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by ViewsAskew
Mon Sep 10, 2018 5:58 pm
Forum: General Topics: RLS/WED
Topic: Can RLS be muscles actually tensing up?
Replies: 8
Views: 128

Re: Can RLS be muscles actually tensing up?

My doc diagnosed me with fibro two weeks ago but I am not sure that is not accurate. It's more like a body-wide tendonitis along with myofascial trigger points. As you can guess, there is no such problem in the literature! And, she wants me to take an anti-depressant which could make the RLS worse....
by ViewsAskew
Mon Sep 10, 2018 5:27 am
Forum: Prescription Medications
Topic: Is it possible to worsen/get RLS from mirtazipine interdose withdrawal?
Replies: 8
Views: 137

Re: Is it possible to worsen/get RLS from mirtazipine interdose withdrawal?

They always talk about issues with passing the BBB for certain stuff, can't they just like inject something directly? Researchers are working in multiple systems to bypass it. None of these are related to RLS, but when I hear of them, I cannot help but think about how it could affect us! https://ww...
by ViewsAskew
Sun Sep 09, 2018 11:23 pm
Forum: General Topics: RLS/WED
Topic: Can RLS be muscles actually tensing up?
Replies: 8
Views: 128

Re: Can RLS be muscles actually tensing up?

Great, so I have something else doctors can't figure out. My tensing doesn't happen for a split second, it's gradual slow and constant, where I have to focus on the muscle to relax it before the process begins again. I also get tingling too. Sometimes when the tensing is very minimal, there is ting...
by ViewsAskew
Sun Sep 09, 2018 11:11 pm
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 415
Views: 96335

Re: Published Research - General Sleep and RLS (WED)

Interesting. I don’t get RLS/wed in my legs tho, only my upper left arm. I’m wondering if its the same mechanism. Edit - seems like they addres this. My brother always said he had RLS in his arm (never legs), and as my mom and sister and I had it, he thought that was what it was. About two years ag...
by ViewsAskew
Sun Sep 09, 2018 9:51 pm
Forum: Prescription Medications
Topic: Medication causing Apathy?
Replies: 30
Views: 317

Re: Medication causing Apathy?

Have you all watched the Foundation's webinar on why methadone works better for RLS than other opioids? But, just because it does, doesn't mean that it doesn't come with issues for some of us. And, if it does, it also doesn't mean another opioid will always work (though thankfully it often does). It...
by ViewsAskew
Sun Sep 09, 2018 9:46 pm
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 56
Views: 12163

Re: RLS, Depression and Anti-depressants

Ann, So sorry it's taken so long to get back. Been struggling a bit with the password situation. Last month, I finally found a surgeon that I feel comfortable having the surgery with. he wanted me to try the physical therapy and I was surprised that it really helped. Still in a motorized scooter pa...
by ViewsAskew
Sun Sep 09, 2018 9:44 pm
Forum: General Topics: RLS/WED
Topic: How long have you had RLS/WED
Replies: 8
Views: 130

Re: How long have you had RLS/WED

Mine started as a teenager, but didn't get to this level until my late thirties.
by ViewsAskew
Sun Sep 09, 2018 9:44 pm
Forum: Prescription Medications
Topic: Tolerance issues in general
Replies: 8
Views: 134

Re: Tolerance issues in general

Thanks for this discussion. This is especially timely for me since I am starting some sort of medication change (after 2.5 yrs) due to mental health issues brought on by the methadone that I have been taking. I'm not sure where this will take me, but apparently it is once again time for a change. I...
by ViewsAskew
Thu Sep 06, 2018 4:39 am
Forum: Just Joined?
Topic: SEPTEMBER 2018 - NEW MEMBERS
Replies: 35
Views: 415

Re: Welcome to SallyWheatley

Wednesday, September 5 Welcome to SallyWheatley, who has suffered with RLS for many years since her 20's and she is now 64. The last several years she has been on Requip and is now up to the highest dosage. Her symptoms have gotten much worse due to augmentation. Her doctor knows very little about ...
by ViewsAskew
Thu Sep 06, 2018 4:38 am
Forum: General Topics: RLS/WED
Topic: RLS Foundation hosting a Patient Symposium
Replies: 28
Views: 993

Re: RLS Foundation hosting a Patient Symposium

sleepdancer2 wrote:Anyone in Los Angeles making the 2+ hour drive down?


I am in LA and am thinking about it. Given how crazy my legs can be, I am getting averse to scheduling things...
by ViewsAskew
Wed Sep 05, 2018 10:56 pm
Forum: General Topics: RLS/WED
Topic: Can RLS be muscles actually tensing up?
Replies: 8
Views: 128

Re: Can RLS be muscles actually tensing up?

That sounds more like a periodic limb movement. In RLS, you have the urge to move and so you move. That said, when my RLS is very strong and if I try not to move, my muscles seem to tense without me deliberately moving them. Just for a second, then they release. Of course, this could be what they ca...
by ViewsAskew
Wed Sep 05, 2018 10:50 pm
Forum: General Topics: RLS/WED
Topic: RLS or something else? Part 2
Replies: 84
Views: 13797

Re: RLS or something else? Part 2

Adventure is putting it mildly!
by ViewsAskew
Wed Sep 05, 2018 5:41 pm
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 415
Views: 96335

Re: Published Research - General Sleep and RLS (WED)

I don't think I have seen this posted. More work from Johns Hopkins' staff, including Dr. Allen. From the lead, "Johns Hopkins Medicine researchers say new experiments using magnetic pulse brain stimulation on people with moderate to severe restless legs syndrome (RLS) have added to evidence th...
by ViewsAskew
Thu Aug 30, 2018 9:47 pm
Forum: General Topics: RLS/WED
Topic: RLS Foundation hosting a Patient Symposium
Replies: 28
Views: 993

Re: RLS Foundation hosting a Patient Symposium

Rustsmith wrote:I have been told that due to budget constraints, they are not currently planning to record or transcribe the proceedings. They are also not planning to make the slides available.


Too bad. Would be nice if there were some less expensive recording and storage options.
by ViewsAskew
Thu Aug 30, 2018 9:45 pm
Forum: General Topics: RLS/WED
Topic: Need Sleep
Replies: 16
Views: 476

Re: Need Sleep

that was pretty fast for the sleep study.

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