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by leggo_my_legs
Mon Jan 29, 2018 7:20 am
Forum: General Topics: RLS/WED
Topic: Mental RLS triggers
Replies: 10
Views: 1530

Re: Mental RLS triggers

Yankiwi wrote:When I don't have symptoms my brain just lies in wait thinking it could be any minute now.


Reminds me of PTSD, or at least anticipatory anxiety! :(
by leggo_my_legs
Sat Jan 27, 2018 3:22 am
Forum: General Topics: RLS/WED
Topic: Mental RLS triggers
Replies: 10
Views: 1530

Re: Mental RLS triggers

Laughing triggers it for me. Mildly, but consistently. Also, thinking about it can trigger it (trying to describe it, for instance). Just focusing my attention on my ankles or wrists will trigger it (when it starts up, those places are where it spreads out from). Wow. RLS is definitely a neurologic...
by leggo_my_legs
Sat Jan 27, 2018 3:17 am
Forum: General Topics: RLS/WED
Topic: Mental RLS triggers
Replies: 10
Views: 1530

Re: Mental RLS triggers

Oh wow that seems especially cruel! ie the minute you appreciate your relief it reappears. Ugh.
by leggo_my_legs
Sat Jan 27, 2018 3:12 am
Forum: General Topics: RLS/WED
Topic: Progress with my local doctor?
Replies: 36
Views: 4483

Re: Progress with my local doctor?

The other thing I am so disturbed by is how many people I know who buy all that crap and don't have critical thinking skills.
by leggo_my_legs
Sat Jan 27, 2018 3:11 am
Forum: General Topics: RLS/WED
Topic: Progress with my local doctor?
Replies: 36
Views: 4483

Re: Progress with my local doctor?

Amazing, Steve!!! I hope you can get a cc of the clip and post a link? We need an opioid march! :lol: Or a pain control march, in any case. Yes to your comments re cigarettes and alcohol. I think I remember reading that there are more suicides annually than opioid ODs. Where's the "suicide cris...
by leggo_my_legs
Sat Jan 27, 2018 3:03 am
Forum: Everything Else...just no RLS/WED!
Topic: Happy New Year! & checking in
Replies: 13
Views: 1774

Re: Happy New Year! & checking in

ViewsAskew wrote:Hard to take a deep breath and let what happens happen at times like this, isn't it?


So well said. It really is.

Feel that I'm waiting for either success or professional embarrassment.
by leggo_my_legs
Sat Jan 27, 2018 2:58 am
Forum: Prescription Medications
Topic: New med
Replies: 5
Views: 842

Re: New med

Thanks. I was also thinking about taking the trazodone first then the opioid. Trazodone puts me to sleep so right before maybe take the other pill before it gets into my bloodstream and alerts me. Opioid is so short lasting if I took it earlier feels like benefits wouldn't cover all night. What a me...
by leggo_my_legs
Sat Jan 27, 2018 1:22 am
Forum: General Topics: RLS/WED
Topic: Another dumb pharmacy trip
Replies: 25
Views: 2314

Re: Another dumb pharmacy trip

ViewsAskew wrote:
leggo_my_legs wrote:...but to assume my doctor is an idiot makes me crazy!

Oh the dark humor of the situation would likely have made me laugh out loud!


Yeah especially since he's a great doctor.

That's why I was cracking a grin...the dark humor! I am going to have to give costco a cc of Dr B's new opioid article.
by leggo_my_legs
Thu Jan 25, 2018 7:51 am
Forum: General Topics: RLS/WED
Topic: Hoping for a better night
Replies: 13
Views: 1040

Re: Hoping for a better night

Hope it gets better.

I don't notice substance triggers for my RLS/PMLS, but I'd be surprised if I didn't have them.

I have been noticing that caffeine tends to worsen or trigger my jaw, back, and hip pain. Maybe due to dehydration or inflammation. It's not good.
by leggo_my_legs
Thu Jan 25, 2018 4:38 am
Forum: General Topics: RLS/WED
Topic: Mental RLS triggers
Replies: 10
Views: 1530

Mental RLS triggers

So. I just learned that my RLS doesn't like reading about Alzheimer's Disease. Nor does it like reading about Narcicisstic Parents :lol: (a little too close to home I guess). It doesn't like boredom. It doesn't like anxiety. It doesn't like long flights or concerts... I think there was a post about ...
by leggo_my_legs
Thu Jan 25, 2018 4:32 am
Forum: Everything Else...just no RLS/WED!
Topic: Happy New Year! & checking in
Replies: 13
Views: 1774

Re: Happy New Year! & checking in

Thanks all. Yes it is. Still a bit concerned as there are a few more hoops to jump through before I am allowed to start. There is a 2 part acceptance process. 1) They want to hire you (check!) 2) Your background is fully vetted and you are given the handshake. I am on step 2 maybe for another month ...
by leggo_my_legs
Thu Jan 25, 2018 4:21 am
Forum: General Topics: RLS/WED
Topic: Another dumb pharmacy trip
Replies: 25
Views: 2314

Re: Another dumb pharmacy trip

I have an update that falls under the "dumb pharmacy trip" category. I am now trying dilaudid instead of oxycodone... I still have oxycodone left on the rx but MD wanted to switch me. I think my costco only has one pharmacist! And it's always the same guy. I almost started cracking up when...
by leggo_my_legs
Thu Jan 25, 2018 4:09 am
Forum: General Topics: RLS/WED
Topic: Progress with my local doctor?
Replies: 36
Views: 4483

Re: Progress with my local doctor?

One of the most horrible things about doctors is that they have the power of documentation. They can make you sound like a real jerk in the medical record. I am sorry you (like so many of us!) are going through this. Can't recall if I posted it on here, but my new pcp at my first visit said "Pa...
by leggo_my_legs
Thu Jan 25, 2018 4:02 am
Forum: General Topics: RLS/WED
Topic: Progress with my local doctor?
Replies: 36
Views: 4483

Re: Progress with my local doctor?

I asked who I could speak with to "appeal" the policy decision that prohibits their doctors from prescribing an opioid for a chronic condition. I also explained that their failure to provide medical treatment for my condition was exposing me to an increased risk of a automobile accident, ...
by leggo_my_legs
Mon Jan 22, 2018 7:06 pm
Forum: Prescription Medications
Topic: New med
Replies: 5
Views: 842

Re: New med

Thanks guys. I emailed the doc. He said give it some more time if I can. I appreciate the 2 week guideline, I will try that. I already take trazodone but the opioid makes it not work for sleep. I do eventually fall asleep with the opioid but it takes so long and sometimes I think it has worn off by ...

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