Search found 217 matches

by Oozz
Sat Aug 28, 2021 8:47 pm
Forum: Physical Treatments
Topic: Spinal Stimulator
Replies: 98
Views: 68823

Re: Spinal Stimulator

I am now having more good nights than bad nights. I'm having 5 and 6 nights in a row of good sleep. I feel that we finally have it set correctly. Since July 28th, only about 4 nights that weren't so good. The best has been the last two weeks. How is the quality of sleep? Very refreshing? Or, medioc...
by Oozz
Sat Jul 17, 2021 10:31 pm
Forum: General Topics: RLS
Topic: Published Research - General Sleep and RLS (WED)
Replies: 534
Views: 391417

Re: Published Research - General Sleep and RLS (WED)

https://scholar.google.com/scholar?as_ylo=2021&q=restless+legs+syndrome&hl=en&as_sdt=0,47#d=gs_qabs&u=%23p%3Da4P3lxn9K-cJ Conclusions Dipyridamole has significant therapeutic effects on both sensory and motor symptoms of restless legs syndrome and on sleep. Our findings confirm the efficacy of dipyr...
by Oozz
Wed Jul 14, 2021 3:49 pm
Forum: Prescription Medications
Topic: ecopipam
Replies: 2
Views: 1947

ecopipam

Dr. Ondo had performed a study on this drug to determine if it can help with augmentation. The abstract doesn’t say much, but I was wondering if anyone has any additional insight into this medication and/or it’s use for RLS. https://pubmed.ncbi.nlm.nih.gov/33066723/ https://www.mdsabstracts.org/abst...
by Oozz
Mon Jul 12, 2021 5:38 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief (Low-oxalate diet)
Replies: 130
Views: 7280490

Re: Another year of relief (Low-oxalate diet)

I don’t understand the connection between oxalates and RLS. These papers says oxalic acid does not influence iron

https://pubmed.ncbi.nlm.nih.gov/17440529/
https://www.hindawi.com/journals/jnme/2020/7373498/
https://pubmed.ncbi.nlm.nih.gov/2821800/
by Oozz
Fri Jul 02, 2021 8:50 pm
Forum: General Topics: RLS
Topic: Published Research - General Sleep and RLS (WED)
Replies: 534
Views: 391417

Re: Published Research - General Sleep and RLS (WED)

I’m wondering if it is a TENS or NMES, the electrical current I believe is different as is the rhythm. A proprietary rhythm of the stimulations could make this uniquely effective for RLS. Also they are focusing on a nerve near the calf. I’m very interested to see what the actual protocol is.
by Oozz
Wed Jun 30, 2021 6:51 pm
Forum: General Topics: RLS
Topic: Published Research - General Sleep and RLS (WED)
Replies: 534
Views: 391417

Re: Published Research - General Sleep and RLS (WED)

https://jcsm.aasm.org/doi/10.5664/jcsm.9404

These results suggest that NPNS could be a promising alternative to pharmacological therapies for RLS and could provide a solution for medication-resistant RLS patients and for medication-naïve RLS patients who are unwilling or unable to take medication.
by Oozz
Sat Jun 19, 2021 4:28 pm
Forum: General Topics: RLS
Topic: Short-Term Disability Question
Replies: 2
Views: 3353

Short-Term Disability Question

Has anyone gone on short-term disability due to RLS? I’m wondering how to go about this and would like some help on who to turn to. I don’t have a primary care physician at the moment. I have had a patella tendon injury for several years. It has not healed due to the lack of sleep from RLS. The knee...
by Oozz
Thu Jun 17, 2021 12:37 am
Forum: General Topics: RLS
Topic: Published Research - General Sleep and RLS (WED)
Replies: 534
Views: 391417

Re: Published Research - General Sleep and RLS (WED)

https://scholar.google.com/scholar?as_y ... pzQg-S5dkJ

Developing a biomarker for restless leg syndrome using genome wide DNA methylation data

I don’t have access to the full paper. Would love ❤️ t anyone could give their opinion.
by Oozz
Thu Jun 10, 2021 3:09 am
Forum: Physical Treatments
Topic: Massager
Replies: 21
Views: 21276

Re: Massager

It was not able to control symptoms over the long-term. I provided temporary relief, but it isn’t sufficient enough to fall back asleep for very long. 20-30 minutes max If I have breakthrough symptoms, I can use it for short-term relief until the additional medication is needed. This rarely happens.
by Oozz
Mon May 31, 2021 5:34 pm
Forum: Physical Treatments
Topic: Massager
Replies: 21
Views: 21276

Re: Massager

Like all things, this turned out to be a dud in the long run. It’s something I use in my toolkit to help manage break through symptoms.
by Oozz
Sat Apr 10, 2021 12:36 am
Forum: General Topics: RLS
Topic: How many hours do you sleep?
Replies: 19
Views: 12074

Re: How many hours do you sleep?

What is it that wakes you up? The RLS or just random awakenings? That is what I am hoping that the latest sleep study will reveal. It isn't simple RLS and I didn't have any PLMS during the study that showed 45% sleep efficiency. I had some mild RLS urges once during the night during this recent stu...
by Oozz
Sat Apr 10, 2021 12:12 am
Forum: General Topics: RLS
Topic: How many hours do you sleep?
Replies: 19
Views: 12074

Re: How many hours do you sleep?

Sleep is more complex than most people think. There are several stages, and only the deeper stages give refreshing sleep. So a person can sleep 8 hours and still not be refreshed. It is not easy to determine how long each stage of sleep lasts for a particular individual. I spent a year monitoring m...
by Oozz
Sat Apr 10, 2021 12:05 am
Forum: General Topics: RLS
Topic: How many hours do you sleep?
Replies: 19
Views: 12074

Re: How many hours do you sleep?

4 hours average the last two weeks... i did get extra sleep using more twice the prescribed amount of gabapentin... from 1200 mg to 2400 mg. i am wondering if the RLS is outgrowing the good affects of Gabapentin. i have really strong affects from RLS. shooting nerve twitches that literally take me ...
by Oozz
Fri Apr 02, 2021 7:58 pm
Forum: General Topics: RLS
Topic: How many hours do you sleep?
Replies: 19
Views: 12074

Re: How many hours do you sleep?

Yankiwi wrote:
Fri Apr 02, 2021 8:01 am
I get between five and seven, usually in three or four segments over nine or ten hours from going to bed to getting up.
When I'm lucky I'm only awake a third of the night. On a bad night it can be half.

What is it that wakes you up? The RLS or just random awakenings?
by Oozz
Fri Apr 02, 2021 7:58 pm
Forum: General Topics: RLS
Topic: How many hours do you sleep?
Replies: 19
Views: 12074

Re: How many hours do you sleep?

Between "sleep" at night and naps during the day, I spend between 10.5 and 11 hrs/day in bed. But my sleep study last year found that it takes me about an hour to actually fall asleep and then for the rest of the night I am only asleep about 45% of the time. So for 10 hrs in bed at night, I am only...