Restless Legs Syndrome (RLS) Discussion Board

I also use/have used Kratom. I don't now use it regularly as I'm not always sure that it helps a great deal with sleep but that's just me. If I'm having a very bad time I will take it as an extra to my usual medication and then I'm uncertain if it is the Kratom that has helped, or the walking off, o...

Wednesday 24th February 2021 Today we welcome: Tialoca1 - Tialoca's WED/RLS has gotten so bad that Tialoca1 only gets two hours sleep per night and can’t function in the day time. He/She feels desperate and unable to go on like this. We all understand exactly how you feel and would love to try and h...

Makes going to bed at night a pleasure rather than something to be endured. I am so happy for you.

Ann, 'road blocks' .... that's a phrase I will remember to use if necessary.

Tuesday 16th February 2021 Welcome today to PhyllisV - who has had severe RLS for many year and is Searching for any treatments that may help. We are happy that you have found us. If you start with the Just Joined forum there is a lot of information. When you feel ready you can join an existing rele...

EeFall - you made me laugh.... I saw... "My wife and I made a baby" ...then read the full sentence correctly. I love your green headed Yoda snowman. Interesting to read your comment on your shoe inserts as my podiatrist had made to measure supports sorted for me. They are great for taking the pressu...

tagalongbuddy - I'd like clarify your medication. Are you saying that you are on 6mg Ropinerole daily and that this is what your neurologist is calling a low dose? The pharmaceutical company generally says Ropinerole is ok at up to 4mg max daily dosage but the RLS Experts from their experience of tr...

What a wonderful result. Here's to many nights of restful sleep.

I got my Astra Zeneca vaccination yesterday. A slightly tender arm today and a little headache-y. Didn't even feel the needle go in. Just the usual RLS last night, no difference.I EDIT: one week on. By the second day my upper arm was tender and the arm was stiff. It was difficult to raise my arm abo...

Ann, what a frustrating, upsetting and infuriating situation. Sometimes pharmacists take too much on. I can't understand them questioning the decisions and prescription of your doctor. It distant happen here as far as I know. It means you have to battle with the doctor and then still not be sure of ...

I hope your surgery has gone well and that the future is positive.

Did you switch to the Neupro before your surgery. Just wondering at what stage the itching started with regard to elimination.

Just to say congratulations on getting this far, you are doing brilliantly. Two years ago after augmenting on ropinerole I decided I had to come off it and did so by weaning very slowly over a period of ten months. I used Codeine to help this along, and I now take Codeine and Lyrica. The Lyrica is a...

Ugh indeed Ann .... I am scraping by on the 12 pills. For some reason my couple of hours wakefulness during the night has now become wakefulness with rls and neuropathy. To have a full dose of codeine at 3am means I give up my mini dose at lunch time and so get earlier twitches. I do have Kratom (no...

Going through augmentation twice you will be well aware how awful.itbis. In glad you are at present on a successful regime.
What medications are you currently taking, what was the second med that was added.
It is always good to hear of someone doing ok.