legs
Tue Oct 18, 2016 11:37 pm
Forum: Just Joined?
Topic: Avoiding sleep
Replies: 3
Views: 1139

Re: Avoiding sleep

Yeah. I gave in and took the norco. My back rx is running low. I will switch to starting the gaba tonight!
by leggo_my_legs
Tue Oct 18, 2016 6:15 am
Forum: Just Joined?
Topic: Avoiding sleep
Replies: 3
Views: 1139

Avoiding sleep

Just a late night vent...I am so exhausted. And it seems I have been having such trouble putting myself to bed anyway. I dread the feeling of waking up exhausted and in pain. That is such a bad feeling to wake up to. I never know how I'll feel when I wake up and sometimes I feel like I can't take an...
by leggo_my_legs
Tue Oct 18, 2016 5:06 am
Forum: Just Joined?
Topic: New here...PLMD...struggling
Replies: 13
Views: 1870

Re: New here...PLMD...struggling

Rust, badnights, yankiwi... Thank you so much. This is a wonderful site! I listened to the hour long expert talk on opioids which was convincing and reassuring. I have a bunch of things to try first. Yes I am absolutely indebted to sleepdancer for the video idea and now the TENS idea! I was only on ...
by leggo_my_legs
Sun Oct 16, 2016 6:24 pm
Forum: Just Joined?
Topic: New here...PLMD...struggling
Replies: 13
Views: 1870

Re: New here...PLMD...struggling

viewsaskew, deb, Thank you for your kind replies. Yes, my sleep doc is pretty good. Last night on the pramiprex was worse than the gaba. I was moving at the foot, knee, and hips, as well as groaning and throwing off the covers. Today I'm so tired I can't even functon. I am so glad I have the video f...
by leggo_my_legs
Sun Oct 16, 2016 1:21 am
Forum: Just Joined?
Topic: New here...PLMD...struggling
Replies: 13
Views: 1870

New here...PLMD...struggling

Hi, I am 44 and have been suffering for years. Only just now diagnosed with PLMD when I decided to do the in lab sleep study. I was diagnosed with sleep apnea in 2005 and didn't do the in lab test, only the home test. Here we are in 2016, I am having chronic pain, totally exhausted all the time, wak...

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