Restless Legs Syndrome (RLS) Discussion Board

18th September 2020 Today we welcome Ria - who is an RLS sufferer and has been for 20 years. Ria wants to learn from other sufferers what they are doing and what is helping them and share experiences. You will find a great deal of information and I suggest you start with the Just Joined Forum. When ...

Referring to your post of 11 Sept I see that you changed the dosages of several of your medications at the one time. Speaking only from my own experience, does this not make it complicated to figure out which change is caused by which medication adjustment because we know that meds don't always perf...

First of all you are taking Nytol. This is actually diphenhydramine which is the same as Benadryl...... An absolute no no when it comes to RLS. It is a big aggravation for RLS and is on our list of things to be avoided. Your ropinerole dose is 1mg and this is what out RLS experts would consider to b...

Have you tried a netti pot. I haven't myself but have several friends who swear by them. They cost very little and are available from Amazon.

With regard to the hospital waiting list being 3 years to have treatment for sleep apnea despite having an up to date diagnostic sleep test my daughter in law is going to make enquiries. She works in one of the big city hospitals and is acquainted with person who runs the respiratory department (sle...

8 September 2020 Welcome today to MessyJessy - who has had restless legs for two years. Currently having a hard time finding a Dr. who will Rx the medication combo that works. Current Dr. has her just taking iron supplements and exercise. She doesn't absorb iron via pill and usually has to get infus...

You now have a plan with the support of your doctor. Do you feel the better for having a positive goal. It is likely to be difficult but just maybe not as difficult as you imagine. If you do find yourself starting to the waver please do speak further with your doctor. She sounds like she has your ba...

I very successfully weaned off ropinerole, not pramipexole but it is a similar drug. I did it very slowly, over 10 months, and supplemented with Codeine and Pregabalin..

I was taking 5mg spread over 24 hours. I had been on ropinerole for many years, about 16 years, starting when the daily dose of 4mg as indicated by the manufacturer was acceptable. Nowadays the expert RLS consultants consider that 1mg is tops to try and avoid augmentation. With great trepidation I w...

Don't worry about over complicating things in your post..... You are just thinking aloud. Good luck with finding what level will work for you. Again.... If it was me..... I'd first work with one med at a time to see how it could work for me. Do remember, I am just a sufferer like yourself albeit wit...

You say I take 37.5mg twice for 75mg total ... and yes it's still not quite enough Can you clarify the above. Do you take 37.5 mg Codeine as a dose, and then a further 37.5mg some time later.... which is how I understood it, making 75mg over a period of time. I would consider this to be two separate...

28th August 2020 Today we welcome Leg - who cannot sleep and so experiences all of the effects of this..... Leg, lack of sleep is just about the biggest problem we all have, we all will know exactly how you feel. You will see this as you read through the threads. If you have any questions please do ...

This is an excellent book that you may find very informative, it is easy to read and can be used for discussion purposes with your doctor. Clinical Management of Restless Legs Syndrome by Lee, Buchfuhrer, Allen and Hening. Make sure to get the second edition. These Authors are at the top of the leag...

Thank you for telling us of your experience - heartwarming.

It might be helpful to try and increase your ferritin. It could do with being higher. Also have you ever tried reducing your mirapex. With movement in your shoulders and arms it does sound like DA (mirapex) augmentation. How can you be sure that augmentation of Mirapex is not the issue? It is very c...