Search found 78 matches
- Mon May 27, 2019 12:34 pm
- Forum: General Topics: RLS/WED
- Topic: The Battle
- Replies: 19
- Views: 639
Re: The Battle
It’s not the insomnia is the issue for me, it’s the lack of deep sleep caused by methadone. This study http://jcsm.aasm.org/articles/030106.pdf documents the effects of methadone on sleep architecture. In sum, opioids reduce slow wave sleep significantly. The caveat is that the study is short-term, ...
- Sun May 26, 2019 3:34 pm
- Forum: General Topics: RLS/WED
- Topic: The Battle
- Replies: 19
- Views: 639
The Battle
WED has been very tough for me. It’s been about 3 years since I was officially diagnosed. It’s mainly at night, on one region of my back. It’s not intense, but enough to keep me up at night. If others don’t mind I’d like to use this as a space to unload some of my thoughts. I’m working through a lot...
- Mon Apr 29, 2019 2:31 pm
- Forum: General Topics: RLS/WED
- Topic: sleep deprivation
- Replies: 16
- Views: 633
Re: sleep deprivation
The sleep pathways are mostly mediated via the glutamatergic pathways, which the dopamine agonists don't have much effect on. Gabapentin, Lyrica, and Horizant help those. Also sleep seems to get better with THC, kratom, and dipyridamole. Dipyridamole is an adenosine booster and improves both the do...
- Mon Apr 29, 2019 2:23 pm
- Forum: Prescription Medications
- Topic: Opiate (Methadone) & Sleep Quality
- Replies: 20
- Views: 759
Re: Opiate (Methadone) & Sleep Quality
An update on this. My sleep quality has rebound. It took about 2.5 weeks, but it seems like I’m acclimated to the drug. I take 5mg around 5PM.
- Fri Apr 19, 2019 11:01 pm
- Forum: Prescription Medications
- Topic: Opiate (Methadone) & Sleep Quality
- Replies: 20
- Views: 759
Re: Opiate (Methadone) & Sleep Quality
Yes, take it early. Several of us here experience a form of opioid induced insomnia that we generally refer to as "alerting". Because methadone has a long half life and only needs to be taken once a day, when I experienced this I changed the time that I would take it from bedtime to lunch...
- Wed Apr 17, 2019 1:38 pm
- Forum: Prescription Medications
- Topic: Opiate (Methadone) & Sleep Quality
- Replies: 20
- Views: 759
Opiate (Methadone) & Sleep Quality
Hello - Recently started taking 2.5mg of methadone every night. It seems to be very effective for my RLS; however, my sleep quality is not very good. Has anyone else experience this? There is some literature saying that opiates (methadone specifically) reduces deep sleep. Contrastingly, I’ve seen so...
- Fri Mar 29, 2019 12:48 pm
- Forum: Prescription Medications
- Topic: Opiate Flu Like Symptoms
- Replies: 3
- Views: 104
Opiate Flu Like Symptoms
Hello All, I was prescribed methadone 2-3 months ago. Initially, I was reluctant to take it since my lyrica and mirapex combo ha| been working well, but I started to notice my sleep quality was declining. After 2-3 days of taking 2.5mg at night, I got extremely bad flu like symptoms. Severe headache...
- Thu Jan 24, 2019 10:59 pm
- Forum: Physical Treatments
- Topic: Using Trail Camera to observe RLS
- Replies: 8
- Views: 557
Re: Using Trail Camera to observe RLS
Depends on which Fitbit you are using. The Fitbit charge seems to do the best for the Fitbit brand; however, Oura products are seem to be much more accurate. Just read the reviews, it’s hands-down the best for sleep tracking. I’ve been tracking my sleep meticulously for almost 7 mos. now. These devi...
- Mon Jan 14, 2019 3:00 am
- Forum: Physical Treatments
- Topic: Using Trail Camera to observe RLS
- Replies: 8
- Views: 557
Re: Using Trail Camera to observe RLS
I’m currently using the Oura Ring to track my sleep. It’s incredible, tracking all stages of sleep very accurately. You can learn about it at https://ouraring.com.
- Thu Oct 18, 2018 2:35 am
- Forum: Prescription Medications
- Topic: My pharma diary
- Replies: 147
- Views: 21767
Re: My pharma diary
I’m sorry to hear that you are having a hard time right, please know that I am rooting that you will get through this. I envision you writing a book about your life to give inspiration to others going through these tough times. Being stuck in the house sleepless and unmotivated is the worst, hopeful...
- Wed Oct 03, 2018 3:22 pm
- Forum: General Topics: RLS/WED
- Topic: RLS Patient Symposium
- Replies: 20
- Views: 924
Re: RLS Patient Symposium
Thank you for posting this.
- Tue Oct 02, 2018 5:41 pm
- Forum: General Topics: RLS/WED
- Topic: RLS Foundation hosting a Patient Symposium
- Replies: 32
- Views: 2247
Re: RLS Foundation hosting a Patient Symposium
Thanks. I look forward to hearing what they have to say.
- Mon Oct 01, 2018 11:36 pm
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: Nicotine Mints - Personal Success
- Replies: 7
- Views: 3168
Re: Nicotine Mints - Personal Success
This is weird ... always when I have traveled home over christmas or some round birthday I kinda relapse and start smoking again. For some weird reasons ... these are always the days of the year where I have no trouble sleeping at all. So this might be worth investigating. I will order one of those...
- Mon Oct 01, 2018 11:32 pm
- Forum: General Topics: RLS/WED
- Topic: RLS Foundation hosting a Patient Symposium
- Replies: 32
- Views: 2247
Re: RLS Foundation hosting a Patient Symposium
So, who is gonna debrief us on all the cool stuff that was discussed at the symposium? 

- Thu Sep 06, 2018 5:29 pm
- Forum: General Topics: RLS/WED
- Topic: RLS Foundation hosting a Patient Symposium
- Replies: 32
- Views: 2247
Re: RLS Foundation hosting a Patient Symposium
Is this the first symposium? I’m wondering what will be covered that isn’t readily available online...