Search found 645 matches

by ksxroads
Thu Aug 03, 2006 3:24 pm
Forum: Just Joined?
Topic: wonderful knowledge
Replies: 3
Views: 1186

You are so right, Charlene, I truly am greatful for Ann, Lynne and the others, their devotion and research has helped so many people, my self included I would not have had the fight to find the answers without their support and guidance ... It is a with a saddened heart that I realize other disorder...
by ksxroads
Thu Aug 03, 2006 3:18 pm
Forum: Prescription Medications
Topic: Xyrem, it works!
Replies: 59
Views: 22115

The FDA issued a warning a year or so back, you can do a search at the drug manufacturers site or on the FDA site, that xyrem was NOT to be prescribed off label as there was an abnormally high count of people without seizure problems experiencing seizures with Xyrem... some with first few doses, oth...
by ksxroads
Thu Aug 03, 2006 3:13 pm
Forum: Just Joined?
Topic: New
Replies: 3
Views: 1027

Dear Sally, As for the ice running through your veins... could you explain this in more detail? Do your fingers turn white or blueish, the fingers and toes will feel cold and numb? I know someone on the board, is it you Cornelia that has Raynaud's syndrome... for more on this syndrome you can check ...
by ksxroads
Thu Aug 03, 2006 2:47 pm
Forum: General Topics: RLS
Topic: SEEING NEW NEURO?--TIPS THAT MAY HELP
Replies: 96
Views: 21521

Yes Lynne you are the heart of this RLS board. You have a masters degree in caring. It is all the little things you say and express that plant the seeds of healing in our hearts! Dearest Jan, Please know that I have held you close to my heart and sent prayers on that moon that you have answers. I am...
by ksxroads
Wed Aug 02, 2006 7:39 pm
Forum: Physical Treatments
Topic: changing circadian rhythm
Replies: 16
Views: 8687

In Ann's notes from last years conference there was discussion on the cyclical production of dopamine... ours is later in the evening opposed to *normals* which is usually before 10pm - seemed to fit into my RLS description... my production seems timed to be around 2-3am signalling sleep and feel be...
by ksxroads
Wed Aug 02, 2006 5:58 pm
Forum: Just Joined?
Topic: Dr. guessing RLS
Replies: 11
Views: 2887

Dear T, Ann and the others helped me so much last year when I was in a similar position. Like the commercial says their support, wisdom and encouragement - PRICELESS Drs can tend to dismiss our bringing information, however, they are usually more open if we keep it simple and if the information is i...
by ksxroads
Wed Aug 02, 2006 3:47 pm
Forum: General Topics: RLS
Topic: think this could be bad
Replies: 29
Views: 6774

Dear Miss Penquin, Let me add my love and prayers to the others. ***************Positive Thoughts and Energy************** Your daughter is blessed to have you for her mother! I am so sorry that Kathleen has to go through this, yet I hope and pray that with all the good intentions and support of thi...
by ksxroads
Tue Aug 01, 2006 10:20 pm
Forum: Just Joined?
Topic: Dr. guessing RLS
Replies: 11
Views: 2887

Dear One, I emailed you some files and info on menopause that may help you. Oral iron therapy takes a very long time... that is why it is not always the only treatment option... we tend to have several items in our bag of tricks to manage RLS. However, low ferritin levels is a good indicator of RLS ...
by ksxroads
Tue Aug 01, 2006 9:39 pm
Forum: Prescription Medications
Topic: Experiences with Methadone
Replies: 131
Views: 35389

Thanks RR for your personal experience... I look forward to others commenting.
Opiates with tylenol in them is not the way to go long-term
That is so true, eventually with the medical facts and personal info my dr will see moving beyond using the hydrocodone apa.

Hazel
by ksxroads
Tue Aug 01, 2006 9:28 pm
Forum: Help for Relationships
Topic: This is just personal venting/anyone can use it
Replies: 16
Views: 12184

Ah Dear Dear Becat... What wonderful spirits abide here. Physically it has been a challenging six days and I spent little time here... yet I hope that you know you have been in my thoughts and prayers, as each of you have. Sending many rays of ************Positive Kick Butt Energy************* Love ...
by ksxroads
Tue Aug 01, 2006 9:21 pm
Forum: Physical Treatments
Topic: changing circadian rhythm
Replies: 16
Views: 8687

Madalyn, I have thought for sometime if I could go back in time that I'd find a job/career that I could work third shift! When one is able to adjust their wake/sleep schedule it may be helpful for those without 24/7 RLS. Are you finding that it is helpful for you? How long have you maintained this r...
by ksxroads
Mon Jul 31, 2006 3:59 pm
Forum: General Topics: RLS
Topic: new to this and very nervous
Replies: 3
Views: 1101

Dear 20 blogger! *Big Grin* There is no set test for RLS. Determination usually follows a doctor reviewing your medical history and symptoms... and the following is the Criteria From the Restless Legs Syndrome Foundation Restless Legs Syndrome is an overwhelming urge to move the legs usually caused ...
by ksxroads
Mon Jul 31, 2006 3:55 pm
Forum: Just Joined?
Topic: Dr. guessing RLS
Replies: 11
Views: 2887

Dear duester, So sorry you are going through all of this. There is some theories that RLS may be related to hormonal function... Since there is no known cause, and it can be primary (genetic) or secondary (spinal injury, surgery, un controled diabetes) we find that we just have to find what works fo...
by ksxroads
Thu Jul 27, 2006 4:21 pm
Forum: General Topics: RLS
Topic: Muscle twitching??????????????
Replies: 1
Views: 728

Well Roxie creepy crawly want to rip your arms and legs off that describes some of the signs of my RLS ... it would seem to be more related to the RLS than the PLMD... but I am not a doctor, just offering my opinion here! Hope that you are finding information that helps you to understand and manage ...
by ksxroads
Thu Jul 27, 2006 2:51 pm
Forum: General Topics: RLS
Topic: Is there any connection between osteomyelitis and RLS?
Replies: 4
Views: 1183

Dear Susan, So sorry you are having to add RLS to your problems. You certainly have been through enough as it is. Here is a link to Ann's post of diseases for which RLS can be secondary. m I closed this before searching for osteomyelitis, today is not a good day for this ole woman! RLS can be caused...