Restless Legs Syndrome (RLS) Discussion Board

This paper is a joint consensus paper commissioned by the IRLSSG that discusses the latest thinking on iron and the use of various iron IV solutions for the treatment of both adult and pediatric RLS.

https://www.sleep-journal.com/article/S1389-9457(17)31559-9/pdf

Holland, that is interesting about Benadryl. I have had severe upper respiratory allergies since I was about 4 yrs old. During my lifetime I have probably been prescribed just about every anti-allergy form of antihistamine that has been on the market, including at least one that was later removed be...

Kathy, the drowsiness is something that often goes away in a day or two but it lasts longer for others. As for the edema, that is not one that I experienced so I cannot comment in it. As for the price, that is what drives many away from Neupro. The patent on it expires in 2 years. It will be interes...

Kathy, I'm not sure if I understand your question about side effects with Neupro. You say that you did not have any leg movements on Neupro? One of the primary purposes of any RLS treatment is to control the leg movements, so this is reason to use a medication and would not be a side effect. As for ...

Monday, August 20 Welcome to smith060305, who is recently diagnosed with RLS and would like to learn as much as possible and get support from others. Providing info and support are our primary purpose with the board, so you came to the right place. Please post a note telling us about your RLS and as...

Sunday, August 19 Welcome to Tsmorgan, who has had RLS for years, RLS keeps Tsmorgan from sleeping and causes depression from lack of sleep. Those are all complaints that any of us can make. Please post a note telling us what you are doing to manage your RLS so that we can offer some suggestions tha...

Sunday, August 19

Welcome to

Jerry Mc, who has had RLS since 2008 and has been on different meds.

Please post a note telling us a bit about the meds you have used and how your current treatment plan is working.

Augmentation is a common complication that occurs when taking a dopamine agonist, like pramipexole, for an extended period of time. The time for it occurs varies between individuals. For some, it can occur in days and for others, it does not happen for years. You sound like you fall into the latter ...

Thursday, August 16

Welcome to

CharlieWoody, who can't sleep so RLS affects everyday life, can't drive long distances and can't relax in the evening.

Please post a note telling us what you are doing to manage your RLS so that we can try to offer some suggestions to help with your sleep.

Thursday, August 16 Welcome to Tylerrj01, who has had RLS for almost 30 years. She plans events around her symptoms and always carries her ropinirole. Her symptoms sometimes start in the afternoon and disrupt her work. Since your symptoms sometimes start during the afternoon, take a look at our foru...

Wednesday, August 15

Welcome to

paulande, whose RLS is so bad, she is having a hard time functioning as she is so tired all the time.

Please post a note telling us what you are doing to manage your RLS. We may be able to offer some suggestions that will allow you to get some more rest.

Wednesday, August 15 Welcome to marvelisticme, who has suffered with RLS for 40 years. marvelisticme can't sit for long, nor sleep well and knows there must be something that will helpto find sleep! Please post a note telling us what you are currently doing to manage your RLS so that we can offer so...

Wednesday, August 15

Welcome to

TwinkleStar, who daughter has been diagnosed in RLS. She also suffers tremors (jitterings) probably related.

Please post a note telling us a bit more about your daughter (age, current treatment, etc) so that we can offer some suggestions to you.

Betty, in 2012 we took back to back cruises out of Dover in August (during the London Olympics). The first week we went up the Norwegian coast, which was spectacularly beautiful. The second week was a tour of the British Isles, including the Channel Isles, Ireland and then two days in Edinburgh. It ...

vkelley, welcome to the group. You are in great hands with Dr Ondo. He was the first RLS specialist that I saw after a disastrous series of neurologists. I still have great confidence in his advice and would still be one of his patients if we hadn't moved from The Woodlands to Colorado. For the size...