Search found 6737 matches

by Polar Bear
Fri Sep 18, 2020 11:44 am
Forum: Just Joined?
Topic: SEPTEMBER 2020 - New Members
Replies: 46
Views: 1535

Welcome to Ria

18th September 2020 Today we welcome Ria - who is an RLS sufferer and has been for 20 years. Ria wants to learn from other sufferers what they are doing and what is helping them and share experiences. You will find a great deal of information and I suggest you start with the Just Joined Forum. When ...
by Polar Bear
Fri Sep 18, 2020 11:22 am
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 137
Views: 9600

Re: 1st post after 24 years of RLS

Referring to your post of 11 Sept I see that you changed the dosages of several of your medications at the one time. Speaking only from my own experience, does this not make it complicated to figure out which change is caused by which medication adjustment because we know that meds don't always perf...
by Polar Bear
Thu Sep 17, 2020 6:53 pm
Forum: Just Joined?
Topic: Hello from newbie in Rugby
Replies: 4
Views: 279

Re: Hello from newbie in Rugby

First of all you are taking Nytol. This is actually diphenhydramine which is the same as Benadryl...... An absolute no no when it comes to RLS. It is a big aggravation for RLS and is on our list of things to be avoided. Your ropinerole dose is 1mg and this is what out RLS experts would consider to b...
by Polar Bear
Tue Sep 15, 2020 8:16 am
Forum: Just Joined?
Topic: Hello from Newbie in Birmingham, AL
Replies: 8
Views: 450

Re: Hello from Newbie in Birmingham, AL

Have you tried a netti pot. I haven't myself but have several friends who swear by them. They cost very little and are available from Amazon.
by Polar Bear
Sun Sep 13, 2020 9:58 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 302
Views: 16130

Re: Attempting to get off Ropinirole - again

With regard to the hospital waiting list being 3 years to have treatment for sleep apnea despite having an up to date diagnostic sleep test my daughter in law is going to make enquiries. She works in one of the big city hospitals and is acquainted with person who runs the respiratory department (sle...
by Polar Bear
Mon Sep 07, 2020 11:42 pm
Forum: Just Joined?
Topic: SEPTEMBER 2020 - New Members
Replies: 46
Views: 1535

Welcome to MessyJessy

8 September 2020 Welcome today to MessyJessy - who has had restless legs for two years. Currently having a hard time finding a Dr. who will Rx the medication combo that works. Current Dr. has her just taking iron supplements and exercise. She doesn't absorb iron via pill and usually has to get infus...
by Polar Bear
Fri Sep 04, 2020 7:22 pm
Forum: Augmentation
Topic: What To Do?
Replies: 51
Views: 8447

Re: What To Do?

You now have a plan with the support of your doctor. Do you feel the better for having a positive goal. It is likely to be difficult but just maybe not as difficult as you imagine. If you do find yourself starting to the waver please do speak further with your doctor. She sounds like she has your ba...
by Polar Bear
Thu Sep 03, 2020 1:05 pm
Forum: Augmentation
Topic: What To Do?
Replies: 51
Views: 8447

Re: What To Do?

I very successfully weaned off ropinerole, not pramipexole but it is a similar drug. I did it very slowly, over 10 months, and supplemented with Codeine and Pregabalin..
by Polar Bear
Thu Sep 03, 2020 12:59 pm
Forum: Prescription Medications
Topic: Can a treatment plan revolve around opioids?
Replies: 48
Views: 1759

Re: Can a treatment plan revolve around opioids?

I was taking 5mg spread over 24 hours. I had been on ropinerole for many years, about 16 years, starting when the daily dose of 4mg as indicated by the manufacturer was acceptable. Nowadays the expert RLS consultants consider that 1mg is tops to try and avoid augmentation. With great trepidation I w...
by Polar Bear
Tue Sep 01, 2020 7:07 pm
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 137
Views: 9600

Re: 1st post after 24 years of RLS

Don't worry about over complicating things in your post..... You are just thinking aloud. Good luck with finding what level will work for you. Again.... If it was me..... I'd first work with one med at a time to see how it could work for me. Do remember, I am just a sufferer like yourself albeit wit...
by Polar Bear
Mon Aug 31, 2020 5:30 pm
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 137
Views: 9600

Re: 1st post after 24 years of RLS

You say I take 37.5mg twice for 75mg total ... and yes it's still not quite enough Can you clarify the above. Do you take 37.5 mg Codeine as a dose, and then a further 37.5mg some time later.... which is how I understood it, making 75mg over a period of time. I would consider this to be two separate...
by Polar Bear
Fri Aug 28, 2020 11:45 am
Forum: Just Joined?
Topic: AUGUST 2020 - New Members
Replies: 45
Views: 1965

Welcome to Leg

28th August 2020 Today we welcome Leg - who cannot sleep and so experiences all of the effects of this..... Leg, lack of sleep is just about the biggest problem we all have, we all will know exactly how you feel. You will see this as you read through the threads. If you have any questions please do ...
by Polar Bear
Fri Aug 28, 2020 12:00 am
Forum: Prescription Medications
Topic: Need advice
Replies: 28
Views: 994

Re: Need advice

This is an excellent book that you may find very informative, it is easy to read and can be used for discussion purposes with your doctor. Clinical Management of Restless Legs Syndrome by Lee, Buchfuhrer, Allen and Hening. Make sure to get the second edition. These Authors are at the top of the leag...
by Polar Bear
Wed Aug 26, 2020 7:24 pm
Forum: Everything Else...just no RLS!
Topic: An understanding dental assistant
Replies: 3
Views: 817

Re: An understanding dental assistant

Thank you for telling us of your experience - heartwarming.
by Polar Bear
Tue Aug 25, 2020 10:20 pm
Forum: Prescription Medications
Topic: Need advice
Replies: 28
Views: 994

Re: Need advice

It might be helpful to try and increase your ferritin. It could do with being higher. Also have you ever tried reducing your mirapex. With movement in your shoulders and arms it does sound like DA (mirapex) augmentation. How can you be sure that augmentation of Mirapex is not the issue? It is very c...