Search found 6721 matches

by Polar Bear
Fri Oct 02, 2020 7:26 pm
Forum: Prescription Medications
Topic: Ropinirole. Occasional use post augmentation
Replies: 8
Views: 416

Re: Ropinirole. Occasional use post augmentation

I have been off ropinerole for about six months and my symptoms are controlled by Codeine and Lyrica. I get some breakthrough but it’s not dreadful. Sometimes it is difficult to tell if it is RLS or the neuropathy. Walking for a time usually resolved but just not always. I use Kratom to help at thes...
by Polar Bear
Wed Sep 30, 2020 9:37 am
Forum: Just Joined?
Topic: SEPTEMBER 2020 - New Members
Replies: 46
Views: 1376

Welcome to Sgibbes

Wednesday 30 September 2020 Welcome today to: Sgibbes - who has had RLS for 20 years now and has recently started seeing a neurologist who has helped tremendously. Now Sgibbes is pregnant and cannot take the medicine. She needs 10-12 hours in bed just to get 8 hours of sleep and wants to know how ot...
by Polar Bear
Wed Sep 30, 2020 8:40 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 295
Views: 15229

Re: Attempting to get off Ropinirole - again

The relative nurse who was head of the respiratory department in my dil's hospital has moved to another hospital. However following a discussion with staff in that department dil was advised to speak to a particular Respiratory Consultant who works there part of the week and until recently was the H...
by Polar Bear
Wed Sep 30, 2020 8:03 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Melatonin added to the mix
Replies: 9
Views: 503

Re: Melatonin added to the mix

Having seen the posts of Ann, Beth and Xenman it shows that Melatonin is worth trying despite it having a n association with worsened RLS symptoms. Indeed, I may make a trip to the pharmacy today. Bearing in mind to try the lowest dose first. :P
by Polar Bear
Mon Sep 28, 2020 8:17 am
Forum: Just Joined?
Topic: 5 Weeks Until Specialist Visit and Ropinirole Doesn’t Work Anymore
Replies: 6
Views: 368

Re: 5 Weeks Until Specialist Visit and Ropinirole Doesn’t Work Anymore

You are now taking 2.75mg Ropinerole. Although officially the guidelines state Ropinerole max daily is 4mg most RLS experts will agree that daily max should be around 1mg so you are well above what we RLS sufferers would consider to be our daily max. It is possible that you are augmenting and it wou...
by Polar Bear
Sun Sep 27, 2020 5:22 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Melatonin added to the mix
Replies: 9
Views: 503

Re: Melatonin added to the mix

It is my understanding that Melatonin is not generally recommended for use when suffering with RLS.
That RLS could be worsened by melatonin as it can tensify RLS symptoms because it lowers the amount of dopamine in the brain.
However, we all know how perverse some reactions to certain drugs may be.
by Polar Bear
Sun Sep 27, 2020 5:02 pm
Forum: Physical Treatments
Topic: Vein Clinic Consult
Replies: 6
Views: 943

Re: Vein Clinic Consult

Possibly 20 years ago I had treatment for a varicose vein on one leg. The Consultant told me it would have no affect on my RLS and indeed there was no difference on my RLS after surgery. I am unaware which method of treatment was used.
by Polar Bear
Fri Sep 25, 2020 10:09 pm
Forum: General Topics: RLS
Topic: When Do Symptoms Occur? And, For How Long?
Replies: 4
Views: 384

Re: When Do Symptoms Occur? And, For How Long?

Oozz - My RLS is severe in my legs, usually the right leg. Occasionally in the arms. I've had it for some 30+ years. I take medication spread over the 24 hour day, less in the morning and more in the evening. Also during the night. Without medication I would have constant symptoms. At least that is ...
by Polar Bear
Fri Sep 25, 2020 9:53 pm
Forum: Prescription Medications
Topic: Success!!! Iron infusions ordered!
Replies: 12
Views: 420

Re: Success!!! Iron infusions ordered!

Well done. I wish you well.
by Polar Bear
Fri Sep 25, 2020 9:51 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: A few questions about iron tablets
Replies: 18
Views: 728

Re: A few questions about iron tablets

If you defiinitely have IV iron infusions coming up then I don't reckon there's much point in continuing taking oral iron. Especially considering how long it takes to have an effect.
by Polar Bear
Thu Sep 24, 2020 7:01 pm
Forum: Prescription Medications
Topic: Success!!! Iron infusions ordered!
Replies: 12
Views: 420

Re: Success!!! Iron infusions ordered!

What a wonderful outcome. Can't wait to hear how you get on with them.
by Polar Bear
Thu Sep 24, 2020 6:49 pm
Forum: Just Joined?
Topic: New to this board
Replies: 11
Views: 541

Re: New to this board

At a dose of 4mg ropinerole you would need to wean off them if you ever wanted to stop.
How did you get on last night using just 2mg.

I think to drop from 4mg to 2mg is too big a step. I would go down only .5mg at a time. Splitting your pills if necessary. They are an awkward shape to split.
by Polar Bear
Thu Sep 24, 2020 6:40 pm
Forum: Just Joined?
Topic: Medication problem
Replies: 8
Views: 440

Re: Medication problem

I very slowly weaned off a high dose of ropinerole (a similar drug to mirapex) by adding Lyrica (a similar drug to gabapentin). I asked my Dr to prescribe the usual daily dose requirement but to have it made up in low dose pills. This gave me the leeway to reduce gently at each step. As the ropinero...
by Polar Bear
Tue Sep 22, 2020 12:41 pm
Forum: Just Joined?
Topic: New to this board
Replies: 11
Views: 541

Re: New to this board

As Steve has said, you are taking the maximum recommended daily dose of ropinerole at 4mg. Just to note, many of our esteemed RLS experts would now consider that 1mg daily should be the max daily dose in order to try and avoid augmentation. Coming off Requip/Ropinerole is a challenge but there is a ...
by Polar Bear
Fri Sep 18, 2020 11:44 am
Forum: Just Joined?
Topic: SEPTEMBER 2020 - New Members
Replies: 46
Views: 1376

Welcome to Ria

18th September 2020 Today we welcome Ria - who is an RLS sufferer and has been for 20 years. Ria wants to learn from other sufferers what they are doing and what is helping them and share experiences. You will find a great deal of information and I suggest you start with the Just Joined Forum. When ...