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by SquirmingSusan
Thu Aug 11, 2011 1:52 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Pregnancy Journal
Replies: 57
Views: 28189

(((((((Sarah))))))) I can't imagine having wicked RLS and being pregnant, let alone being put on bedrest! I am assuming that your doctors are on top of the whole iron/ferritin issue? My understanding is that taking opioids during pregnancy is not very risky. It makes things more complicated after de...
by SquirmingSusan
Thu Aug 11, 2011 1:15 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: sativa vs. indica
Replies: 40
Views: 17077

Doety, I have also flown out to LA to see Dr. B, several times, and he's treating me and my 2 kids for their sleep issues as well. He also spent at least an hour with me on my first appointment and let me explain my symptoms and my theories of what might be wrong, then very gently explained why did ...
by SquirmingSusan
Mon Aug 01, 2011 4:30 am
Forum: Everything Else...just no RLS/WED!
Topic: sleep issues
Replies: 171
Views: 35348

I've taken a variety of antidepressants - SSRIs and SNRIs, and the one thing that I've noticed is that when tapering off of one and onto a different one, my WED is likely to go crazy for a few days. And dose increases do that as well. But after a few days, things settle back down. So even if your WE...
by SquirmingSusan
Sat Jul 23, 2011 11:34 pm
Forum: General Topics: RLS/WED
Topic: RLS and driving
Replies: 9
Views: 1455

It's been my experience that the sleepiness from taking opiates goes away within a few days to a week. Of course, if you've only ever taken them after major surgery, you probably didn't make it past that point, and associate them with extreme sleepiness. I started to take Vicodin after having augmen...
by SquirmingSusan
Sat Jul 23, 2011 11:22 pm
Forum: Just Joined?
Topic: Anyone Familiar with Myoclonus?
Replies: 5
Views: 1114

I have no idea, Ann. I don't get the hypnic jerks very often, and never really have. But that all-over jerking after augmentation, that was crazy.
by SquirmingSusan
Sat Jul 23, 2011 11:20 pm
Forum: Just Joined?
Topic: Introducing myself
Replies: 2
Views: 736

Hey BR, you're up in my neck of the woods. I hope you have air conditioning! Welcome to the forum. The Effexor may or may not be aggravating your RLS. Most people are not bothered by antidepressants, but some certainly are. If you've been taking that for a long time, it's probably not the culprit he...
by SquirmingSusan
Sat Jul 23, 2011 11:08 pm
Forum: Just Joined?
Topic: Just joined the board
Replies: 2
Views: 886

Welcome to the forum, Sandra. There is a lot of good information here, especially in the sticky posts at the top of this part of the forum. You may want to look for a link to the Mayo Clinic Algorithm for the Management of RLS. It talks about the most commonly used medications to treat RLS. It's int...
by SquirmingSusan
Thu Jul 21, 2011 8:43 pm
Forum: Everything Else...just no RLS/WED!
Topic: Zeo sleep coach - sensors hurt. wHy?
Replies: 6
Views: 1691

Beth, I get dents from it and they can be quite tender. And I have to wear it about an inch off center to the left if it's to read my sleep phases at all, and even then it doesn't always read me. I could never wear it every night because of the indents in my head, LOL. I just don't like them and the...
by SquirmingSusan
Thu Jul 21, 2011 8:37 pm
Forum: Everything Else...just no RLS/WED!
Topic: sleep issues
Replies: 171
Views: 35348

So glad you've found someone who cares, and truly wants to help you feel better, PB. I hope the diazepam works for you and you get some great sleep. I do find it odd that she would prescribe that and not temazepam, because one of the metabolites of diazepam is temazepam... But doctors always seem to...
by SquirmingSusan
Thu Jul 21, 2011 8:15 pm
Forum: Just Joined?
Topic: Hello
Replies: 4
Views: 1203

You might get a list of all the medications she takes, as so many different classes of meds can aggravate RLS. And it sounds like she is, or was, on a lot of them. Who knows, if she had been on Requip or Mirapex, and then was taken off of them because of the hallucinations, she might be suffering fr...
by SquirmingSusan
Thu Jul 21, 2011 8:06 pm
Forum: Just Joined?
Topic: Anyone Familiar with Myoclonus?
Replies: 5
Views: 1114

I get a lot of jerking that doesn't fit the description of PLMs, I have those as well. But I do get some random jerking that can be anywhere, and is not periodic. Once I had a jerk that was so strong down the middle of my back and neck that my body arched up off the bed. It was at its worst after au...
by SquirmingSusan
Sun Jul 03, 2011 4:08 am
Forum: Just Joined?
Topic: New Member
Replies: 30
Views: 5737

DW, too bad you had to waste your money on the book. We could have warned you about her. There are others out there who claim to know "the cure" for RLS, and charge money to let you know about it, but Marie Goodwin seems to be one of the more persistent ones. If it was that simple and easy...
by SquirmingSusan
Sat Jun 25, 2011 3:29 am
Forum: Physical Treatments
Topic: zen meditation
Replies: 40
Views: 20807

I can do some mindfulness meditation, as long as I don't get too relaxed. There is no better way to get my RLS to overcome the medication I use to control it than to get very, very relaxed. :shock: It's easier for me to practice mindfulness while washing dishes or doing other household chores. And s...
by SquirmingSusan
Sat Jun 25, 2011 3:24 am
Forum: About the site
Topic: New posts
Replies: 8
Views: 8184

There is no such feature that I know of. Sorry.
by SquirmingSusan
Tue Jun 21, 2011 4:34 am
Forum: General Topics: RLS/WED
Topic: WED/RLS is not always the culprit
Replies: 15
Views: 2187

I take the 50,000 IU dose once a week or so, and it has done wonders for me. My RLS used to be so painful, but a couple years ago when I got my D level tested, and then started taking the vitamin D, the pain went away. I also have one of those Sperti lights that you stand in front of for 10 minutes ...

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