Restless Legs Syndrome (RLS) Discussion Board

Beth - thankyou for your very informative update. Feedback like this is really useful to someone who is just thinking about buying a weighted blanket.

26 November 2020 Welcome today to: Virtdan - who suffers from RLS and needs to understand how to get help and what has worked for others. As you read through the posts you will see that what has worked for others does not work for everyone. Most of us have tried just about everything until we find w...

26 November 2020 Welcome today to: Eking - who suffers from RLS and is interested in others experiences. You will read many stories here of the difficulties rls sufferes can face and how we try to cope. We always try to help other sufferers and are glad that found us, but sorry that you needed us. P...

If you are getting 8 hours good solid sleep that can only be good. I can't see that you'd be sleep deprived. I guess we all dealt with RLS 'old style' before we found the medication route. To go back to no RLS medications is a big step. It involves weaning off your current medications and not all at...

I take 1 level teasp of Kratom Red Borneo as a dose. Sometimes one before bed and often one during the night as well. This helps with comfort but would need higher doses for it to help with sleep. I also make sure there are nights that I don’t take it to avoid tolerance. I add a little boiling water...

Thank you Steve. In life in general I have at times missed out through doing the right thing. I agree with you and am delighted.

I am very happy to say that today I received a telephone call from the Respiratory Nurse at the hospital to which I have been referred and which has the 3 year waiting list for cpap assessment. I have been on the list about 4 months and it is one month since my daughter in law intervened. The nurse ...

I would suggest that you read up on our Augmentation Forum. See how others have coped coming off a dopamine agonist i.e. ropinerole. As you read and learn you will be in a better position to understand and to ask questions when you do see a doctor.

Well done on cutting down your pramipexole. It was the right thing to do and you did so well. When coming off the last of your pramipexole you are likely to find your RLS symptoms go into overdrive. Sleep is likely to become difficult again because the gabapentin won't be enough to deal with this 'o...

Thursday 29 October 2020 Welcome today to: DicCarlson - who had severe RLS 2016, somewhat "cured" with iron supplements. But, severe Insomnia since then. Severe insomnia is something we are all very familiar with and RLS insomnia appears to be a type all of its own where the usual sleeping pills don...

Wednesday 28th October 2020 Welcome today to katlin - who suffers with this awful condition day and night, katlin rarely sleeps and needs magnesium baths through the night also taking medications every 4 hours. Electric pain is unbearable. We are glad that you have found us and we will do our best t...

Tuesday 27th October 2020 Welcome today to bambiks - who as a lifelong rls patient wants to share experiences and learn from other's. RLS increasingly rules daily life and now in my early fifties it gets worse. Against rls in legs and arms bambiks has been using all label and off-label rls medicatio...

SleepyBhamster - I haven't used a sleeping pill for over 6 months. I do have a supply just in case the situation should ever change but don't use them, even on the nights when I'm getting only 2 or 3 hours sleep. As an aside - I am awaiting assessment for treatment of moderate sleep apnea and the Co...

Referring to Steve's experience of an absence with Ambien. Last December I was working on Election Day which entailed an early start of 6am. I experienced an absence of 90 minutes from 7 - 8.30am but had clearly been working during that time. I came to at 8.30am in a state of minor confusion i.e. no...

I’m happy to say that J (my daughter in law) has spoken with the Respiratory Consultant in her hospital who was previously the Senior RC in the hospital to which I have been referred (Post Code allocation) and which has the 3 year waiting list. J says he was delightful to speak with. He now has a c...