Search found 235 matches

by sugbrendas
Sun Aug 29, 2010 6:55 am
Forum: General Topics: RLS
Topic: What do you think about Sinemet?
Replies: 8
Views: 627

All I can say is i've been on all of the Parkinson's meds and sinamet was the worse for me.
One of the newsletters from Hopkins RLS clinic said sorry but it seems it can cause augmentation.
It did for me.
by sugbrendas
Sat Aug 28, 2010 7:52 am
Forum: General Topics: RLS
Topic: I finally found you,I recognize some names...
Replies: 7
Views: 688

probably because I hadn't changed my profile sig. Didn't even realize it til I saw the responses.
Funny just sitting here is driving me nuts. Haven't been able to really "surf" to find you all.
Anyone go into remission since I was here before?

Brenda
by sugbrendas
Fri Aug 27, 2010 12:52 pm
Forum: General Topics: RLS
Topic: I finally found you,I recognize some names...
Replies: 7
Views: 688

I couldn't sit still long enough!

It's true. I've had a horrible time since my surgery in 2008.
It's worse than it ever was with pain now. I see my Dr next week.

It's sooo good to see and hear from you!

I get updates from Hopkins RLS, not sure what the last update means about iron and obsortion..

Brenda
by sugbrendas
Thu Aug 26, 2010 7:23 am
Forum: General Topics: RLS
Topic: I finally found you,I recognize some names...
Replies: 7
Views: 688

I finally found you,I recognize some names...

Computer has crashed several times. Anyone remember me?
by sugbrendas
Fri Nov 16, 2007 4:11 pm
Forum: General Topics: RLS
Topic: Anyone see this special
Replies: 8
Views: 830

wow thanks susan.LOL
it took me 2 hours just to find the piece i found!

This weekend i want to watch back to back.

Brenda
by sugbrendas
Thu Nov 15, 2007 3:36 pm
Forum: General Topics: RLS
Topic: Anyone see this special
Replies: 8
Views: 830

thanks Susan,
yeah,i would love the link to the whole thing.
I feel pretty stable right now.
AND my last cigarette was 11 days ago!
40 years of heavy smoking aint easy to quit!
I'm on the med Chantrix. I haven't had any sleep problems with it.
by sugbrendas
Thu Nov 15, 2007 5:53 am
Forum: General Topics: RLS
Topic: Anyone see this special
Replies: 8
Views: 830

Anyone see this special

Here a link for a preview. DH and DD saw it and said it was very interesting.
It looks like it'll be on some more,next date 11/24 @ 9am.

http://discoveryhealthcme.discovery.com ... 1125980572


I know i haven't been here for a bit. Long story(always is!)
by sugbrendas
Mon May 21, 2007 2:19 am
Forum: General Topics: RLS
Topic: help !!!
Replies: 4
Views: 1171

I think you need a second opinion, all that you mentioned are my symptoms and i have never heard of having RLS,seeing the movements and then being told you do not have it. You can see mine on most days too. How did you do on the Klonopin? Even if the Dr doesn't "believe" you have RLS why not give yo...
by sugbrendas
Tue May 15, 2007 9:03 pm
Forum: General Topics: RLS
Topic: I'm scared. Please help.
Replies: 42
Views: 7953

thank you Rachel and everyone but life must go on rght? Oh i'm so sorry guys and especially to you Rachel! We're here for RLS and i got all twisted around with my life. Well it began with me thinking how much stress and pressure i've been under and am amazed that my RlS is controled. God is good! Go...
by sugbrendas
Tue May 15, 2007 1:53 pm
Forum: General Topics: RLS
Topic: I'm scared. Please help.
Replies: 42
Views: 7953

thanks my friends,family. Besides my dh and dd we took my troubled nephew in in December, it was horrible. Anyway he ended up leaving abruptly and now is in foster care. This was the same time my dear brother, my only real support, my go to person was instantly killed in a motorcycle accident. Yes i...
by sugbrendas
Mon May 14, 2007 6:14 pm
Forum: General Topics: RLS
Topic: I'm scared. Please help.
Replies: 42
Views: 7953

Re: I,m scared, please help

[quote="ctravel I know alot of people have to go through a cocktail of meds to see what works for them and sometimes that can be pure h***. I know I have been there and do not want to go there again. ctravel Yeah i agree, i went through wanting to die because of no sleep and life wasn't worth living...
by sugbrendas
Mon May 14, 2007 4:52 pm
Forum: General Topics: RLS
Topic: I'm scared. Please help.
Replies: 42
Views: 7953

Both daughter and myself doing well on Klonopin.

I was on all 3 Dopamine agents with side affects.((FYI))
by sugbrendas
Sun May 13, 2007 11:35 pm
Forum: General Topics: RLS
Topic: I'm scared. Please help.
Replies: 42
Views: 7953

Hi Rachel, Every medicine has side effects. I was on so many meds to try to get me to sleep that i think i've had every side effect there is! However, in my case i have not had one single problem with my cocktail. I take everything between 2-3 sometimes 4 hours before i want to go to bed. I usually ...
by sugbrendas
Sun May 13, 2007 6:42 pm
Forum: General Topics: RLS
Topic: I'm scared. Please help.
Replies: 42
Views: 7953

I began writting this last nite and was ready to submit when a thunderstorm knocked out the power.LOL Caution with tylenol too! If i was a primary,knowing what i know now i would begin everyone officially diagnosed with RLS on Klonopin..I spent years worrying about addiction and years with and witho...
by sugbrendas
Wed May 09, 2007 12:44 am
Forum: General Topics: RLS
Topic: Nerve Conduction Study
Replies: 23
Views: 4211

I had one because i kept complaining to my Neuro that my feet burned like someone had fire under them. I had 3 in all because after the 1st one i had Gillium Barre' and had lost most of the use of my legs and arms but anyway.. I didn't think the regular NCS was bad at all. After the initial zing it ...