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by Polar Bear
Sun Jun 30, 2019 5:53 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 106
Views: 2988

Re: Attempting to get off Ropinirole - again

It's not easy knowing which is the best way to tackle it. IIRC it was Ann who at a time was using a razor blade to shave tiny amounts of DA as she got really low in her weaning process. (Forgive me Ann if I've got that wrong). I'll start with dropping the 5pm dose to .25mg and take it from there. I ...
by Polar Bear
Sat Jun 29, 2019 11:00 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 106
Views: 2988

Re: Attempting to get off Ropinirole - again

Holland, I thought of that, then thought of how the .5mgs are at the time most needed. I do have respect for your opinions... and opinions are what I am looking for, it is an idea and I do have a a script for 16 x 15mg codeine per day whilst currently only using 14 of them. Say I dropped to .25mg at...
by Polar Bear
Sat Jun 29, 2019 8:26 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 106
Views: 2988

Re: Attempting to get off Ropinirole - again

The pregabalin at 200mg x twice has helped the burning and it is much less. It is now time to reduce the ropinerole again and I am in a quandary. The Dr leaves it up to me. My reduced dosage is 1.5mg total. At present it is ..... 9am..... I dropped this .25 dose 1pm .25 5pm .5 9pm .5 3am .25. = tota...
by Polar Bear
Sat Jun 29, 2019 6:55 am
Forum: Prescription Medications
Topic: Alerting help (Tramadol)
Replies: 12
Views: 176

Re: Alerting help (Tramadol)

I took Tramadol for quite some time and it did help with RLS symptoms. However, I eventually started to have uncontrollable random jerks. My legs, shoulder or arm would suddenly jerk. I weaned myself off it and the jerks have more or less gone just the very occasional one, maybe two in a day. I'm to...
by Polar Bear
Wed Jun 26, 2019 8:24 pm
Forum: General Topics: RLS/WED
Topic: RLS in Public
Replies: 2
Views: 43

RLS in Public

Today I was at an all day session 9.00 am - 4.30 pm for those newly diagnosed with Diabetes 2. Ten patients at the session, it was so informative and very interactive and generally light hearted. When my legs started i wiggled for a while then just said - Excuse me, I have RLS and have the need to s...
by Polar Bear
Wed Jun 26, 2019 8:21 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 106
Views: 2988

Re: Attempting to get off Ropinirole - again

As I am now attending a different GP in the Practice we are trying to get things a little more settled at the moment and haven't had a big discussion beyond she agreed to increase the Codeine. Then as she was off, another Partner increased my Pregabalin. Actually it's almost impossible to see the sa...
by Polar Bear
Mon Jun 24, 2019 8:44 pm
Forum: Prescription Medications
Topic: B 12 levels
Replies: 15
Views: 1454

Re: B 12 levels

Yankiwi ..... you mention dividing a .25mg pill into two. Do you have success doing this?
I am prescribed Adartel (ropinerole) and the pill is dome shaped, so difficult to split. The cutter slides over it and all sorts of random measures are scattered as a result.
by Polar Bear
Mon Jun 24, 2019 8:29 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 106
Views: 2988

Re: Attempting to get off Ropinirole - again

Thank you Ann and Beth I had the one good night on the extra 100mg Pregabalin and the following two nights although the extra helped with the burning it hasn't cleared it completely. And sleep was also only helped on the first night of the extra, back now to the usual pattern. The burning like it is...
by Polar Bear
Sat Jun 22, 2019 6:28 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Wahls diet for WED? Trying it.
Replies: 96
Views: 21098

Re: Wahls diet for WED? Trying it.

Beth, honestly i'd keep trying for one of the names in which you have confidence. Perhaps Dr Benjamin is worth seeing but you would like reassurance of this. Would an email to Dr B be worthwhile to ask him if he knows of her. Or actually, would it cost much more to do a return flight down to Dr B an...
by Polar Bear
Fri Jun 21, 2019 8:22 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 106
Views: 2988

Re: Attempting to get off Ropinirole - again

Having been prescribed an increase in Codeine from 10 x 15mg daily to 14 daily, I am taking 12 daily. Together with my 150 Pregab x 2, and my reduced Ropinerole at 1.5mg. However, even with the increase in Codeine all is not great. Symptoms are more troublesome and oh my, the burning on the tops of ...
by Polar Bear
Wed Jun 19, 2019 7:38 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Nonmedication strategies for RLS by Shalini Paruthi,MD
Replies: 14
Views: 565

Re: Nonmedication strategies for RLS by Shalini Paruthi,MD

I would imagine that the sensation from the theragesic provides a distraction to the symptoms you have from RLS. I have on occasion, when feeling desperate, used Bio-Freeze for distraction purposes. Your stretch exercises are exactly what is needed to help you back to bed. Mind you, I need to stretc...
by Polar Bear
Mon Jun 17, 2019 11:29 am
Forum: Everything Else...just no RLS/WED!
Topic: Weight Loss
Replies: 40
Views: 7328

Re: Weight Loss

Well, I've had the gain and not much of the loss. Up a clothes size since last summer .... and last summer was the heaviest I'd ever been at that time. That was DAs and eating in the middle of the night..... really eating !! My DA is now well reduced. Pregabalin is known for weight gain and in the l...
by Polar Bear
Sat Jun 15, 2019 11:36 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Wahls diet for WED? Trying it.
Replies: 96
Views: 21098

Re: Wahls diet for WED? Trying it.

I will retain this document, it would be useful to show my GO.
by Polar Bear
Sat Jun 15, 2019 6:52 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Wahls diet for WED? Trying it.
Replies: 96
Views: 21098

Re: Wahls diet for WED? Trying it.

but main effect for me was feeling "more normal" in the day time. I don't know any more what is normal, am I normal or not? It is bound to be that my normal is not what should be my (non RLS) normal. Too many things to think of and remember in order to get through the day/night with a sem...
by Polar Bear
Fri Jun 14, 2019 10:19 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Wahls diet for WED? Trying it.
Replies: 96
Views: 21098

Re: Wahls diet for WED? Trying it.

legs - thank you for confirming you are still without the creepy crawleys. I was reading this and wondering if I was reading it properly. The most significant benefit was that I felt better during the daytime - more ‘myself’ - and this has persisted even after discontinuing dipyridamole. Oh my, your...

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