Restless Legs Syndrome (RLS) Discussion Board

im really thankful for all the sharing i now have a pedal cycle under my desk that i can use IF i am at my desk. most of the time i am stuck elsewhere and the sitting down can be up to 5 hours a stretch..... the pedal cycle does help though although i have gotten a lot of odd looks from my colleague...

just wondering if there are people out there who are able to manage on a full time job (and a very sedentary one) with bad rls

by bad i mean, there are days I go to work with only 2 hrs of sleep

how do you guys manage?

Hello , I was recently prescribed 100 mg of Tramadol by my doctor for RLS, this is after years of Augmentation issues on both Mirapex and Requip. ( I have also tried Gabapentin, Horizant, Lyrica, Cardopa, etc.) I am currently trying to wean myself off of 2MG of Requip. I am having a horrible time w...

@rjdishon A note of encouragement: the withdrawal is worse than what you're experiencing now, but when it's all over with, your symptoms will be much better than they are now. You will be able to sit through meals again, and sit down to read and work. There is a chance that they'll be worse than th...

Indeed! I need mine closer to 200. And some people get to 300 and still have no relief. One reason may be a missing protein - Steve has written about that - he does not have it. But even with that, there is still a lot of variability. Thanks Ann! I just saw my neurologist who saw the improvement af...

I'll explain that the name was changed because the disease is systemic; it affects more than just legs, it involves imbalances of iron in the brain, the circadian system is out of whack, we have a heightened auditory startle reflex (sudden noises are more likely to make us jump) and slowed blink re...

Indeed! I need mine closer to 200. And some people get to 300 and still have no relief. One reason may be a missing protein - Steve has written about that - he does not have it. But even with that, there is still a lot of variability. Thanks Ann! I just saw my neurologist who saw the improvement af...

as long as pain disrupts sleep, it needs to be dealt with - rls or not!

strangely after my recent IV iron, it's no longer painful, but has transformed into an inability to sit still

Ann: do you think it's worth checking out possibly some minerals that your body might be lacking?

badnights - what a really good explanatory post on the effects of lack of sleep. This is why 6 years ago I was happy to retire from work - when just a few years previous I could not contemplate the possibility of full time retirement. Betty - how did you get to the point of being ok to retire from ...

I'm sure all of us have had bad experiences with doctors; bad bedside manners, lack of knowledge etc that we are probably quite numb - or rather I am. Still, I was really momentarily stunned by a doctor who had really poor bedside manners - and subsequently just a great sense of outrage with how she...

I have always had the creepy crawly RLS with a STRONG urge to move - so strong that if you try to avoid it, I swear I move involuntarily. When people talk of painful RLS, I had not idea what that felt like. Maybe I do, now. In the last few weeks, I wake up in the night and my legs feel tight and th...

Hmmm... by usual measures your iron saturation is low. This indicates that while your ferritin ordinarily would be considered okay, it is likely artificially elevated. Likely that means that your ferritin is definitely on the low side for somebody with RLS. If you haven't had any iron infusions, pe...

Thank you! I have a lot of hope for managing these symptoms better IF I can get the transfusion. peanut1: did you get your infusion eventually? I hope you did because I had a positive experience with mine when I did it. I am now 3 weeks into my 2nd infusion and I didn't remember having such a drama...

Hi all who has so kindly replied to my post Just an update I survived the drug holiday and is 3 weeks post IV iron. Drug holiday was awful but I'm glad I did it! Would do it all over again if I have to. It required a lot of determination but it helped to have the tramadol, clonazapam and zopiclone d...

thanks Beth!