Search found 5580 matches

by Rustsmith
Mon Mar 04, 2024 12:28 am
Forum: Just Joined?
Topic: March 2024
Replies: 24
Views: 968

Weclome to Bweymouth

Sunday, March 3 Welcome to Bweymouth, who has terrible RLS and has finally found something that works but still wants to see what others are saying. Please understand that many of us found RLS treatments that then stopped working, so you need to continue to educate yourself (and maybe your doctor) a...
by Rustsmith
Sun Mar 03, 2024 8:42 pm
Forum: Prescription Medications
Topic: Methadone causing Sleep Apnea?
Replies: 16
Views: 494

Re: Methadone causing Sleep Apnea?

When I had my first sleep study, I was able to get the detailed results of the study. One of the parameters that they reported was the percentage of time on my back, sides and stomach as well as my AHI number for each position. I was surprised to see how much time that I spent on my back because I h...
by Rustsmith
Sun Mar 03, 2024 3:15 pm
Forum: Prescription Medications
Topic: REQUIP DOSING GUIDELINES
Replies: 3
Views: 110

Re: REQUIP DOSING GUIDELINES

The maximum dose for Requip is 4mg/day, but the experts prefer it to be limited to no more than 2mg/day. You can find this in Table 2 of the document that the link in my signature points to. That document has loads of additional information about the proper treatment of RLS and is something that you...
by Rustsmith
Sat Mar 02, 2024 4:05 pm
Forum: Just Joined?
Topic: March 2024
Replies: 24
Views: 968

March 2024

Saturday, March 2

Welcome to

Lwagnon, who needs help from a group. It helps to have a group that chat about their problems and that you can ask questions.

That is why we are here. All that you need to do is post a message or join in any of the existing threads.
by Rustsmith
Sat Mar 02, 2024 2:03 am
Forum: Prescription Medications
Topic: Methadone causing Sleep Apnea?
Replies: 16
Views: 494

Re: Methadone causing Sleep Apnea?

My suggestion is that you need to speak with your prescribing doctor ASAP. To me, your description of waking with your throat sealed up sounds more like an allergic reaction than apnea. With normal apnea and UARS, you essentially swallow your tongue. With normal sleep apnea, the nerves in your throa...
by Rustsmith
Fri Mar 01, 2024 9:34 pm
Forum: Prescription Medications
Topic: Methadone causing Sleep Apnea?
Replies: 16
Views: 494

Re: Methadone causing Sleep Apnea?

All opioids are Central Nervous System depressants that can cause mild sleep apnea to become a problem. Gabapentin and Lyrica are also CNS depressants, so they can cause issues too. Every time that I have an appointment with my neurologist, she asks "Are you still using your CPAP machine?". I tell h...
by Rustsmith
Wed Feb 28, 2024 2:32 pm
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to Robin66

Wednesday, February 28 Welcome to Robin66, who is newly diagnosed, is having difficulty sleeping and staying active. She is worried about the progression of the disease. Generally, the severity of RLS will get worse with age. How fast it progresses varies. However, treatment can be 95+% effective ev...
by Rustsmith
Tue Feb 27, 2024 4:36 pm
Forum: Prescription Medications
Topic: Buprenorphine, the good, bad and ugly
Replies: 14
Views: 309

Re: Buprenorphine, the good, bad and ugly

I have not been able to convince my neurologist to let me try buprenorphine. I was interested because it is also been shown to be effective in treating Treatment Resistant Depression, which I have. However, read what you can about the dental problems that some burprenorphine users are having. It isn...
by Rustsmith
Tue Feb 27, 2024 4:33 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: STUDY: Vitamin D Lessens the Severity of Restless Legs
Replies: 7
Views: 182

Re: STUDY: Vitamin D Lessens the Severity of Restless Legs

Vitamin D deficiency can cause a wide range of neurological problems. My neurologist regularly checks my Vitamin D and B12 levels even though she knows that I take them daily.
by Rustsmith
Tue Feb 27, 2024 4:31 pm
Forum: Just Joined?
Topic: Head roll
Replies: 24
Views: 709

Re: Head roll

Well I just made an extremely long post and for some reason it did not show up. The system has a time limit for creating posts. I am not sure, but I think that it is around 10 minutes. Therefore, when you write an extremely long post, you can sometimes exceed the time limit. The work around is to e...
by Rustsmith
Mon Feb 26, 2024 11:08 pm
Forum: Augmentation
Topic: New-Asked to post about treatments
Replies: 55
Views: 67154

Re: New-Asked to post about treatments

I have never had pain with my RLS, but I did have issues with methadone when I first started taking it. It would keep me awake for 6 to 8 hrs. Some of us refer to that side effect as "Alerting" because you feel dead tired by are wide awake. I resolved that problem by shifting the time that I would t...
by Rustsmith
Mon Feb 26, 2024 10:12 pm
Forum: Just Joined?
Topic: February 2024 - NEW MEMBERS
Replies: 38
Views: 979

Welcome to CalmLegsJL

Monday, February 26 Welcome to CalmLegsJL, who is looking to learn more about RLS and is interested in natural remedies. You can find quite a bit about non-prescription treatments for RLS in our forum on Non-Prescription Meds, Supplements, etc. Unfortunately, most natural treatments are not very eff...
by Rustsmith
Mon Feb 26, 2024 2:32 pm
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 875

Re: Where do I go from here?

When you ask your doctor to check your iron levels, be sure to ask to have your ferritin checked too. Ferritin is not part of the normal blood iron test and is the most important iron criteria for RLS. Further, when you get the results, don't accept a report of "Normal", be sure to the the number. T...
by Rustsmith
Mon Feb 26, 2024 2:05 am
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 875

Re: Where do I go from here?

One of the requirements to become and RLS QCC is that they must be prepared to prescribe opioids for refractory RLS. The medications that they listed are consistent with the current recommendations, namely iron first followed by gabapentin/Horizant/Lyrica with dopamanergics after that. They probably...
by Rustsmith
Sun Feb 25, 2024 10:39 pm
Forum: Prescription Medications
Topic: Where do I go from here?
Replies: 36
Views: 875

Re: Where do I go from here?

In addition to the RLS management document that the link in my signature points to, you might also share this document with your doctor. It explains why opioids are required to treat "refractory" RLS, which is what we have after augmentation. https://www.mayoclinicproceedings.org/article/S0025-6196(...