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by ViewsAskew
Sat Mar 09, 2019 12:27 am
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 36
Views: 318

Re: Very Tired

I hate the RLS! When it is bad, I hate it more than the PLMs. When the PLMs are bad, I hate them more. I guess I actually hate them equally!
by ViewsAskew
Sat Mar 09, 2019 12:26 am
Forum: Prescription Medications
Topic: Cortisone Injection
Replies: 4
Views: 95

Re: Cortisone Injection

I can only say that I've had cortisone in my foot, knee, and fingers (multiple times for trigger fingers) and it has never bothered my RLS. No idea if it does - but I do not recall hearing that it can.
by ViewsAskew
Sat Mar 09, 2019 12:24 am
Forum: Augmentation
Topic: Augmentation again (of course)
Replies: 32
Views: 479

Re: Augmentation again (of course)

Hi Oceanwalker - sorry you are back for this reason - but nice to see you again! I would not take the Sinemet - carbidopa/levadopa. It is almost guaranteed to make things worse because you are augmented. I had the worst 36 hours of my RLS life when augmented and my doc had me do the same. They belie...
by ViewsAskew
Wed Mar 06, 2019 11:19 pm
Forum: Prescription Medications
Topic: Suggestions on Combinations, or other alternatives?
Replies: 4
Views: 100

Re: Suggestions on Combinations, or other alternatives?

Is there any way you can get to an RLS quality care center? Many of us have tried untold combinations - they tend to be specific to the person, though. A good doctor would be able to help you figure out how to try them and what to try.
by ViewsAskew
Wed Mar 06, 2019 8:28 am
Forum: General Topics: RLS/WED
Topic: Weird question about hairy legs and rls
Replies: 2
Views: 44

Re: Weird question about hairy legs and rls

Can you stand to wear any socks while sleeping? I wonder if your legs were covered if the friction would be between the sock and the sheet, rather than you leg.
by ViewsAskew
Wed Mar 06, 2019 8:17 am
Forum: Just Joined?
Topic: Surviving overnight plane trips
Replies: 12
Views: 291

Re: Surviving overnight plane trips

There is a push pedal foot rest thingee that some people use on planes. I have not, but have heard of others who say it lets them exercise while seated and keeps them from having to walk. I take it that you have no medications that work? If you have not tried Sinemet (called that in the US, it is ca...
by ViewsAskew
Wed Mar 06, 2019 8:14 am
Forum: Augmentation
Topic: Can I get augmentation using Mirapex twice a week?
Replies: 5
Views: 185

Re: Can I get augmentation using Mirapex twice a week?

I would agree with Steve. I augmented on it in about a week the first time. After I finally was able to stop it, I stayed off for a couple years. But, it also works very well for me and I wanted to reduce my opioid use, so I started using it again. Even though it only took a week for me to augment, ...
by ViewsAskew
Tue Mar 05, 2019 10:15 am
Forum: Prescription Medications
Topic: Paradoxical reaction on gabapentin?
Replies: 12
Views: 210

Re: Paradoxical reaction on gabapentin?

Hope you get some answers, leggo.

I think whatever is going on with me is likely some silly thing...but as my body continues to do weird stuff, I understand the frustration!
by ViewsAskew
Mon Mar 04, 2019 7:22 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 72
Views: 2191

Re: Attempting to get off Ropinirole - again

So glad to hear you are down to 2 mg already! And, curqlink, my story was similar to yours. I didn't have trouble from .75 to .125 of pramipexole. But, once I was there, reducing it any further seemed impossible.
by ViewsAskew
Mon Mar 04, 2019 2:59 am
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 42
Views: 1845

Re: Experience with Injectafer?

Oh, my!

The Whooping Cough outbreak here in So Cal is quite terrifying. Every time I walk outside and someone is coughing, I have to wonder if I am next. So sorry you have it along with everything else.
by ViewsAskew
Sun Mar 03, 2019 7:49 am
Forum: Prescription Medications
Topic: Paradoxical reaction on gabapentin?
Replies: 12
Views: 210

Re: Paradoxical reaction on gabapentin?

Have you read the book, How Doctors Think? Really helped me understand some of the answers to the questions you posed. One of the takeaways is that when it's gets beyond a doctor's easy answer, they get frustrated, too, and they cannot admit they cannot solve it, so they simply start to ignore you a...
by ViewsAskew
Sun Mar 03, 2019 4:53 am
Forum: Prescription Medications
Topic: Paradoxical reaction on gabapentin?
Replies: 12
Views: 210

Re: Paradoxical reaction on gabapentin?

I hope you get some resolution, soon, leggo. I totally understand that feeling of being in the middle of several docs and no one sure what is happening, but clearly someone is going on. The MS possibility would be scary to anyone.
by ViewsAskew
Sun Mar 03, 2019 4:48 am
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 42
Views: 1845

Re: Experience with Injectafer?

Polar Bear wrote:95% reduction in symptoms. That is like a miracle. !!


Indeed! I am thrilled with my 45-55% decrease - I can only imagine a 95% one!
by ViewsAskew
Sun Mar 03, 2019 12:15 am
Forum: Physical Treatments
Topic: Extreme compression DIY
Replies: 8
Views: 2200

Re: Extreme compression DIY

I haven't had success with trigger point release. In fact, about half the time after a good massage that included some trigger point release, I get RLS that night! I'm not giving up massage, however, because it does leave me feeling like all my muscles and nerves are back in harmony with each other...

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