Search found 14406 matches

by ViewsAskew
Fri Mar 04, 2005 2:53 am
Forum: General Topics: RLS
Topic: Too much press???
Replies: 72
Views: 14710

Too much press???

I was at an event recently and a lot of other people were there. During the evening, three different people came up to me to talk about RLS. They all said they had read about it or heard about it recently and that they had it or that their spouses had it. Case 1: Person that feels comforted by movin...
by ViewsAskew
Thu Mar 03, 2005 6:59 pm
Forum: Physical Treatments
Topic: Getting my memory foam
Replies: 8
Views: 4663

I have the mattress and it does NOT stop the RLS for me. It just helps my partner tremendously - he doesn't feel my kicking - and helps my body be more comfortable. I LOVE it, but would not recommend it to stop the RLS - at least if you have moderate of severe. Not sure what it would do for mild. Ann
by ViewsAskew
Thu Mar 03, 2005 6:56 pm
Forum: Prescription Medications
Topic: Mirapex
Replies: 5
Views: 3282

If it were me, I'd call immediately. This could be rebound - where the symptoms are worse when the meds wear off. It isn't that common with Mirapex, but it does happen. If it is, in my opinion, you need to switch to a different med. Rebound that happens within a few weeks of starting is not a good s...
by ViewsAskew
Wed Mar 02, 2005 3:06 pm
Forum: Just Joined?
Topic: RLS?/Young Onset Parkinsons Relationship?
Replies: 9
Views: 2505

Jamie, have you been tested for any autoimmune disorders? They are terribly hard to pin down - sometimes it takes years to get a correct diagnosis. Of couse, I'm not a doc, but an option is Sjogrens. It can look a lot like fibro, lupus and other diseases. Although not a common symptom of it, some pe...
by ViewsAskew
Wed Mar 02, 2005 3:37 am
Forum: Just Joined?
Topic: RLS?/Young Onset Parkinsons Relationship?
Replies: 9
Views: 2505

No relation, at least not from RLS to Parkinsons. Both occur in the same part of the brain, both involve dopamine. And if you have Parkinsons, you can get secondary RLS. But that's it. They have a completely different cause. Having RLS does NOT mean you have an increased change of Parkinsons. At lea...
by ViewsAskew
Mon Feb 28, 2005 4:12 am
Forum: General Topics: RLS
Topic: sleep thief, LIFE THIEF!!!!
Replies: 373
Views: 105477

Oh, Jan. Have you had any luck finding a new neuro? A rash all over. . .that sounds horrible. The doctor that said it's just stress should have his or her license taken away. Even if stress caused it, you have to solve the other problems to make the stress go away. Gee, I'd love to wave my magic de-...
by ViewsAskew
Mon Feb 28, 2005 4:03 am
Forum: General Topics: RLS
Topic: Sad, weary, and let down
Replies: 63
Views: 18338

Oh, Corrie, that is the scary part isn't it, that it won't work. I think I read somewhere that a portion, (20 percent?) of people had all symptoms go away, a portion had reduced symptoms and a portion had no change when the ferritin went up. And 6 months!!!! I was hoping for shorter, but since it on...
by ViewsAskew
Sun Feb 27, 2005 5:25 pm
Forum: General Topics: RLS
Topic: Sad, weary, and let down
Replies: 63
Views: 18338

It's two months since I started the iron therapy. I started with a ferritin of 9, as of last week it was up to a whopping 18. I am glad it's up, but can see that I will not be discontinuing my current drug regimen for a while . I've had a few months of sleep, even though I still do not get any deep ...
by ViewsAskew
Sat Feb 26, 2005 5:40 pm
Forum: General Topics: RLS
Topic: I am new to RLS - or new to the diagnosis anyway!
Replies: 9
Views: 3079

Barb, so sorry you are having problems with the meds. There is a great algorithm for treating RLS and Klonipin is not the first thing to try. It's one of the oldest meds used, however, so some docs that are not really current may prescribe it first. Please look at these threads and they have links t...
by ViewsAskew
Sat Feb 26, 2005 5:29 pm
Forum: General Topics: RLS
Topic: mold
Replies: 10
Views: 3391

Dogeyed, in my mind, primary RLS only has one cause: brain doesn't work right, definitely genetic in most cases. Now for secondary, that's a different issue. Many things CAN cause secondary RLS including surgery, pregnancy, kidney problems, back injury, spinals, Parkinson's, fibro, etc. Meds can mak...
by ViewsAskew
Sat Feb 26, 2005 5:17 pm
Forum: General Topics: RLS
Topic: mayo clinic needs bio's
Replies: 4
Views: 1670

Kimberly, Here's the link to the post with the sirvey information. m As far as your story, I'd try it anyway. Sometimes it helps to honor our own struggles personally, just to know how hard we've worked and how much we've had to deal with. But, they mentioned talking about ongoing struggles. It's im...
by ViewsAskew
Sat Feb 26, 2005 5:07 pm
Forum: Physical Treatments
Topic: new to rls from a town where the docs know nothing
Replies: 4
Views: 3342

Jumpy, one of our members, already has a survey going. See this thread: m Your doctor sounds like he or she needs to get some information so you can get the help you need. Please try the following threads. They have links to medication lists, articles you can give your doc, and algorithm your doc ca...
by ViewsAskew
Tue Feb 22, 2005 6:16 pm
Forum: General Topics: RLS
Topic: AARRGGHHHHHHHH
Replies: 9
Views: 2962

Brady, I figured something was up when you were gone for so long. I knew you were having a tough time of it, but kept hoping that something would happen to turn things around. If you need to be here, we're still here. It's one of those take what you need and leave the rest kind of things. Since you'...
by ViewsAskew
Tue Feb 22, 2005 4:02 am
Forum: General Topics: RLS
Topic: I'm gone for a while
Replies: 10
Views: 3293

Dearest Becat, My thoughts were with you often during the last few weeks. What a marvelous way your family honored your grandmother in dignity and love. What a great opportunity you had to spend that time together in mourning, love, sadness, joy, and in community. My thoughts are still with you. Wel...
by ViewsAskew
Tue Feb 22, 2005 12:26 am
Forum: Physical Treatments
Topic: Has anyone tried Chiropractic?
Replies: 13
Views: 7144

It makes sense that with a back injury as the cause of RLS (secondary RLS) that a chiro could help. Back injury and surgery are definitely known causes of secondary RLS. The cause seems to originate in a different place than primary. Primary RLS is caused by a malfunction of cells in the brain, thou...