Search found 595 matches

by Betty/WV
Sun Jan 27, 2013 5:36 pm
Forum: General Topics: RLS/WED
Topic: Hello.....am still here
Replies: 39
Views: 6813

Re: Hello.....am still here

rthom: Boy, your post sounded like I wrote it. I hated night time. I would almost get an anxiety attack, because I knew what was going to happen, just like you said, I would cry, walk the floor, watch the clock praying for the night to be over. Now after many many years of that I have my days and ni...
by Betty/WV
Sun Jan 27, 2013 5:27 am
Forum: General Topics: RLS/WED
Topic: Hello.....am still here
Replies: 39
Views: 6813

Re: Hello.....am still here

rthom: The meds you mentioned that made the tinnuitus worse are also a "no no" for WED/RLS . Maybe there is a connection.
by Betty/WV
Sat Jan 26, 2013 2:49 am
Forum: General Topics: RLS/WED
Topic: Hello.....am still here
Replies: 39
Views: 6813

Re: Hello.....am still here

Dear Moonlight: I am so sorry you are suffering so much. Like I said before, I don't know how people even function with these dibilitating illnesses. It is so sad. I think that is why I like the phrase so much, "Be especially kind to everyone you meet, because everyone is fighting some kind of ...
by Betty/WV
Wed Jan 23, 2013 4:05 pm
Forum: General Topics: RLS/WED
Topic: Hello.....am still here
Replies: 39
Views: 6813

Re: Hello.....am still here

Thats terrible, I didn't realize it got that bad, but thinking about it, I can understand how it could. Sometimes I wonder how we survive these things. I hope you get relieve from your tinnitus.

BETTY/WV
by Betty/WV
Wed Jan 23, 2013 5:13 am
Forum: General Topics: RLS/WED
Topic: Hello.....am still here
Replies: 39
Views: 6813

Re: Hello.....am still here

I had it at one time but it seems to have gone away. Just once in a while it will bother me some but not much or for long. And nothing is worse than WED/RLS........
BETTY/WV
by Betty/WV
Tue Jan 22, 2013 8:42 pm
Forum: General Topics: RLS/WED
Topic: Hello.....am still here
Replies: 39
Views: 6813

Re: Hello.....am still here

Thanks rthom: Yes, I have been diagnosed with fibro, many years ago, in fact. I took neurontin for a long time but it didn't help much. I am now taking Mirapex for the WED/RLS and it helps with the RLS but doesn't help with the sleep. In fact, if you read the paper that comes with the med., one of t...
by Betty/WV
Tue Jan 22, 2013 7:56 pm
Forum: General Topics: RLS/WED
Topic: Hello.....am still here
Replies: 39
Views: 6813

Re: Hello.....am still here

yes, PB, I need some friends close by, like the ones here at RLS.org. I'm in a real funky mood and have been for a while. I have to try to get out of it. If I try to tell anyone what is going on with me, they just don't understand. So, I don't say much. I need to post more on the discussion board. I...
by Betty/WV
Tue Jan 22, 2013 2:46 pm
Forum: General Topics: RLS/WED
Topic: Hello.....am still here
Replies: 39
Views: 6813

Re: Hello.....am still here

Hi everyone: I'm still around too. Just haven't been on for a while. WED/RLS is better but everything else is worse. Its great moonlight that you have your music groups and painting to distract you. I am becoming a hermit. I don't want to go out anymore orreally do anything. Sometimes I stay in my n...
by Betty/WV
Mon Dec 17, 2012 1:24 pm
Forum: General Topics: RLS/WED
Topic: Calf Fasciculations
Replies: 9
Views: 1303

Re: Calf Fasciculations

Hello everyone, was reading the post about fasciculations (had to look it up in the dictionary) thought I knew what it meant. I have had one whole knee replacement and really need something done with the other knee but I am trying to do without surgery again. But I have the same "fasciculations...
by Betty/WV
Mon Dec 17, 2012 1:02 pm
Forum: General Topics: RLS/WED
Topic: Falling Asleep at Wheel Solutions
Replies: 11
Views: 1434

Re: Falling Asleep at Wheel Solutions

Thanks again, Majoraward
:D :D
by Betty/WV
Mon Dec 17, 2012 1:00 pm
Forum: General Topics: RLS/WED
Topic: Falling Asleep at Wheel Solutions
Replies: 11
Views: 1434

Re: Falling Asleep at Wheel Solutions

Ok, I'll let you all know how it works. I ordered 2 different ones last night from Amazon.com. They have them at all different prices. And they did have the one the person posted about, that he lost, called Doze, for $29. I ordered 2 of the cheaper ones. If they don't work well I will order Doze. :D...
by Betty/WV
Mon Dec 17, 2012 7:48 am
Forum: General Topics: RLS/WED
Topic: Falling Asleep at Wheel Solutions
Replies: 11
Views: 1434

Re: Falling Asleep at Wheel Solutions

Thank you, thank you. I didn't know such a device existed. I was falling asleep driving and had a really close call. So I didn't drive for over a year. Really is depressing, when you can't drive. I have started back but am very careful and don't drive very far or for very long. I am still nervous ab...
by Betty/WV
Sat Aug 25, 2012 10:31 pm
Forum: Prescription Medications
Topic: Heart Stopper: Mirapex And Undisclosed Data
Replies: 13
Views: 2976

Re: Heart Stopper: Mirapex And Undisclosed Data

I am doing better than before. Not perfect but I can deal with it now. I was getting to the point where I was desperate. At least now I can lay down, and sleep. My sleep is fragmented, I sleep 3 or so hours at a time, but when I wake up after that time, I at least can go back to sleep. Thanks for yo...
by Betty/WV
Thu Aug 23, 2012 4:14 am
Forum: Prescription Medications
Topic: Heart Stopper: Mirapex And Undisclosed Data
Replies: 13
Views: 2976

Re: Heart Stopper: Mirapex And Undisclosed Data

I think in Dr. B's book it says to start with .125 but my doctor started with .25. I talked to Dr. B about it and he told me to try to lower the dose and if it was to low, I would know it. And I did, so I went back on the original dose. So, I will stay on the Mirapex, until I can't take it any longe...
by Betty/WV
Wed Aug 22, 2012 9:49 pm
Forum: Prescription Medications
Topic: Heart Stopper: Mirapex And Undisclosed Data
Replies: 13
Views: 2976

Re: Heart Stopper: Mirapex And Undisclosed Data

Thanks for your insight, I could try to cut down on the Mirapex. I take .25 mg twice a day. Which is higher than what is recommend to begin with. Once I tried to cut back and the old RLS popped its head up again. But I could try again to see what happens. And I take other meds which always make me w...

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