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by SquirmingSusan
Wed Nov 02, 2011 7:45 pm
Forum: Prescription Medications
Topic: nausea and RLS
Replies: 8
Views: 1992

I took diazepam for years to manage vertigo from inner ear damage. It also helped with my RLS. In more recent years I have been able to manage my vertigo with ginger capsules, which also work well for nausea.
by SquirmingSusan
Wed Nov 02, 2011 2:35 am
Forum: Everything Else...just no RLS/WED!
Topic: Finding Family
Replies: 19
Views: 4848

Betty, sorry I missed this. :oops: In addition to RLS/WED I also have been diagnosed with narcolepsy, which means that the part of my brain that controls sleep and wakefulness is "broken." On my own I am not able to achieve quality, consolidated sleep and I am not able to stay awake either...
by SquirmingSusan
Sun Oct 09, 2011 3:07 am
Forum: Everything Else...just no RLS/WED!
Topic: kids/grandkids :)
Replies: 7
Views: 1885

Hahahahaha!!! So precious.
by SquirmingSusan
Sun Oct 09, 2011 3:05 am
Forum: Everything Else...just no RLS/WED!
Topic: Finding Family
Replies: 19
Views: 4848

Hello my lovely restless leggers! I actually have had a bit of an upswing. I made it to a clergy training event last week, and it was wonderful reconnecting with some old friends and making new friends around the state. I got the last of my references lined up for my ministerial profile, and am gett...
by SquirmingSusan
Sun Oct 09, 2011 2:37 am
Forum: Prescription Medications
Topic: Anyone tried a muscle relaxant?
Replies: 4
Views: 1201

Benzos used to be commonly prescribed to treat WED/RLS, usually clonazepam. They are now widely believed to not directly treat the RLS, but to sedate people to the point of being able to sleep in spite of the RLS. That said, a lot of people do seem to get relief from those drugs. I took diazepam for...
by SquirmingSusan
Sun Oct 09, 2011 2:29 am
Forum: Prescription Medications
Topic: Anyone try or currently take Lamictal/lamotrigine?
Replies: 14
Views: 3784

I do remember there being a couple people in this forum who have had good experiences with lamotrigine. Have you tried the search engine here? Anticonvulsants are used to treat WED/RLS, but most doctors stick with Lyrica or Neurontin (gabapentin) because they aren't associated with the more serious ...
by SquirmingSusan
Sun Oct 09, 2011 2:21 am
Forum: Prescription Medications
Topic: Can Requip cause joint pain?
Replies: 7
Views: 1508

I had horrible leg pain from Requip, and also from Mirapex. Requip was wonderful for the first 2-3 nights. My legs had never felt so, so, well they had never been so sensation free! And relaxed. But after about 2 weeks I started to have pain, and not just when it wore off, but about the time it was ...
by SquirmingSusan
Sat Sep 24, 2011 2:16 am
Forum: Prescription Medications
Topic: Horizant
Replies: 8
Views: 1395

I have also tried Baclofen, and it didn't help me at all. It made it harder to sleep, too.
by SquirmingSusan
Sat Sep 24, 2011 2:13 am
Forum: General Topics: RLS/WED
Topic: need to sleep all day, awake all night
Replies: 13
Views: 2129

I hope the trend toward sleeping at night and being awake during the day keeps up, Beth! Have you ever put the Zeo on during some of those daytime naps? I'm just curious because sometimes you sound like you have narcolepsy, with problems sleeping at night, staying awake during the day, lots of REM, ...
by SquirmingSusan
Sat Sep 24, 2011 2:02 am
Forum: Everything Else...just no RLS/WED!
Topic: Finding Family
Replies: 19
Views: 4848

Yes, I'm anticipating an upswing sooner or later. I bought myself a pulse oximeter so I can try to figure out what's going on with my apnea at night. I love to sleep on my back, but between all the meds I'm on, I've had too many dips into the moderate apnea zone (O2 of 80-85) and even a couple 10 se...
by SquirmingSusan
Fri Sep 23, 2011 5:43 am
Forum: Everything Else...just no RLS/WED!
Topic: Finding Family
Replies: 19
Views: 4848

Wow, I totally narcolepsed the whole last week. Just too sleepy to function. Thanks for being excited for me with all the exciting things happening. Betty and Beth, we moved the daughter to a in a house near the U of M, but she usually comes home on weekends. But it's so quiet around here on weekday...
by SquirmingSusan
Fri Sep 16, 2011 3:43 am
Forum: Everything Else...just no RLS/WED!
Topic: Finding Family
Replies: 19
Views: 4848

Finding Family

It's been a month since I last logged in here! In that time period I've had some really exciting and stressful things happen. Probably the most exciting was that I found my birth family (I was adopted as an infant). My birth mother passed away 3-1/2 years ago, but I have a (half) sister about 60 mil...
by SquirmingSusan
Mon Aug 15, 2011 3:00 am
Forum: Prescription Medications
Topic: Antidepressant that doesn't make EkD worse?
Replies: 18
Views: 4520

Amitryptaline (sp?) can help sleep, but is linked to worsened PLM. But it does help a lot of people. I think it's good for anxiety, too. It's an older tricyclic AD. I believe it's Polar Bear who recently started that, and it's been working well. Otherwise, I'm out of ideas. But there are a lot of me...
by SquirmingSusan
Mon Aug 15, 2011 1:05 am
Forum: Prescription Medications
Topic: Antidepressant that doesn't make EkD worse?
Replies: 18
Views: 4520

Both gabapentin and Lyrica help me with RLS/WED to some extent. Gapapentin is a weird drug, though, because it seems to require ever-increasing doses to remain effective. It's not quite the same as tolerance, though, because you can still stop the medication without withdrawal; it just stops working...
by SquirmingSusan
Thu Aug 11, 2011 4:14 am
Forum: General Topics: RLS/WED
Topic: Seeing Dr. B
Replies: 19
Views: 1983

I love our twice yearly trips to LA. When both kids came with me to see Dr. B, we stayed near Disneyland and got 4 day passes. It's usually my daughter and I who have to see him, so it's usually just the two of us who go to LA. The last couple trips, we spend the first night near Downey, usually in ...

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