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by ViewsAskew
Fri Oct 05, 2018 2:53 am
Forum: General Topics: RLS/WED
Topic: RLS Patient Symposium
Replies: 20
Views: 701

Re: RLS Patient Symposium

Just after I posted, I received a link from Zibby that I could open in my PC - I had painstakingly typed the URL for Box...and likely had an error. I was not up to finding it at the time. With the link I didn't have to try again! YAY, Zibby!
by ViewsAskew
Fri Oct 05, 2018 12:28 am
Forum: General Topics: RLS/WED
Topic: Oct 16 Webinar with Dr Winkelman
Replies: 0
Views: 465

Oct 16 Webinar with Dr Winkelman

https://www.rls.org/get-involved/education-events? Use that link to register and submit your questions! Date: Tuesday, October 16, 2018 Time: 1 pm PT | 2 pm MT | 3 pm CT | 4 pm ET Speaker: John Winkelman, MD, PhD Dr. John Winkelman will answer your questions submitted with registration. Please under...
by ViewsAskew
Fri Oct 05, 2018 12:22 am
Forum: General Topics: RLS/WED
Topic: RLS Patient Symposium
Replies: 20
Views: 701

Re: RLS Patient Symposium

Did anyone download the files? I tried today and failed. The download link isn't active, sadly. I shared with my google drive...and failed again (they converted the PPTs to txt files). I didn't have the energy to download from drive to see if I could rename and get them to work.
by ViewsAskew
Fri Oct 05, 2018 12:19 am
Forum: General Topics: RLS/WED
Topic: RLS Patient Symposium
Replies: 20
Views: 701

Re: RLS Patient Symposium

2BassetMom wrote:Ann, My daughter along with my husband make it possible for me to lead an active life. She is very special indeed!


:D
by ViewsAskew
Thu Oct 04, 2018 8:51 pm
Forum: General Topics: RLS/WED
Topic: RLS Patient Symposium
Replies: 20
Views: 701

Re: RLS Patient Symposium

I was at the symposium also and had my daughter take notes. As soon as she types them up I'll be able to add to this conversation. One item I found disturbing also is #5. I was surprised that these experts didn't have much input on the suicide issue. If they could read the stories on this forum and...
by ViewsAskew
Thu Oct 04, 2018 5:48 am
Forum: General Topics: RLS/WED
Topic: RLS Patient Symposium
Replies: 20
Views: 701

Re: RLS Patient Symposium

badnights wrote:Ah, I see from the other thread that Ann has elected me to look over my notes and report back! I will do so in the next day or two.


Sorry! I just knew you had them...and I didn't, lol. Seemed the only option :-).
by ViewsAskew
Thu Oct 04, 2018 5:47 am
Forum: General Topics: RLS/WED
Topic: RLS and Alcohol remedies....?
Replies: 5
Views: 355

Re: RLS and Alcohol remedies....?

I am with Beth - sometimes nothing happens. Sometimes it's as if the devil visited me. And, sometimes in between. So, I certainly haven't found a solution!
by ViewsAskew
Wed Oct 03, 2018 6:27 am
Forum: Physical Treatments
Topic: Restiffic
Replies: 11
Views: 6323

Re: Restiffic

badnights wrote:Ann - you should make a suggestion for next time in the symposium-end survey! Maybe Relaxis maker would consider it too.


If I ever give feedback (so behind...), I will!
by ViewsAskew
Wed Oct 03, 2018 6:25 am
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 88
Views: 2399

Re: Back Surgery and RLS plus spasms

As usual I am getting very nervous before this back surgery. I have had so many surgeries, I have lost count. ( knees, hips, shoulder, etc) This one will probably be the most challenging, the most pain and the most restrictions, for the longest period of time. Because of the doctors appt yesterday,...
by ViewsAskew
Tue Oct 02, 2018 9:19 am
Forum: Prescription Medications
Topic: Antipsychotics? Car accedent???
Replies: 17
Views: 685

Re: Antipsychotics? Car accedent???

RLS Ouch - am much too tired to answer tonight, but wanted to say I saw the post and will answer soon.
by ViewsAskew
Tue Oct 02, 2018 9:14 am
Forum: General Topics: RLS/WED
Topic: RLS Foundation hosting a Patient Symposium
Replies: 32
Views: 1951

Re: RLS Foundation hosting a Patient Symposium

Beth took copious notes. I took none as she was hard at work, lol. She had a LONG trip home today, so I'd guess we won't hear from her for a few days, but not sure. I managed to get sick while there, so am recuperating - just watched some tv and am headed back to bed. And 2bassettmom was there, so s...
by ViewsAskew
Fri Sep 28, 2018 6:31 am
Forum: Physical Treatments
Topic: Restiffic
Replies: 11
Views: 6323

Re: Restiffic

Boy - just had a thought...wouldn't it be wonderful if they had these units available at the RLS Patient Symposium so that attendees could check on out for the weekend?
by ViewsAskew
Fri Sep 28, 2018 6:29 am
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 88
Views: 2399

Re: Back Surgery and RLS plus spasms

debbluebird wrote:I am really hoping to get off the drugs.


I sure would love to!
by ViewsAskew
Fri Sep 28, 2018 6:29 am
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 439
Views: 104400

Re: Published Research - General Sleep and RLS (WED)

Here is a new publication that discusses co-morbidities of RLS and appears to present a new idea about how primary and secondary RLS are really the same thing. It will appear in Lancet, but so far only the abstract is available. https://www.sciencedirect.com/science/article/pii/S1474442218303119 Huh!
by ViewsAskew
Fri Sep 28, 2018 5:55 am
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 61
Views: 15391

Re: RLS, Depression and Anti-depressants

Definitely be careful! Even mushroom experts can be fooled at times. But, what an interesting thing that it worked like that!

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