Search found 235 matches

by sugbrendas
Tue Apr 03, 2007 11:49 pm
Forum: General Topics: RLS
Topic: How much medication is necessary??
Replies: 1
Views: 634

hi jimmie and welcome and sorry you have a need to come here. we're not Dr's but people in the same boat. In my opinion your on alot of meds to be just starting out. thats what happened to me. Litterally nothing would put me to sleep after trying almost every med known to man. this was over 30 years...
by sugbrendas
Mon Apr 02, 2007 10:02 pm
Forum: General Topics: RLS
Topic: RLS LIFE: Drugs, Side Effects & Everything Else
Replies: 650
Views: 213579

thank you my friends, awhile ago they did away with the major decongetive ingredient in Niquil, it's one of the best things for part my nightly cocktail. now my mouth isn't real dry in the morning. but i've never had problems with Niquil. Now i do think the Benadryl and the Theraflu nighttime or Tyl...
by sugbrendas
Mon Apr 02, 2007 6:20 pm
Forum: General Topics: RLS
Topic: RLS LIFE: Drugs, Side Effects & Everything Else
Replies: 650
Views: 213579

Hi everyone, i've read some of your posts. It hurts my heart to see some of you still suffering. re; Klonopin I take all of mine(2-3 mg's) at bedtime with no day time sleepyness. Weird situation going on right now and i'm not complaining just venting. The allergies hit me so hard for the past 3 week...
by sugbrendas
Wed Mar 07, 2007 3:09 pm
Forum: General Topics: RLS
Topic: RLS LIFE: Drugs, Side Effects & Everything Else
Replies: 650
Views: 213579

I'm praying for you Nadia. You poor girl. I too have had most of the symptoms you've had. If you've learned nothing new today the best and most important thing in my opinion is not everything is RLS related. Thinking it is is very dangerous. I would hint for the Dr to begin a low dose of thyroid med...
by sugbrendas
Sat Feb 17, 2007 3:48 pm
Forum: General Topics: RLS
Topic: It's getting worse. Way worse.
Replies: 44
Views: 8165

Wow, i'm so sorry to hear that. This may be a coincidence but during my next to the last problem with RLS my headaches were so awful 24/7 so my primary ordered a MRI and it showed several white areas. The radiologist gave 5 possible causes and one was MS. My primary sent me to neuro and she said if ...
by sugbrendas
Thu Feb 15, 2007 2:06 pm
Forum: General Topics: RLS
Topic: Graveyard shift and RLS
Replies: 7
Views: 1524

Hi Zach, BTW your name is the same as the love of my life, my 3 year old grandson! LOVE IT!

The last RLS meeting it was discussed. RLS doc said she would rather we get it from a MD as a rx b/c the dosage vary's so much in the OTC.
by sugbrendas
Thu Feb 15, 2007 3:19 am
Forum: General Topics: RLS
Topic: think this could be bad
Replies: 29
Views: 6766

Well, i guess if i were to inherit a disease from my parents i'm very thankful for not getting the life threatening ones like Huntington's. There's a 50% chance if only one parent has it for each child. A terrible terrible way to go. I took care of 3 during my career. I am blessed. ((looking at the ...
by sugbrendas
Thu Feb 15, 2007 3:12 am
Forum: General Topics: RLS
Topic: It's getting worse. Way worse.
Replies: 44
Views: 8165

Theres some controversy on this med but Deseryl in addition to my normal meds got me through my last flare up. It made my arms and legs very very heavy. It also made me very sleepy even during the day so as soon as i could i took myself off and was fine after that. Just talking here, not advising. H...
by sugbrendas
Thu Feb 15, 2007 3:08 am
Forum: General Topics: RLS
Topic: Graveyard shift and RLS
Replies: 7
Views: 1524

My RLS doc said it also depends on your set biological clock that gets established very early on. I finally had to get my Dr to write a letter saying i could only work between 6a - 9p. This worked very well for me. So really it's 2 different things to consider. Your bio clock and coordination of you...
by sugbrendas
Wed Feb 14, 2007 11:33 pm
Forum: General Topics: RLS
Topic: 2nd time around
Replies: 11
Views: 1799

Corrie, During one of my flare ups the RLS Dr suggested that to me too. Having been on my meds for so long and knowing going off all meds makes me worse i refused. Just recently she was the guest speaker at a meeting and i told her so. She got offended when i asked her if she could go back to medica...
by sugbrendas
Wed Feb 14, 2007 5:08 pm
Forum: General Topics: RLS
Topic: Social Security Disability
Replies: 15
Views: 4686

yeah you probably could take the bus but i did that and ended in a place i had never seen before!
So not being able to drive and being so confused from meds and lack of sleep should do it IMHO. Not to mention the severe headaches that come along with lack of sleep.

HTH
by sugbrendas
Wed Feb 14, 2007 5:02 pm
Forum: General Topics: RLS
Topic: 2nd time around
Replies: 11
Views: 1799

Hi Mark, yes, i've been on Klonopin for at least 23+ years. I'm still at 2mg's. I've gone off of it a few times replacing it with sub's for a break. It was not a good idea for me cause my RLS/ PLMD got worse and worse. I think i've never gotten too used to the Klonopin, i think we go through these s...
by sugbrendas
Tue Feb 13, 2007 12:31 pm
Forum: Just Joined?
Topic: Going thru sleep deprivation while clearing out of RLS drug
Replies: 14
Views: 3069

chickory, I think you deserve a medal.
Going off all meds just agrevates the RLS so much. Been there done that.

Maybe try another drug in addition to your Klonopin for a week or so til your symptoms calm down. I have to do that every now and then anyway,

good luck!
by sugbrendas
Sat Feb 10, 2007 2:54 pm
Forum: General Topics: RLS
Topic: Where do you buy your meds?
Replies: 24
Views: 3634

I have bought meds from MedicineMexico. I was afraid at 1st for the quality but all of the meds came factory sealed, individually packaged and the expiration date was fine. I was really really angry that I had to send away to get the meds at a cheap price when the company's were all big name drug co...
by sugbrendas
Sat Feb 10, 2007 2:45 pm
Forum: General Topics: RLS
Topic: Social Security Disability
Replies: 15
Views: 4686

Hi everyone, I don't know if this helps but I worked for the Gov't almost 30 years before i retired.(va hosp) I was friends with some of the social workers for a long time and they always say SSI will almost automatically deny you 2 times before excepting your disability. I'm sure some don't get it ...