Search found 235 matches

by sugbrendas
Wed Sep 29, 2010 12:21 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Carbohydrate intake and RLS reduction
Replies: 7
Views: 3455

good question
by sugbrendas
Wed Sep 29, 2010 12:19 pm
Forum: Prescription Medications
Topic: Had to stop the Mirapex.
Replies: 24
Views: 4059

Good for you Betty!
just a tip here,
make sure your leg sensors are tight enough.
by sugbrendas
Wed Sep 29, 2010 8:25 am
Forum: Prescription Medications
Topic: Had to stop the Mirapex.
Replies: 24
Views: 4059

yes,i've always said it's supposed to. BUT it sometimes has worked for me. I guess like the Parkinson's meds work for some and not me. I can see the difference-less sleep when I skip the pm's. All I really care about is sleep and not the studies. Just like L-dopa, it made me worse yet they've tried ...
by sugbrendas
Tue Sep 28, 2010 8:36 pm
Forum: Prescription Medications
Topic: Had to stop the Mirapex.
Replies: 24
Views: 4059

ritomko, for decades I was on 2 mg's of Klonopin, I was not diagnosed but my Dr had tried everything else. It did work. Then after a flare up I added Niquil,an adult dose. THat worked for gosh 15-20 years. In 2002 I got Gillium Barre' syndrome. Very weak muscles,hardley functional at all. The pain w...
by sugbrendas
Tue Sep 28, 2010 7:41 am
Forum: Prescription Medications
Topic: New RLS study @ Hopkins
Replies: 4
Views: 563

I am going to contact the research people at Hopkins today. I don't know if my inability to take Mirapex will allow me to do the study or not.

It also may be too time consuming as I really need to get a job,part time.

Brenda
by sugbrendas
Tue Sep 28, 2010 7:38 am
Forum: General Topics: RLS/WED
Topic: Crazy rituals though the years..
Replies: 37
Views: 2989

Yes moist heat! I take a very hot shower every day and take the shower messager to my legs and back areas. It does help for awhile anyway.

Brenda
by sugbrendas
Mon Sep 27, 2010 9:28 pm
Forum: Prescription Medications
Topic: Had to stop the Mirapex.
Replies: 24
Views: 4059

Personally i've been on all of the Parkinson's drugs,Mirapex twice. None of them worked for me. I did start up with the RLS again after my stomach surgery..I had a very tough time of it. I complained of horrible back pain while in the hospital and that only hurt while up and arthritis in my hip flar...
by sugbrendas
Mon Sep 27, 2010 8:05 am
Forum: General Topics: RLS/WED
Topic: Crazy rituals though the years..
Replies: 37
Views: 2989

http://cgi.ebay.com/Anti-Embolism-Knee-High-Compression-Support-Stockings-/260665516054?pt=US_CSA_WC_Hosiery_S I hope this link works but the store is thesupportstore I got the beige closed toe. My husband likes his open toe cause his toe area is so wide. Also the firm control was too firm for me. I...
by sugbrendas
Sun Sep 26, 2010 1:59 pm
Forum: Prescription Medications
Topic: Had to stop the Mirapex.
Replies: 24
Views: 4059

I do,thanks Betty. Things are better. Not perfect. I dropped the Mirapex and began Tylenol PM. I realize it's not a good med for us but in desperation I tried it again and really slept good. Of course it may be that i've been in so much pain lately, I don't know. I think between the stockings I wear...
by sugbrendas
Sun Sep 26, 2010 10:18 am
Forum: General Topics: RLS/WED
Topic: Crazy rituals though the years..
Replies: 37
Views: 2989

Good luck Venus. Hopefully taking iron will help you. It seems that all of the studies point to iron being the very first thing to look at. I am having some luck with compression stockings. I ordered them off of eBay, new in the box. I wear them during the day and take them off at night. At first I ...
by sugbrendas
Mon Sep 20, 2010 8:12 pm
Forum: Prescription Medications
Topic: Had to stop the Mirapex.
Replies: 24
Views: 4059

Had to stop the Mirapex.

I was sooo tired even more tired than without it on the same amt of sleep.
BUT I slept from 9p to 4 this am. It was a better night without it---so far we'll see.
by sugbrendas
Sun Sep 19, 2010 1:04 pm
Forum: General Topics: RLS/WED
Topic: Crazy rituals though the years..
Replies: 37
Views: 2989

Good luck with that! Sometimes I put a "off channel" on to bore me and that helps. (on mute) when I get sleepy/bored I turn it off and roll over. BUT if I go into the living room my night is shot. Once i'm out there I can't go back to bed til around noon. Thats when I wake up early at 12 t...
by sugbrendas
Sun Sep 19, 2010 8:35 am
Forum: General Topics: RLS/WED
Topic: Crazy rituals though the years..
Replies: 37
Views: 2989

Crazy rituals though the years..

I thought it would be interesting to post some of the things i've done over the years. Some worked and some didn't. I was wondering how many of my rituals anyone else has tried. Sleep hygene. I learned relaxation at bedtime. I wipe out concerns and try to have a plan for daily problems a couple of h...
by sugbrendas
Sun Sep 19, 2010 8:15 am
Forum: General Topics: RLS/WED
Topic: Weaning off Klonopin
Replies: 15
Views: 1969

I've been on Klonopin for decades. Once in awhile i'll go off of them b/c in my head I need to know i'm not addicted to anything and then theres the times when I'm having problems with my RLS even with the 3mg of Klonopin and will stop and start again. I've never had a problem going off of them. Bre...
by sugbrendas
Sun Sep 19, 2010 8:09 am
Forum: Prescription Medications
Topic: New RLS study @ Hopkins
Replies: 4
Views: 563

I recieved the info packet and consent forms.

The 1st stage of the study doesn't look too bad but then theres the part you do at home with moniters on your legs and each night you must spend a hour stretching your legs in bed. I don't know if I can do that.

Brenda

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