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by ViewsAskew
Thu Feb 07, 2019 8:31 am
Forum: Prescription Medications
Topic: It IS about Quality of Life
Replies: 14
Views: 804

Re: It IS about Quality of Life

Your last sentence says SO much. Isn't that what most of us want ? To be seen for who we actually are? Well, at least HERE you are! I use methadone. I don't think it is great for pain. I have fibro, RLS, and a bunch of tendon issues - hips, legs, arms all have chronic tendonitis issues. I currently ...
by ViewsAskew
Thu Feb 07, 2019 8:22 am
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 47
Views: 588

Welcome to BookmanJoe

Thursday, Feb 7th, we also welcome BookmanJoe. BookmanJoe has always had RLS, but it's gotten worse the last few years. It often does get worse as we age. But, other things can cause that and should be looked into. Poke around if you like, or post a new topic in one of the forums and let us know abo...
by ViewsAskew
Thu Feb 07, 2019 8:17 am
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 47
Views: 588

Welcome to He1ena

Thursday, Feb 7th, our newest member is He1ena. He1ena has been in a very rough patch for a few months; no sleep at all in the last 48 hours! So sorry you are having such a difficult time, He1ena! Hope that you can find some help here. Please do start a new post and let us know about your situation ...
by ViewsAskew
Tue Feb 05, 2019 12:54 am
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 94
Views: 2910

Re: Back Surgery and RLS plus spasms

Over all, sounds like this was a very good thing.
by ViewsAskew
Fri Feb 01, 2019 2:07 am
Forum: Everything Else...just no RLS/WED!
Topic: Very Sad
Replies: 11
Views: 952

Re: Very Sad

Oh, Deb. So, so sorry for your loss. His wife and kids must be beside themselves. Thank you for the warning. My husband has been taking something for reflux for years. He has regular colonoscopies (celiac), but not uppers! His dr wanted one last fall and he said no. I am telling him right now to mak...
by ViewsAskew
Thu Jan 31, 2019 12:11 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Proferrin/Iron Heme Polypeptide Tablet
Replies: 19
Views: 473

Re: Proferrin/Iron Heme Polypeptide Tablet

I like fried chicken livers, but have bad memories of beef liver. My Mom (who had RLS) went through a phase when she made me and my brothers and sisters eat small amounts of raw beef liver daily when we were children. Might actually have been a good idea, but we didn't think so. My grandmother boug...
by ViewsAskew
Wed Jan 23, 2019 12:28 am
Forum: Prescription Medications
Topic: Opiates and Non-Texas Prescribers
Replies: 10
Views: 215

Re: Opiates and Non-Texas Prescribers

Thank you all for your comments and suggestions. I was able to work with my insurance and Walmart to allow for a two month prescription that I carried to Texas. This only worked because my pharmacists of the last 15 years advocated for me and my physician was willing to work out a prior authorizati...
by ViewsAskew
Mon Jan 21, 2019 7:47 pm
Forum: Prescription Medications
Topic: What DA to take
Replies: 12
Views: 323

Re: What DA to take

Julie - great attitude (from my perspective, at least!). I think of all the people who aren't aware of the alternatives and feel stuck and horrible with their regimen. How grateful I am for you and all the other people here who continue to educate me and from whom I draw inspiration.
by ViewsAskew
Sun Jan 20, 2019 9:14 pm
Forum: General Topics: RLS/WED
Topic: Esophageal Spasm and RLS
Replies: 11
Views: 139

Re: Esophageal Spasm and RLS

I have to make the appointment with the hematologist - I just receive the authorization in the mail yesterday, so I'll make the appointment tomorrow - hopefully they can see me soon. I think Buchfuhrer wrote Injectafer on the order. I don't have the results from the most recent blood tests - just ha...
by ViewsAskew
Sun Jan 20, 2019 8:50 pm
Forum: Physical Treatments
Topic: Cold Turkey Blues
Replies: 11
Views: 231

Re: Cold Turkey Blues

YAY! Likely you were experiencing augmentation. And now you are not. That is wonderful.
by ViewsAskew
Sat Jan 19, 2019 10:41 pm
Forum: General Topics: RLS/WED
Topic: Esophageal Spasm and RLS
Replies: 11
Views: 139

Re: Esophageal Spasm and RLS

No - I never figured it mattered to get it diagnosed as I didn't think they could do anything about it. I have had them since my late twenties. Sometimes it is worse than others. Does anything else make your chest feel that way? Never occurred to me that it was something else. It isn't GERD - as I w...
by ViewsAskew
Fri Jan 18, 2019 8:07 pm
Forum: General Topics: RLS/WED
Topic: Esophageal Spasm and RLS
Replies: 11
Views: 139

Re: Esophageal Spasm and RLS

ALL THE TIME!!!!!

OK, that was hyperbole, but I do have it. And, now that you mention it, I had not had any in a long time, but in the last month, I've had them almost daily. That coincides with my low iron reading after the last infusion is wearing off.

Interesting...
by ViewsAskew
Fri Jan 11, 2019 3:23 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 72
Views: 2191

Re: Attempting to get off Ropinirole - again

The reason to do it cold turkey is so that it hurts for less time. Remember that if the taper becomes too agonizingly everlasting. As hellish as it is to jump ship, I'd do it again. I did the taper - it actually was OK to a point. But, at some point, it was just endless hell. Betty, that may be a g...
by ViewsAskew
Fri Jan 11, 2019 3:22 am
Forum: General Topics: RLS/WED
Topic: Characteristics of PLMD/PLMs
Replies: 10
Views: 285

Re: Characteristics of PLMD/PLMs

Deb, all the standard descriptions of the movements go out the window when medication side effect or augmentation come into play. If you've seen my sleep video, my movements during augmentation look nothing like expected. I was accused of faking it because my movements did not fit "normal"...
by ViewsAskew
Fri Jan 11, 2019 3:21 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron supplementation & Constipation
Replies: 25
Views: 661

Re: Iron supplementation & Constipation

To add to the perineum discussion...if you have a vaginal canal, you can really feel it easily! I learned that when I was in college, having a pelvic exam and the doctor said, "Oh, you need to defecate?" and I was horrified, lol.

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