Search found 113 matches

by Heronak
Sat Jul 16, 2005 3:04 pm
Forum: Just Joined?
Topic: RLS since 11 yrs. old
Replies: 4
Views: 1632

Lynnie, I'm not worried about the gambling part, but compulsive shopping could be a problem! No, actually it's mainly the augmentation and general crappy feeling of having so many drugs on board that I dislike. We must always balance the side effects with the great results we can get from various me...
by Heronak
Fri Jul 15, 2005 4:18 pm
Forum: Prescription Medications
Topic: Something Disturbing I Just Found Re: Dopamine Agonists
Replies: 7
Views: 3459

Mirapex

Laurie, I'm a bit worried about increasing my .125 mg Mirapex dose (as it's no longer very effective) for a variety of reasons, this new study included. That would be just lovely, becoming even more of a compulsive shopper/eater! Good for you, being well informed and prepared when discussing treatme...
by Heronak
Fri Jul 15, 2005 4:14 pm
Forum: Prescription Medications
Topic: Mirapex & Wellbutrin XL
Replies: 10
Views: 5155

Mirapex

Susan, I've been on .125 mg of Mirapex for over a year with great results for the first 12 months (6ish hrs of uninterrupted sleep). The last several months it has lost much of it's effectiveness and the RLS is again ruling my nights. I'm hesitant to increase the dose due to side effects and new stu...
by Heronak
Fri Jul 15, 2005 4:03 pm
Forum: Just Joined?
Topic: RLS since 11 yrs. old
Replies: 4
Views: 1632

Hey Lynnie, I followed pretty much the same path as you, had RLS as long as I can remember, finally diagnosed about 10 years ago and started on a benzodiazapine which worked for a while. I've been on Mirapex over a year now, .125 mg, 1-2 hours before bed. It WAS a wonder drug for nearly a year, but ...
by Heronak
Thu Jun 30, 2005 7:45 pm
Forum: General Topics: RLS
Topic: I NEED TO VENT
Replies: 5
Views: 1741

Aspertame/Nutrasweet

Sara, Fascinating info on aspertame, I'll have to do some research on that. I did a search on this site because I recently noticed my RLS would kick in if I had an afternoon Diet Coke (pretty rare that I drink soda). I generally don't eat fake sugars, much preferring the real stuff! I've also notice...
by Heronak
Thu May 05, 2005 9:14 pm
Forum: Just Joined?
Topic: RLS and Iron supplements
Replies: 2
Views: 898

More Iron Info

Having ferritin (iron) levels checked is useful, but unfortunately taking supplements doesn't necessarily decrease or stop RLS. My ferritin levels are on the low end of the "normal" scale so I tried 3 months of high dose supplements per my doctor. Not only did it not affect my RLS, it did not increa...
by Heronak
Thu May 05, 2005 8:57 pm
Forum: General Topics: RLS
Topic: feeling really terrible
Replies: 35
Views: 11062

Barb, Have you done any research on Thoracic Outlet Syndrome? It's a wild guess on my part, but some of your symptoms match. Check out this link for more info - the Symptoms page might be a good place to start: m A Google search will turn up a mess of links too. Hope you find answers and relief soon...
by Heronak
Tue May 03, 2005 11:33 pm
Forum: Physical Treatments
Topic: Menopause and RLS???
Replies: 5
Views: 3558

RLS & Hormones

Heck yah, they're related in my case! My RLS kicks up a serious notch right before and during my period. Since secondary RLS happens for some women during pregnancy, I'd guess that's another hormonal connection. My iron is on the low end of the scale, but taking supplements for 3 months did nothing ...
by Heronak
Thu Apr 28, 2005 4:18 pm
Forum: Prescription Medications
Topic: codeine
Replies: 5
Views: 3079

Opiods

Yes, they work wonderfully for me. I only take them for severe knee pain, maybe once a week, but if taken in the evening I sleep beautifully. I also take a low dose of Mirapex which works for awhile. The problem, of course, is their addictive properties and the unwillingness of docs to prescribe the...
by Heronak
Thu Apr 21, 2005 4:53 pm
Forum: Prescription Medications
Topic: How does Miramax make you feel?
Replies: 5
Views: 3606

Mirapex

Hey there Love Child, I've been on .5 mg Mirapex for almost a year now with decent results. I take it 1-2 hours before bed and can usually get 5-6 hours of half decent sleep. It makes me feel sleepy, no other side effects. I do ocaisionally increase the dose to 1.0 mg if I haven't slept in awhile. I...
by Heronak
Thu Oct 14, 2004 4:05 pm
Forum: General Topics: RLS
Topic: Chocolate Denial
Replies: 3
Views: 1928

Chocolate Denial

Ok, I know chocolate has caffeine and can be an RLS trigger, but it's never been a problem for me in the past - and I LOVE chocolate, especially dark. So yesterday afternoon I purchased this lovely bar of organic dark chocolate, 97% cacao, and proceeded to savor it, bite by bite. Those of you who ar...
by Heronak
Thu Oct 14, 2004 3:47 pm
Forum: General Topics: RLS
Topic: Altitude/elevation affecting RLS symptoms
Replies: 16
Views: 8693

Pete, Sorry to go totally off topic, but what part Switzerland? My family is from Neuchatel and St. Prex (close to Geneva), and most still live there. I've been back many times over the years, but not close to yearly! Interesting thoughts on altitude - living at sea level I've never had this issue. ...
by Heronak
Thu Oct 14, 2004 3:39 pm
Forum: Just Joined?
Topic: Self-diagnosed
Replies: 169
Views: 44333

Most excellent, finding a neuro you can work with (and teach!). I'm happy for you, Jumpy. Regarding a new thread, YES, PLEASE! For me it would be nice to see threads that relate to specific people titled so they're easily identifiable (Heron's Story, whatever), and hopefully the responses would stay...
by Heronak
Tue Oct 12, 2004 5:36 pm
Forum: Prescription Medications
Topic: My RLS Mountain....
Replies: 183
Views: 47495

Brady, Wow, not sure how to respond except with empathy. I've never had an addiction problem, so can't relate on those terms, but the dilema seems impossible. The risk a doctor takes in prescribing narcotics to an ex-addict seems too great to take. I'm not being judgemental, I'm just wondering how y...
by Heronak
Tue Oct 12, 2004 4:20 pm
Forum: Just Joined?
Topic: slightly shocked
Replies: 2
Views: 1858

Welcome Guest, You are giving your son a gift, just by being aware of RLS, and believing it is more than growing pains. He may have PLMD, Periodic Limb Movement Disorder which could explain the kicking/twitching. Educate yourself as much as you can prior to seeing your doc/ped - many doctors are not...