Search found 108 matches

by Oozz
Mon Jul 13, 2020 2:58 am
Forum: Prescription Medications
Topic: Pentazocine (Talwin)
Replies: 1
Views: 52

Pentazocine (Talwin)

Has anyone used this medication? If so, what was your experience? It’s not widely discussed on the board. I developed stomach issues from methadone so this was recently prescribed to me because it’s a kappa opioid receptor and does not impact the GI system the same way. I’m finding that it is very h...
by Oozz
Wed Jul 08, 2020 7:57 pm
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 25
Views: 646

Re: Location of RLS Symptoms Changing

Well, I had to come off Mirapex because it was becoming inconsistent and symptoms were bleeding through. Now that I’m washing out, it’s clear to see that my symptoms have gotten worse as a result of the medication. I was only on it for 3 months so I’m hoping it goes back to normal.
by Oozz
Tue Jun 23, 2020 11:30 pm
Forum: General Topics: RLS
Topic: Inconsistent Sleep Quality
Replies: 9
Views: 279

Inconsistent Sleep Quality

It seems like my sleep quality is always inconsistent. The medications are handling my urge to move pretty well; however, no matter how consistent my life is (stress, diet, exercise), it seems like every night I’m rolling the dice on how restful the sleep will be. Does anyone else have this problem?...
by Oozz
Sat Jun 20, 2020 3:53 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Is it worth scrapping ever tiny bit of caffiene?
Replies: 14
Views: 717

Re: Is it worth scrapping ever tiny bit of caffiene?

I do believe chronic caffeine consumption causes issues. It’s something I need to move away from. However, I’ve read that the tanin’s in tea inhibit iron absorption. I skimmed these articles just for reference so don’t shoot me if there are some holes; however, the research is out there. https://www...
by Oozz
Tue Jun 16, 2020 12:48 am
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 25
Views: 646

Re: Location of RLS Symptoms Changing

Several of us augmented and it never returned to baseline. The docs usually try to say it is progression...but I think some of us are a bit skeptical. My baseline was very severe PLMS and very minor RLS. After augmentation, it was 24/7 RLS and severe PLMS. After treatment for augmentation, it was a...
by Oozz
Mon Jun 15, 2020 2:26 am
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 25
Views: 646

Re: Location of RLS Symptoms Changing

Rustsmith wrote:
Sun Jun 14, 2020 11:29 pm
Since that time, I have been through augmentation from two DAs and my RLS has progressed to the point where it is now rated as very severe.
Are you saying you augmented and it never returned to baseline? Or, are you stating two separate experiences?
by Oozz
Sun Jun 14, 2020 10:17 pm
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 25
Views: 646

Re: Location of RLS Symptoms Changing

My RLS started in my legs, 90% in my right leg. 35 years sgo. Then travelled to my arms. Moving to my arms was nothing to do with augmentation as it was way before I started taking medication. Both legs at the start. Arms after starting with Gabapentin. Whole body when I was augmenting. Did gabapen...
by Oozz
Sat Jun 13, 2020 4:57 pm
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 25
Views: 646

Re: Location of RLS Symptoms Changing

Legs for years; Later, also but only rarely in arms. Then medication and augmentation, and legs and arms bad. Since I've been off dopaminergic meds, I rarely have it outright in my arms, but it's always there ... hovering, sort of; I feel the wrongness. I have no boundaries to the upper side of my ...
by Oozz
Thu Jun 04, 2020 12:33 pm
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 25
Views: 646

Location of RLS Symptoms Changing

My RLS seems to change places. It started off in my legs 3 years go. About 1.5 years ago it moved to the right wing of my scapula. Now it seems to be on the left wing of my scapula.

Wondering if anyone else has experienced changed in their RLS symptoms.
by Oozz
Wed Jun 03, 2020 8:55 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Treating Central Nervous System Inflammation
Replies: 20
Views: 820

Re: Treating Central Nervous System Inflammation

I would do 1x1. It seems to me you are very excited about what you are reading and are eager to resolve this. Everyone on this board has felt the same way and I empathize with you. My recommendation would be to only change one variable at a time. It I a very slow process, but it’s the only way to kn...
by Oozz
Sat May 16, 2020 2:12 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Ethnic breakdown?
Replies: 27
Views: 18389

Re: Ethnic breakdown?

Oozz - what did they say about hemoglobin levels? My hemoglobin has always been fine to abundant (until recently). My ferritin was single digits at one point, though. They showed a graph in the most recent iron webinar showing that IV iron worked better with patients who had higher hemoglobin level...
by Oozz
Thu May 14, 2020 1:08 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Ethnic breakdown?
Replies: 27
Views: 18389

Re: Ethnic breakdown?

I’m reviving this on the basis that, in one of the most recent webinars, they said IV iron efficacy was directly related to hemoglobin levels. It was so strong it was predictive of how the patient would react to the therapy. This ties in nicely the thalassemia theory discussed here. I don’t think th...
by Oozz
Thu May 14, 2020 12:59 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Oral Iron instead of meds?
Replies: 6
Views: 267

Re: Oral Iron instead of meds?

In one of the more recent webinars, they stated that the efficacy of IV iron is directly related to hemoglobin levels. They theorized it has something to do with limited capacity for delivering both oxygen and high levels iron to the brain.
by Oozz
Wed Apr 22, 2020 8:48 pm
Forum: General Topics: RLS
Topic: Hepcidin Testing
Replies: 2
Views: 207

Re: Hepcidin Testing

Searching through the forums I found a study done on the very subject of Hepcidin. Seems like they found low Hepcidin in CSF, and higher Hepcidin in the brain. This could suggest that the Hepcidin in the brain could potentially be reducing iron uptake in the brain.