Restless Legs Syndrome (RLS) Discussion Board

WED has been very tough for me. It’s been about 3 years since I was officially diagnosed. It’s mainly at night, on one region of my back. It’s not intense, but enough to keep me up at night. If others don’t mind I’d like to use this as a space to unload some of my thoughts. I’m working through a lot...

The sleep pathways are mostly mediated via the glutamatergic pathways, which the dopamine agonists don't have much effect on. Gabapentin, Lyrica, and Horizant help those. Also sleep seems to get better with THC, kratom, and dipyridamole. Dipyridamole is an adenosine booster and improves both the do...

An update on this. My sleep quality has rebound. It took about 2.5 weeks, but it seems like I’m acclimated to the drug. I take 5mg around 5PM.

Yes, take it early. Several of us here experience a form of opioid induced insomnia that we generally refer to as "alerting". Because methadone has a long half life and only needs to be taken once a day, when I experienced this I changed the time that I would take it from bedtime to lunch...

Hello - Recently started taking 2.5mg of methadone every night. It seems to be very effective for my RLS; however, my sleep quality is not very good. Has anyone else experience this? There is some literature saying that opiates (methadone specifically) reduces deep sleep. Contrastingly, I’ve seen so...

Hello All, I was prescribed methadone 2-3 months ago. Initially, I was reluctant to take it since my lyrica and mirapex combo ha| been working well, but I started to notice my sleep quality was declining. After 2-3 days of taking 2.5mg at night, I got extremely bad flu like symptoms. Severe headache...

Depends on which Fitbit you are using. The Fitbit charge seems to do the best for the Fitbit brand; however, Oura products are seem to be much more accurate. Just read the reviews, it’s hands-down the best for sleep tracking. I’ve been tracking my sleep meticulously for almost 7 mos. now. These devi...

I’m currently using the Oura Ring to track my sleep. It’s incredible, tracking all stages of sleep very accurately. You can learn about it at https://ouraring.com.

I’m sorry to hear that you are having a hard time right, please know that I am rooting that you will get through this. I envision you writing a book about your life to give inspiration to others going through these tough times. Being stuck in the house sleepless and unmotivated is the worst, hopeful...

Thank you for posting this.

Thanks. I look forward to hearing what they have to say.

This is weird ... always when I have traveled home over christmas or some round birthday I kinda relapse and start smoking again. For some weird reasons ... these are always the days of the year where I have no trouble sleeping at all. So this might be worth investigating. I will order one of those...

So, who is gonna debrief us on all the cool stuff that was discussed at the symposium?

Is this the first symposium? I’m wondering what will be covered that isn’t readily available online...

Interesting. I don’t get RLS/wed in my legs tho, only my upper left arm. I’m wondering if its the same mechanism.

Edit - seems like they addres this.