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by ViewsAskew
Thu Mar 31, 2005 3:18 pm
Forum: Just Joined?
Topic: ATTENTION: ON-LINE SURVEY (interim report)
Replies: 23
Views: 11345

Tina, did you take it before? The site remembers you and if you've taken it before, it won't let you take it again. At least I think that's how it works, 'cus I've taken it and I get the same message. Hopefully Jumpy is reading and will respond if this is an incorrect answer.

Ann
by ViewsAskew
Wed Mar 30, 2005 11:22 pm
Forum: General Topics: RLS/WED
Topic: It's Early, Quality of Life Plea for 2005
Replies: 111
Views: 62170

Becat, it's working! Do you all remember a post a while back about We Move looking for stories? I sent mine in a month or so ago and was contacted today. We Move has contracted with a healthcare pulic relations firm to start a big PR campaign about movement disorders. The campaign will start in abou...
by ViewsAskew
Wed Mar 30, 2005 11:02 pm
Forum: Just Joined?
Topic: long time sufferer, trying to understand more
Replies: 8
Views: 2894

Hi Chop, If you were to try a doctor, even from this site, I'd highly recommend calling the doc first and talking to the nurse. If you ask questions like -what does the doctor often prescribe? -will the doc want a sleep study? -what happens when a patient has rebound or augmentation? and also tell t...
by ViewsAskew
Wed Mar 30, 2005 8:23 pm
Forum: General Topics: RLS/WED
Topic: antidepressants and RLS
Replies: 5
Views: 2276

Sugar, it's great that you did post your experience, because as you said, many of us have different ones! It's great that it doesn't bother you, too! Many people are bothered by it, though, that's why the rlshelp/org site is soooo important. It can give us a starting place of many, many people's exp...
by ViewsAskew
Wed Mar 30, 2005 7:50 pm
Forum: General Topics: RLS/WED
Topic: antidepressants and RLS
Replies: 5
Views: 2276

Whenever you want med info about RLS, always go to the rlshelp.org site. It's the best for that type of info; knlarse, all of the antidepressants are discussed here. Amyltriptiline can make RLS worse! It is an older tricyclic. I just can't emphasize how important it is to learn as much as you can. I...
by ViewsAskew
Wed Mar 30, 2005 7:42 pm
Forum: Physical Treatments
Topic: this new guest
Replies: 1
Views: 1616

Dear fellow members, I know how hard it is to leave some messages alone, but IMHO some people get their sh**** and grins from watching the reaction of those of us who are offended. What other purpose would such messages have other than to inflame people and incite them to respond in anger? If we lea...
by ViewsAskew
Wed Mar 30, 2005 3:02 pm
Forum: General Topics: RLS/WED
Topic: tolerance
Replies: 1
Views: 812

Hmmm, interesting article Corrie. My first thought is that this is a sretch though. First, it would only work for people with intermittant RLS. Second, for me at least, once it starts it is much harder to get rid of through meds than if I took the meds in the first place! Third, the DAs can take up ...
by ViewsAskew
Wed Mar 30, 2005 1:45 am
Forum: General Topics: RLS/WED
Topic: Just Venting Out Loud
Replies: 9
Views: 3177

Hey, girlfriend, what kind of a place would this be if you couldn't come here are get some of what you so kindly give? Vent, yell, pout, kick. We'll listen. And care. And our thoughts will be with you.

Hugs back to you.
Ann
by ViewsAskew
Wed Mar 30, 2005 12:20 am
Forum: Just Joined?
Topic: long time sufferer, trying to understand more
Replies: 8
Views: 2894

Dear Chop, You may be wrong. . . you won't know until you find a good doctor, learn as much as you can, and possibly try lots of combinations of meds to get one that works for you. I hope you're wrong, because if not, there are lots of us in your boat. . .I for one don't want to be :wink: . It's tru...
by ViewsAskew
Tue Mar 29, 2005 4:55 pm
Forum: General Topics: RLS/WED
Topic: Sleep positions?
Replies: 5
Views: 1818

Interesting, Sara. I'd say that the positions that reduce or stop the sensations for me are ones where I'm stretching/working the leg muscles. If my muscles are relaxed, RLS is the worse. If it's mild or starts shortly before the meds have started to work, standing, walking, stretching, lying stretc...
by ViewsAskew
Tue Mar 29, 2005 4:50 pm
Forum: Prescription Medications
Topic: Help !!!!!!
Replies: 11
Views: 4928

Jan, I do understand how frustrating it is. Do you have any way to 'shop' for a new doctor? Will your doctors listen to the info if you bring it in - such as copying information from the many good sites we have? Finding someone who listens, someone that is willing to learn new stuff, meds tha work f...
by ViewsAskew
Tue Mar 29, 2005 2:20 pm
Forum: Prescription Medications
Topic: Help !!!!!!
Replies: 11
Views: 4928

Hi Jan, Provigil is commonly given to RLSers. My doc wouldn't give it to me, so I'm not personally familiar with it, but others who have taken it like it a lot. If you can find a sub for the Klonopin, that might help, too, and then you wouldn't need the Provigil. Klonopin has an exceptionally long 1...
by ViewsAskew
Tue Mar 29, 2005 4:45 am
Forum: Just Joined?
Topic: Do I have this or don't I?
Replies: 8
Views: 2979

Dear Guest, I'm sure some others will be along shortly to add their input. It sounds like RLS to me. . . It happens at night and while at rest (1), there is an odd or painful sensation (2), moving it makes it go away (3). It's also happening more frequently over time which is common. The involuntary...
by ViewsAskew
Fri Mar 25, 2005 4:12 pm
Forum: Just Joined?
Topic: Itching... Penguin and others.... ???
Replies: 6
Views: 2241

Sara, I'm your first difficult poll answerer :lol: . I have itching that falls into two categories: Every night if I don't put on lotion before I get into bed, I start to itch and the itching sets off RLS. This was more prominent when I had mild RLS. I've been putting lotion on just as I get into be...
by ViewsAskew
Thu Mar 24, 2005 6:43 am
Forum: General Topics: RLS/WED
Topic: Starting Out - Links and Information updated 12/13/05
Replies: 29
Views: 13281

Just added another link to the end about the future of treatment - also gives good synopsis of current treatment and the algorithm.

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