Search found 13395 matches

by ViewsAskew
Wed Feb 02, 2005 10:26 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: No RLS, just FM & RA and despair
Replies: 11
Views: 10026

Those darm autoimmune disorders are the pits. My DH has celiac disease, constant weird pains and spasms that they attirbute to the autoimmune stuff, and has alopecia that comes and goes. One doc said he had fibro, but he doesn't have all the tender points. I need to remember to ask Jan about that; I...
by ViewsAskew
Wed Feb 02, 2005 5:30 am
Forum: General Topics: RLS/WED
Topic: Doctors, come on down!
Replies: 4
Views: 1514

OK, so I decided to write a letter. It may never get read, but what if each of us mailed such a letter to the doctors listed on this site that are close to us? The person opening the mail may toss it, but maybe they will pass it on. So, here's my first draft. Dear Dr. I hope that this letter reaches...
by ViewsAskew
Wed Feb 02, 2005 4:54 am
Forum: Just Joined?
Topic: Another newbie
Replies: 1
Views: 810

Hi Melissa, So sorry that you have RLS and need more information and assistance. Guess that's how most of use got here. This is a good place to be. There are lots of personal stories in the old posts and a ton of good information. If you have any time at all, starting by reading the old threads will...
by ViewsAskew
Wed Feb 02, 2005 4:46 am
Forum: Just Joined?
Topic: NEW MEMBERS AND CURRENT MEMBERS PLEASE HELP
Replies: 81
Views: 34931

Poker, I hope your post is not 'lost' in this thread. Sounds like you've had quite a bit to deal with. If I remember correctly from the RLS conference, spinal injuries and surgeries often cause or exascerbate RLS. The opiates often really help RLS, so coming off of them must have been very hard. The...
by ViewsAskew
Wed Feb 02, 2005 1:31 am
Forum: General Topics: RLS/WED
Topic: Doctors, come on down!
Replies: 4
Views: 1514

Doctors, come on down!

What if doctors starting reading this forum? Jumpy had gotten lots of info for his research. It just occured to me that doctors and researchers would gain SO MUCH if they stopped in once an awhile. We have some awesome ideas here. We're making correlations, we're sharing symptoms, we're doing resear...
by ViewsAskew
Wed Feb 02, 2005 1:25 am
Forum: Just Joined?
Topic: new member
Replies: 6
Views: 1395

Please take a gander at the links I suggested. They will tell you more than we could write it hundreds of posts.

http://beta.restlesslegs.org/phpBB2/viewtopic.php?t=549
http://beta.restlesslegs.org/phpBB2/viewtopic.php?t=94

Ann

edited 2, Feb, 2005
by ViewsAskew
Tue Feb 01, 2005 11:53 pm
Forum: General Topics: RLS/WED
Topic: Mirapex and anxiety
Replies: 2
Views: 1354

Hi Gracie. I don't do well on Mirapex. It didn't cause anxiety for me, but sudden bouts of sadness that came out of nowhere. I'd be walking down the street and suddenly think something and would be crying! I also suffered from instrusive thoughts and songs that would not stop. At a low dose, this do...
by ViewsAskew
Tue Feb 01, 2005 11:44 pm
Forum: Just Joined?
Topic: new member
Replies: 6
Views: 1395

Re: new member

Hi everyone I was diagnosed with RLS 2002 by process of ilimination. This was after my ignoring it for years because my family doctor dismissed my attemps at asking about it. I told him it was difficult to describe and he didn't listen after that. I also experience numbness and tingling on the bott...
by ViewsAskew
Tue Feb 01, 2005 6:21 pm
Forum: General Topics: RLS/WED
Topic: RLS and migraine, symptom onset?
Replies: 7
Views: 1725

In my family of seven RLSers on my mom's side, only two of us have headaches to any degree. My mom has full migraines, I have only had 2 or 3, but do get what I call minor migraines (need to be in a dark room and a little man is stabbing my eye with an ice pick). These always go away with a few hour...
by ViewsAskew
Tue Feb 01, 2005 5:28 am
Forum: General Topics: RLS/WED
Topic: Help identify leg pain?!?
Replies: 3
Views: 1247

Becat, that reminds me of a conversation I had with my sister-in-law this week. I am NOT a high-maintenance person and I sort of pride myself on that. I used to date a guy who called me "game" and I liked that. But when it comes to RLS? Now that's a different story. Look out anyone who gets between ...
by ViewsAskew
Tue Feb 01, 2005 3:35 am
Forum: Just Joined?
Topic: NEW & NEED HELP
Replies: 4
Views: 1341

Hi Carla, it SUCKS when that happens. I HATE when that happens. It's funny, sometimes I can figure it out, sometimes I can't. You sound like you already are pretty educated; maybe there will be some information here that will help. The old posts offer a whole host of info, even if it is time-consumi...
by ViewsAskew
Tue Feb 01, 2005 3:29 am
Forum: Just Joined?
Topic: New here
Replies: 25
Views: 4718

Aw, Becat. . .I wish that hadn't happened, girlfriend. I HATE when that happens. Whether it's two days, two weeks, or two years, when all of the sudden, WHAM! without any warning everything you thought you knew was right is wrong. Hope it was a mild aberration and will not happen again for several m...
by ViewsAskew
Mon Jan 31, 2005 7:47 pm
Forum: General Topics: RLS/WED
Topic: Sad, weary, and let down
Replies: 63
Views: 15848

Hi Corrie, Just to see what he'd say, I emailed Dr Mark B last night. He mentioned that just because I got sick from hydrocodone wouldn't mean I was allergic to all opioids. That's good news. Because if I can't take methodone or Ultram, then it's taking third tier drugs that have been reported to he...
by ViewsAskew
Mon Jan 31, 2005 3:16 am
Forum: General Topics: RLS/WED
Topic: Sad, weary, and let down
Replies: 63
Views: 15848

OK, I'm back to the funk. I thought I had a regimen that worked; well it did work for almost 3 weeks! Not meaning to whine, becasue the RLS has slowly been getting better since November. Getting off the high (for me) doses of Mirapex helped tremedously. But nothing I try will let me stop it complete...
by ViewsAskew
Sun Jan 30, 2005 6:07 am
Forum: General Topics: RLS/WED
Topic: Difficulty Using Forum
Replies: 8
Views: 2573

Bunny, here's what I did. I got here and signed in and then created a Favorites page in my browser for the main Index page. Each time I come here, I just click on the favorite from my browser menu and it takes me directly to the Index page. I don't even have to sign in again, because I never signed ...

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