Search found 595 matches

by Betty/WV
Sun Aug 03, 2014 1:04 pm
Forum: General Topics: RLS/WED
Topic: Venting!
Replies: 62
Views: 11113

Re: Venting!

Thanks everyone, nice hearing from you. Even though the WED/RLS is doing some better with the Mirapex, the pain level is bad. I am in pain almost all the time. Sometimes not as bad as others but it is always there. Very hard for me to do anything. Thankful for my doctor who, at least, will prescribe...
by Betty/WV
Fri Aug 01, 2014 4:37 pm
Forum: General Topics: RLS/WED
Topic: Venting!
Replies: 62
Views: 11113

Re: Venting!

Hi Everyone: I haven't been around for a while. The WED/RLS is doing better with the Mirapex but still have problems with it. But now arthritis, fibromyalgia, and a multitude of other health problems on top of the WED/RLS has got me down. I seldom go anywhere, unless I absolutely have too. Reading y...
by Betty/WV
Sun Apr 06, 2014 1:42 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Restless Legs Syndrome May Signify Bigger Health Problems
Replies: 7
Views: 3195

Re: Restless Legs Syndrome May Signify Bigger Health Problem

Beth: Thanks for the advice. I do some of the things you suggested. I do do things liike go to lunch, get groceries, I also go to religious meetings. I have always been very active in my religion, less so now. But do what I can. But doing all these things, even once in a while, is very difficult. Ge...
by Betty/WV
Sat Apr 05, 2014 5:06 pm
Forum: General Topics: RLS/WED
Topic: POEM - This is worth reading
Replies: 3
Views: 915

Re: POEM - This is worth reading

Wonderfully written. Thank you, and so true, no one can understand unless they experience it themselves. Thats why, when I stumbled on this site, it was the first time I heard from people that understood exactly where I was coming from.

BETTY/WV
by Betty/WV
Sat Apr 05, 2014 4:54 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Restless Legs Syndrome May Signify Bigger Health Problems
Replies: 7
Views: 3195

Re: Restless Legs Syndrome May Signify Bigger Health Problem

I totally agree with this. I have had WED/RLS for decades and each year it gets worse. I have had a heart attack, 11 years after that had another stent in my heart. I have fibro, really bad. And arthritis, both types. I haven't slept for more than 3 hours at time for years. I could go on and on but ...
by Betty/WV
Tue Oct 22, 2013 10:55 am
Forum: General Topics: RLS/WED
Topic: Update
Replies: 32
Views: 3977

Re: Update

Thanks for the information about the book. I'll check Amazon.com. That is where I usually get my books. I got the results from my bone scan, negative. No bone cancer etc. And my sed rate dropped from 58 to 49. i really think it is the arthritis, fibro and WED. Thats enough to give anyone pain. Plus ...
by Betty/WV
Mon Oct 21, 2013 5:11 pm
Forum: General Topics: RLS/WED
Topic: Update
Replies: 32
Views: 3977

Re: Update

Thanks Mary, I only sleep 2 or 3 hours at a time also. I don't know if this is because of pain or what. Of course, as we age we don't sleep well. Even people with out WED/RLS don't sleep well. I have never heard of kratom. I will do some research on it. Thanks for your email.......Wish you peace and...
by Betty/WV
Mon Oct 21, 2013 2:51 pm
Forum: General Topics: RLS/WED
Topic: Update
Replies: 32
Views: 3977

Re: Update

I have tried neurontin and it did nothing for me, so the doctor took me off it....Sometimes I would just like to SCREAM. I'm 77 and I am tired of dealing with this. And no one realizes what I'm dealing with. I think mainly the pain is fibro and arthritis. I've been diagnosed with both. But I certain...
by Betty/WV
Mon Oct 21, 2013 9:18 am
Forum: General Topics: RLS/WED
Topic: Update
Replies: 32
Views: 3977

Re: Update

Hi Beth: I think the doctor has taken the right path. I think once he gets all the results of these tests he has scheduled, then he will go from there. He has suggested changing my Mirapex. Only thing is the Neupro Patch and Horizant have the same side effects as Mirapex. "One Day At a Time&quo...
by Betty/WV
Thu Oct 17, 2013 10:20 am
Forum: General Topics: RLS/WED
Topic: Update
Replies: 32
Views: 3977

Re: Update

Thank you, aveerik; I was a little anxious about having the bone scan done, as I have to lie very still for about an hour as a camera goes over my body. It would be impossible for me to lie still that long. As anyone with WED/RLS would know. So I called the doctor (you wouldn't think I would have to...
by Betty/WV
Mon Oct 14, 2013 11:26 pm
Forum: General Topics: RLS/WED
Topic: Update
Replies: 32
Views: 3977

Re: Update

0.25 mg twice a day and I did tell him about the compulsions. He has had a sonagram done checking for a blood clot in my leg (where I have pain). Did blood work. Sed rate was high---58 --should have been below 30. Has rechecked the sed rate, don't have results yet. Also I am having a whole body bone...
by Betty/WV
Tue Sep 24, 2013 9:32 am
Forum: General Topics: RLS/WED
Topic: Update
Replies: 32
Views: 3977

Re: Update

Robin: As to asking the Dr. for samples. I don't know where you live, I am here in West Virginia, USA. I used to always get samples from my doctors when I could. I don't know why but it is now hard to get samples... The doctors don't seem to have them as much as they used too. Also, when I used to g...
by Betty/WV
Tue Sep 24, 2013 9:20 am
Forum: General Topics: RLS/WED
Topic: Update
Replies: 32
Views: 3977

Re: Update

I'm so appreciative of your posts. Yes, I have 2 of Dr. B's books plus a couple other books on WED/RLS. That was a good idea, Ann, about creating a goal for my Dr.'s appt. Really my problem isn't just the WED/RLS, since I have multiple ailments, arthritis, fibro., heart, high blood pressure, high ch...
by Betty/WV
Mon Sep 23, 2013 6:35 pm
Forum: General Topics: RLS/WED
Topic: Update
Replies: 32
Views: 3977

Re: Update

No, I don't take anyone with me. My husband will take me but I don't want him to go into the examining room with me. I don't want him there when they weigh me. LOL as if he didn't know how fat I am. And he doesn't understand my condition anyway. I alway make notes also, so I won't forget anything. S...
by Betty/WV
Mon Sep 23, 2013 2:50 pm
Forum: General Topics: RLS/WED
Topic: Update
Replies: 32
Views: 3977

Re: Update

Thanks Beth: I am experiencing compulsive behaviors, and I think the weight gain may be due to compulsive overeating. I have taken neurontin before and after checking with my pharmacy, Horizant is a long acting neurontin and the neurontin didn't help when I took it. The co pay for the Neupro Patch i...

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