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by ViewsAskew
Sat Nov 03, 2018 8:56 am
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 36
Views: 1931

Re: Social Security - US

I did some research after the initial diagnosis. The consensus seemed to be that you should always get a fibro dx from a rheumatologist. I figure I will push that sometime in the future. My body is doing such odd things lately. I had a sinus infection - haven't had one in 20 years. That was fun...no...
by ViewsAskew
Thu Nov 01, 2018 9:44 pm
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 36
Views: 1931

Re: Social Security - US

debbluebird wrote:Fibro can be very painful. My Doc says I have fibro.

My husband, SIL, and niece all have been diagnosed. Which is part of the reason I am skeptical. Can that many people really have it? Or is it being used when docs really don't know what the problem might be?
by ViewsAskew
Tue Oct 30, 2018 12:04 am
Forum: Just Joined?
Topic: Specialist to see?
Replies: 13
Views: 1689

Re: Specialist to see?

Audreylovescolor wrote:I'm not a member of RLS. Are most of you? And should I join?


I am for one reasons - no one else is trying to help us. THEY ARE! If a few dollars from me can combine with a few dollars from you and others, we can actually be part of the solution.
by ViewsAskew
Tue Oct 30, 2018 12:02 am
Forum: General Topics: RLS/WED
Topic: Just a rant
Replies: 5
Views: 373

Re: Just a rant

So sorry it is such a problem for you right now. I hope you find some way to improve it.
by ViewsAskew
Tue Oct 30, 2018 12:01 am
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 36
Views: 1931

Re: Social Security - US

debbluebird wrote:I always figured it was inflammation that makes mine high. Especially since I have really bad osteoarthritis.


I have no inflammatory issues that we can find. I have the pain, but if it is fibro, it isn't inflammatory. Who knows. The ANA wasn't high before, but this is going back years ago.
by ViewsAskew
Mon Oct 29, 2018 11:59 pm
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 36
Views: 1931

Re: Social Security - US

Polar Bear wrote:Very good news so far Ann.


Yes - mostly good. I do wish I knew why I had so much pain. It really doesn't seem right for fibro, but maybe that is what it is. I haven't started an AD yet because the one she prescribed wasn't covered by insurance.
by ViewsAskew
Mon Oct 29, 2018 11:57 pm
Forum: Prescription Medications
Topic: Prescription Price Differences
Replies: 3
Views: 1056

Re: Prescription Price Differences

I received a notice from my insurance company that I would be limited to a certain mg, not number.
by ViewsAskew
Sat Oct 27, 2018 7:12 pm
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 36
Views: 1931

Re: Social Security - US

OK - results are back. No lupus. YAY. I didn't think it likely. No Sjogren's, either. Already knew it wasn't RA. The SED was still high, and all three ANA tests were high. The titre was 1:40 this time. The doc says I am either one of those with a high ANA without anything going on...or it could be p...
by ViewsAskew
Sat Oct 27, 2018 12:16 am
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 428
Views: 101451

Re: Published Research - General Sleep and RLS (WED)

Huh! I found it interesting, also, that the doctors were from Austria and I wasn't familiar with most of them. Happy to see more people researching it as well as these very interesting findings!
by ViewsAskew
Thu Oct 25, 2018 11:03 pm
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 36
Views: 1931

Re: Social Security - US

This is our life. We must embrace what we have. I like that. I can't quite do it, but I like it. Embracing what we have includes embracing the fact that I don't really believe I'm dysfunctional, that I can't quite accept that I have a chronic illness; means embracing my thoughts that I can recover,...
by ViewsAskew
Thu Oct 25, 2018 11:00 pm
Forum: Prescription Medications
Topic: Neupro and Anxiety
Replies: 6
Views: 637

Re: Neupro and Anxiety

Any better?
by ViewsAskew
Thu Oct 25, 2018 10:59 pm
Forum: General Topics: RLS/WED
Topic: Just Need to Vent
Replies: 5
Views: 204

Re: Just Need to Vent

Our wonderful members and moderators already gave you so much great info. Just wanted to say I feel for you and hope you can find a way to improve the situation very soon!
by ViewsAskew
Thu Oct 25, 2018 6:02 am
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 54
Views: 1508

Re: Back Surgery and RLS plus spasms

GOOD!
by ViewsAskew
Fri Oct 19, 2018 8:25 pm
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 54
Views: 1508

Re: Back Surgery and RLS plus spasms

Sounds like it was not much fun. Glad you are home - really hoping it works out as you are thinking it will.
by ViewsAskew
Fri Oct 19, 2018 7:53 pm
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 36
Views: 1931

Re: Social Security - US

Sorry to hear of your problems going on. I got disability on the first try at age 60. It took 6 months. I got mine for short term memory loss. Of course the RLS and sleep apnea was the cause. I was in New Mexico when I applied. I went to a special law office that, that's all they did. I think I was...

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