Restless Legs Syndrome (RLS) Discussion Board

Hi! I have severe RLS. I've had it about 20 years. I am presently taking Mirapex .5 mlgs. at 5:30 P.M. and .75 mlgs. at 9:30 P.M. I've been taking the Mirapex about 8 years now. It has semmed to have lost its effectiveness because right after I take it, I usually get relief from my RLS for about an ...

Hi!

yes, I will be through with my Chemo before Christmas, thank goodness!
I hope I'll have a very nice Christmas. You too!

Sincerely,

Carol Ann

Hi!

Yes, it's very difficult to deal with both the chemo and the RLS. Fortunately, my last chemo is 12/7 and I can't wait until it's over with. I only hope and pray my cancer will not return.

Sincerely,

Carol Ann

Hi! Thanks for your reply to my cancer chemo concern. Yes, I do have neuropathy. I have numbness on the bottom of both of my feet. It isn't painful, however, it can be very uncomfortable especially when I walk. I certainly will ask my Oncologist if there is something they can give me for it. I got i...

Does anyone with RLS have cancer? How are your dealing with the both of them? I was diagnosed with endometrial cancer on 6/11 and had a radical hysterectomy, 3 bracytherapy treatments and I had 5 chemo treatments. I have 1 left, thank goodness. I've found that right after I get my chemo that my RLS ...

Hi!

Thanks. I will.

Sincerely,

Carol Ann

Hi

I have never taken Perocet so I don't know what to tell you. I suggest you talk this over with your doctor.

I E-mailed Dr. B regarding my chemo and worsening of my RLS. Hopefully he'll reply soon.

Sincerely,

Carol Ann

Hi! Sorry I had a couple of typos in the last E-mail to you. and I didn't preview my E-mail until after I sent it. I meant to say "I can't go night after night with little or no sleep with excrutiating pain Maybe my cancer doctor could give me a strong pain pill and a sleeping pill possibly. Si...

Hi: I have severe RLS and am taking Mirapex. I also am taking chemo because I have endometrial cancer. My RLS has gotten worse since I started having the chemo and I informed my RLS doctor of this. His nurse called me and said that there's nothing he can do as long as I'm taking the chemo? I was rea...

Hi,

I would be willing to try an Opiate(s) for about a month. I don't know what side effects I'd be experiencing. It would just be trial and error. I could ask my doctor about the side effects and how to handle them.

Sincerely,

Carol Ann

Has anybody tried accupuncture for their RLS and had any success from it? I'm at the end of my rope so-to-speak. I've tried every medication posible for RLS with the exception of the opiates and I couldn't handle the side effects of any of them. I'm presently taking Mirapex and that is losing its ef...

Hi Ann, Where are you from in MN? I'm from St. Cloud. My RLS doctor is Dr. Silber at Mayo Sleep Disorders Dept. You may have heard of him. He's on the Board of Directors, I believe, on the RLS Foundation. I'm hesitant about his recommendations for me for my RLS. Every time I see him, he just ups my ...

Hi! My doctor is Dr. Silber and he is the GREATEST. I have to travel about 165 miles to the Mayo Clinic and stay overnight usually about 2 nights. I do spend additional money, however, it's really very worth it. I have specialists at Mayo that treat all of my other health problems. I wouldn't go any...

Hi!

I'm responding the the RLS and Gluten message.

I have not been eating bread, pasta, cookies, cake and have definitely notice3d that my RLS isn't as bad. It's still there, however, not as intense or lengthy.

Sincerely,

Carol Ann

Hi Ann,

Thanks for your reply to my message re: gluten and it relation to RLS.

I'm going to ask my doctor for a celiac test. I have an appointment with her in about 2 weeks.

Sincerely,

Carol Ann