Restless Legs Syndrome (RLS) Discussion Board

If I understand you correctly - On day 15 you plan on dropping from 2mg to 1mg requip. That's a 50% drop.

I did it very differently and took 10 months to wean off 5mg requip by very small drops, using a pill cutter, and with the support of pregabalin and cocodamol.

Slightly different..... In June last year I had a dreadful headache at the base of my skull. It got worse over a couple of days. One evening I rang the out of hours duty doctor and he told me to going to ER. My husband took me. By this time my hair was soaking wet and I had towels with me to keep mo...

It's awful that you went undiagnosed for all that time.

So many doctors are not good at treating RLS. We must always do our best to educate ourselves and be able to discuss our condition, discuss the merits of different medications. Some doctors are wonderful and a treasure, others not so much.

Monday 4 March 2024 Welcome today to LeeT whose RLS started at around 50 years of age.. Did not know what it was until later. Big impact is on LeeT's sleep. To sleep through the night 2 nights a month it is remarkable. Lack of sleep is the biggest impact on LeeT's life now. Sleep is indeed what driv...

3rd March 2024 Welcome today to Victoriag who says.... What life? Day and night... constantly exhausted. at the lowest point she has ever been. Ropinerole made her violently sick, pramipexol and madopar she suffered augmentation. Pregabalin didn't touch her. Currently taking gabapentin but no sign o...

I meant that you should have it checked out as to why your sleep apnea is so bad even though you are using the cpap. If it was me I'd be thinking something needs adjusted/changed so I'd know if I could comfortably continue with the methadone, or not. Only my own thoughts. I have no medical training ...

My sleep test showed that I had a level of 20 apneas and now that I use the cpap it averages 0.5.
I can recall the waking up gasping for air and feeling for what seemed a long time that I couldn't get a breath. It was very alarming.
You need to have it checked out.

I am a 74F and an rls sufferer of 40 years. My treatment is not methadone but is max doses of cocodamol and pregabalin. I also reckon I have about 90% relief. I have sleep apnea diagnosed 4 years ago. The cpap machine is wonderful. I don't know if the cocodamol plays any part in the sleep apneas but...

Everyone should be wary of promises of cures for RLS , especially where money is involved.

Well done. I hope you will be discussing a treatment plan going forward following your reductions.

I note that the 12 subjects in the study were all Vitamin D deficient prior to the treatment.

i.e. ""Vitamin D supplementation lessens the severity of RLS symptoms where Vitamin D is deficient""

27 February 2024 Welcome today to Vickis who has had RLS for as long as she can remember. She is now 60 yo and it has gotten terrible over last several years . Vicki has it every night and has tried everything. She is at her wits end and very frustrated. We are all sufferers here and we understand y...

Monday 26 February 2024 Welcome today to jpss1 who can't get a good nights sleep and sick of the annoyance. Sleep is what sends most rls sufferers to seek help. Annoyance is putting it mildly. There's a lot of information in the Just Joined Forum. If you have any questions please post either by join...

Exactly what Steve says above about hot water .....but icy cold water worked for me, every time. Feels painful for a.moment but very quickly eases. I used a jug to constantly trickle the water from at least knee high. 15-20 minutes and ready for bed.

What a great night you had. I also use a cpap machine and find greatly helps my sleep.