Search found 113 matches

by Heronak
Tue Oct 12, 2004 4:10 pm
Forum: General Topics: RLS
Topic: ATTENTION!!! "New Life Survey" is ready and access
Replies: 7
Views: 3686

Nicely done Jumpy! Just finished it and it was quite thorough. Your efforts are greatly appreciated, Heron Pretzel: From the 2004 RLS Medical Bulletin "It may be either idiopathic (primary RLS, which often has a familial component) or secondary, occurring in conjunction with other medical conditions...
by Heronak
Mon Oct 11, 2004 7:38 pm
Forum: Prescription Medications
Topic: My RLS Mountain....
Replies: 183
Views: 47495

Welcome back, Becat, your trips sounds amazing. The ballooning, the family, the talks and connections made about RLS. Having family there who understood what you deal with must have been a help and relief in some ways. I can't imagine the visual delight of ballooning, have always wanted to do it. Se...
by Heronak
Fri Oct 08, 2004 3:10 pm
Forum: Just Joined?
Topic: trouble with getting diagnosed
Replies: 1
Views: 1627

Alecto, I totally understand about your resistence to spending money on a sleep study - I think it's a valuable diagnostic tool but not absolutely necessary in order to get some treatment. I feared this very thing when I went to my general practioner in tears early this year, but she never even ment...
by Heronak
Fri Oct 08, 2004 2:49 pm
Forum: General Topics: RLS
Topic: Donate Your Brain to Science
Replies: 3
Views: 1993

As a followup, I emailed a request to the Harvard Brain Tissue Resource Center and got a call yesterday from a very nice woman. She wanted to know how many brochures I wanted...since I have only one brain, it was a no-brainer, so to speak! Does this topic freak people out, or are there folks out the...
by Heronak
Thu Oct 07, 2004 4:30 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: RLS and headches
Replies: 36
Views: 34136

You're both right,

Hypo = low
Hyper = high (think hyperactive)

That's my huge contribution to this topic...

Heron
by Heronak
Thu Oct 07, 2004 4:13 pm
Forum: Just Joined?
Topic: New to RLS.org but lived with RLS for 30 years...
Replies: 7
Views: 3495

Welcome Chadls74 & Rebecca, glad you found us. It's quite a relief to know your symptoms are real, be able to understand the disease, compare treatments options with others, and sometimes just to ***** a little! You'll find a wealth of info, and friendly support. All the best,

Heron
by Heronak
Thu Oct 07, 2004 3:56 pm
Forum: General Topics: RLS
Topic: RLS LIFE: Drugs, Side Effects & Everything Else
Replies: 650
Views: 215506

Well you may be nuts, Nadia, but I'm sure you're on to something! Barometric pressure affects all sorts of things from arthritis to moods to migraines - and I'm sure there's more. Why not RLS too? Best,

Heron
by Heronak
Thu Oct 07, 2004 3:50 pm
Forum: General Topics: RLS
Topic: SICK AND TIRED-LIFESTYLE CHANGE? UNDERSTATEMENT!!!
Replies: 18
Views: 7950

Brady, An excellent post, thanks. I particularly like the part about not becoming the disease or defining ourselves that way. We are all so much more than our illness(es)! Best to you, Heron PS And on that note, I am a great partner, compassionate, funny, love to hike, workout, quilt, fish, cook and...
by Heronak
Wed Oct 06, 2004 3:20 pm
Forum: General Topics: RLS
Topic: Algorithm for Managing RLS
Replies: 9
Views: 4183

Time To Bump

With so many new folks on the boards these days, it's time to once again bump this up. Please take the time to read about treatment options for RLS.

Heron

Algorithm for the Management of Restless Legs Syndrome
by Heronak
Wed Oct 06, 2004 3:13 pm
Forum: General Topics: RLS
Topic: Donate Your Brain to Science
Replies: 3
Views: 1993

Donate Your Brain to Science

There are ongoing studies on various neurological diseases, including RLS, and the Harvard Brain Tissue Resource Center collects and maintains a brain bank. I have just requested their Brain Donation Questionnaire, which is the first step towards donation. Here are two links: RLS.ORG Tissue Collecti...
by Heronak
Wed Oct 06, 2004 2:49 pm
Forum: Physical Treatments
Topic: Not just legs!
Replies: 28
Views: 16340

Brenda,

Nope, Mirapex definately does not knock me out but it does make me sleepy eventually, so I don't think I could take it during the day as some do (Jan, do you take it during the day?). Hope you've slept decently,

Heron
by Heronak
Tue Oct 05, 2004 11:34 pm
Forum: Just Joined?
Topic: Self torture
Replies: 8
Views: 4326

Regarding Ferritin levels, in the "for what it's worth" category, I had mine checked in May and was at 20 (10-290 is 'normal') so I was on the very low end. After 3 months of oral supplementation my levels increased to 50 something. There has been no change in my RLS symptoms with increased ferritin...
by Heronak
Tue Oct 05, 2004 9:28 pm
Forum: General Topics: RLS
Topic: SICK AND TIRED-LIFESTYLE CHANGE? UNDERSTATEMENT!!!
Replies: 18
Views: 7950

Hey Jan,

Yeah, I know what you mean about hating to be a whiner, and thinking there's always someone worse off then yourself. But we all need a little pity party, a little compassion, and then we can get back on track with life.

Be good to yourself,

Heron
by Heronak
Tue Oct 05, 2004 9:22 pm
Forum: Physical Treatments
Topic: Not just legs!
Replies: 28
Views: 16340

Rethna, It really is a relief to know you're not crazy, not alone, isn't it! I felt the same many years ago when a neurologist gave it a name for me. Welcome, and I hope you can finds some relief. FYI, I'm taking .125mg Mirapex about one hour before bed and that has works most nights for me. If it d...
by Heronak
Tue Oct 05, 2004 9:10 pm
Forum: Just Joined?
Topic: Self torture
Replies: 8
Views: 4326

Welcome Pretzel, It's great to hear you've done a bunch of reading here, even the B&D post! We are a diverse group with many different symptoms & solutions. I'm a lifer, can remember symptoms as a little girl, but wasn't diagnosed until about 10-15 years ago. I used stretching and exercise f...