Restless Legs Syndrome (RLS) Discussion Board

I also just found this in a post on the CD forum from the same person who posted the previous info: "NAC (N-acetyl-cysteine) is an amino acid that I've posted about that decreased my pain levels a lot. Recently I've added alpha lipoic acid (supposed to help the peripheral nervous system). And I have...

Penguin, it has to be so difficult to keep trying so hard and not to get anywhere. I think you are right and that no one really knows anything, yet. The link I posted is just one more theory in the pot. Hopefully, for at least some people, it will work, though. Just like for some people, taking magn...

I wish I had something brilliant to say. Like you said, sometimes it's best to jut feel crappy and get it out. You sound like you know that you're just here for a short period and not for the long-haul. You are so right about that Mirapex dose. If you try to cut back when you're used to it, holy %$#...

You know, if none of this happened before the Requip, I'd ask the doctor to take you off of it for a few weeks. If the RLS is too terrible to bear being without any medication, you could try an opioid or an anti-seizure med during that time. I wouldn't try a different dopamine agonist just in case t...

This is interesting to me; those of you with fibro may have already heard it, but thought I'd pass it along in case you had missed it. On the Celiac forum, someone asked if the low-fiber diet she was following since her CD diagnosis had "caused" her fibro. One of the members responded, "I subscribe ...

For a little more info on Keppra, try www.rlshelp.org. It is mentioned there, but not in much detail. Keppra is in the anti-seizure class, like Neurontin, Depakote, Topamax and Gabitril. Of these, it's seems Neurontin has had the most success, especially from the perspective of doctors trying it. I ...

Sami, that's an interesting question. I also have some odd episodic jerks since I started on the dopamine agonists. The jerks did reduce quite a bit when I stopped taking the DAs but I still have a few now and then, but nothing like a tic. Both of these are movement disorders and both are is the sam...

This is such a hard thing. When I did it, I was just as honest as I could be. I explained how many years I'd suffered, how many things I had tried. I asked him straight out if he would be willing to partner with me in treatment: I'm willing to listen and work with him if he will do the same. I also ...

I haven't read this book, but I want to mention the following sites by the same authors, Jeffrey and Marie Goodwin, of Turning Point Publications, to help people decide for themselves on the likely motivations and expertise behind www.restlesslegscure.com . I found these by Googling. Robin, it soun...

Yeah, that will probably be the time you fall apart - when it's all over and done. If you think that will help clear the emotions and make you feel better, do it. Sometimes a good cry can help so much. On the other hand, sometimes it just perpetuates my misery. If you don't think you'd be avoiding i...

Hi Lynnie! I just love it when I hear someone read all of the posts! Probably because so did I when I joined. It is awesome info, isn't it? We had some very helpful and concientious people here. Many of us find that a willing-to-learn GP is better than an I-know-it-all specialist. I don't know how l...

yeah, Robin, I'm familiar with the book. The same woman sells the same book to deal with three different medical conditions. It's pretty much a scam as far as I can tell. She used to sell this e-book for $10 BTW. Last year or the year before it was up to $19.95. It could be that salt will help your ...

Hi Jenny, I'm hoping I can explain a little about the criteria. The RLS criteria was written by an International committe of RLS professionals. They are the ones that wrote this criteria, not someone at the Aussie site. The Aussie site only used that criteria. According to the criteria, a person has...

Ditto

Just the like Little Engine That Could. . .

I think I can

I think I can

I think I can. . .