Search found 77 matches

by Oozz
Sun May 26, 2019 3:34 pm
Forum: General Topics: RLS/WED
Topic: The Battle
Replies: 19
Views: 312

The Battle

WED has been very tough for me. It’s been about 3 years since I was officially diagnosed. It’s mainly at night, on one region of my back. It’s not intense, but enough to keep me up at night. If others don’t mind I’d like to use this as a space to unload some of my thoughts. I’m working through a lot...
by Oozz
Mon Apr 29, 2019 2:31 pm
Forum: General Topics: RLS/WED
Topic: sleep deprivation
Replies: 16
Views: 386

Re: sleep deprivation

The sleep pathways are mostly mediated via the glutamatergic pathways, which the dopamine agonists don't have much effect on. Gabapentin, Lyrica, and Horizant help those. Also sleep seems to get better with THC, kratom, and dipyridamole. Dipyridamole is an adenosine booster and improves both the do...
by Oozz
Mon Apr 29, 2019 2:23 pm
Forum: Prescription Medications
Topic: Opiate (Methadone) & Sleep Quality
Replies: 17
Views: 443

Re: Opiate (Methadone) & Sleep Quality

An update on this. My sleep quality has rebound. It took about 2.5 weeks, but it seems like I’m acclimated to the drug. I take 5mg around 5PM.
by Oozz
Fri Apr 19, 2019 11:01 pm
Forum: Prescription Medications
Topic: Opiate (Methadone) & Sleep Quality
Replies: 17
Views: 443

Re: Opiate (Methadone) & Sleep Quality

Yes, take it early. Several of us here experience a form of opioid induced insomnia that we generally refer to as "alerting". Because methadone has a long half life and only needs to be taken once a day, when I experienced this I changed the time that I would take it from bedtime to lunch...
by Oozz
Wed Apr 17, 2019 1:38 pm
Forum: Prescription Medications
Topic: Opiate (Methadone) & Sleep Quality
Replies: 17
Views: 443

Opiate (Methadone) & Sleep Quality

Hello - Recently started taking 2.5mg of methadone every night. It seems to be very effective for my RLS; however, my sleep quality is not very good. Has anyone else experience this? There is some literature saying that opiates (methadone specifically) reduces deep sleep. Contrastingly, I’ve seen so...
by Oozz
Fri Mar 29, 2019 12:48 pm
Forum: Prescription Medications
Topic: Opiate Flu Like Symptoms
Replies: 3
Views: 84

Opiate Flu Like Symptoms

Hello All, I was prescribed methadone 2-3 months ago. Initially, I was reluctant to take it since my lyrica and mirapex combo ha| been working well, but I started to notice my sleep quality was declining. After 2-3 days of taking 2.5mg at night, I got extremely bad flu like symptoms. Severe headache...
by Oozz
Thu Jan 24, 2019 10:59 pm
Forum: Physical Treatments
Topic: Using Trail Camera to observe RLS
Replies: 8
Views: 430

Re: Using Trail Camera to observe RLS

Depends on which Fitbit you are using. The Fitbit charge seems to do the best for the Fitbit brand; however, Oura products are seem to be much more accurate. Just read the reviews, it’s hands-down the best for sleep tracking. I’ve been tracking my sleep meticulously for almost 7 mos. now. These devi...
by Oozz
Mon Jan 14, 2019 3:00 am
Forum: Physical Treatments
Topic: Using Trail Camera to observe RLS
Replies: 8
Views: 430

Re: Using Trail Camera to observe RLS

I’m currently using the Oura Ring to track my sleep. It’s incredible, tracking all stages of sleep very accurately. You can learn about it at https://ouraring.com.
by Oozz
Thu Oct 18, 2018 2:35 am
Forum: Prescription Medications
Topic: My pharma diary
Replies: 147
Views: 21365

Re: My pharma diary

I’m sorry to hear that you are having a hard time right, please know that I am rooting that you will get through this. I envision you writing a book about your life to give inspiration to others going through these tough times. Being stuck in the house sleepless and unmotivated is the worst, hopeful...
by Oozz
Wed Oct 03, 2018 3:22 pm
Forum: General Topics: RLS/WED
Topic: RLS Patient Symposium
Replies: 20
Views: 851

Re: RLS Patient Symposium

Thank you for posting this.
by Oozz
Tue Oct 02, 2018 5:41 pm
Forum: General Topics: RLS/WED
Topic: RLS Foundation hosting a Patient Symposium
Replies: 32
Views: 2124

Re: RLS Foundation hosting a Patient Symposium

Thanks. I look forward to hearing what they have to say.
by Oozz
Mon Oct 01, 2018 11:36 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Nicotine Mints - Personal Success
Replies: 7
Views: 3019

Re: Nicotine Mints - Personal Success

This is weird ... always when I have traveled home over christmas or some round birthday I kinda relapse and start smoking again. For some weird reasons ... these are always the days of the year where I have no trouble sleeping at all. So this might be worth investigating. I will order one of those...
by Oozz
Mon Oct 01, 2018 11:32 pm
Forum: General Topics: RLS/WED
Topic: RLS Foundation hosting a Patient Symposium
Replies: 32
Views: 2124

Re: RLS Foundation hosting a Patient Symposium

So, who is gonna debrief us on all the cool stuff that was discussed at the symposium? :D
by Oozz
Thu Sep 06, 2018 5:29 pm
Forum: General Topics: RLS/WED
Topic: RLS Foundation hosting a Patient Symposium
Replies: 32
Views: 2124

Re: RLS Foundation hosting a Patient Symposium

Is this the first symposium? I’m wondering what will be covered that isn’t readily available online...
by Oozz
Thu Sep 06, 2018 5:20 pm
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 470
Views: 112408

Re: Published Research - General Sleep and RLS (WED)

Interesting. I don’t get RLS/wed in my legs tho, only my upper left arm. I’m wondering if its the same mechanism.

Edit - seems like they addres this.

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