Search found 548 matches
- Sun Jun 13, 2021 1:09 am
- Forum: Just Joined?
- Topic: A silent sufferer!
- Replies: 6
- Views: 2779
Re: A silent sufferer!
Good luck! Opioids are usually not scary at all for RLS people. I have taken two 60mg tablets of codeine for years with no need to increase. I also take gabapentin and iron. My sleep is broken but when I wake up the RLS pain is not very strong as before. I read and/or watch something on my iPad for ...
- Sun Jun 06, 2021 8:57 am
- Forum: Prescription Medications
- Topic: Attempting to get off Ropinirole - again
- Replies: 326
- Views: 56019
Re: Attempting to get off Ropinirole - again
I've been taking ropinerole for probably 10 years but augmented quickly after getting up to about .75mg. Thanks to this discussion board I was able to scale back. I think I augmented fast because I had taken sinemet nightly when my GP didn't understand it was for occasional, not daily, use. I spent ...
- Sun Jun 06, 2021 1:10 am
- Forum: Prescription Medications
- Topic: Attempting to get off Ropinirole - again
- Replies: 326
- Views: 56019
Re: Attempting to get off Ropinirole - again
That sort of GP should go into research. I'm so lucky to have a great one who also has RLS. With no thyroid or parathyroids, I too take many prescription medicines every day plus liquid B12, magnesium and vitamin C. I still take .25 ropinerole and a half tablet about once or twice a month. I will ne...
- Sat Jun 05, 2021 4:39 am
- Forum: Prescription Medications
- Topic: Fentanyl patches for RLS
- Replies: 22
- Views: 10764
Re: Fentanyl patches for RLS
I can't imagine a doctor prescribing fentanyl for RLS. My husband had a patch during his last very painful days with cancer. The dangers of mishandling fentanyl are serious, even touching the patch except around the edges.
- Tue May 25, 2021 5:44 am
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: Another year of relief (Low-oxalate diet)
- Replies: 130
- Views: 7801977
Re: Another year of relief (Low-oxalate diet)
Years ago, when my husband was on a gluten free diet, a chef friend said to try organic flour as from preparing the soil to making the bread almost 100 chemicals can be used with growing and preparing wheat products. Cliff was fine with homemade bread made from organic flour.
- Sat May 15, 2021 4:04 am
- Forum: Physical Treatments
- Topic: Sleep Pod
- Replies: 5
- Views: 13429
Re: Sleep Pod
When backpacking years ago I tried a silk sleeping bag liner to prolong the life of my sleeping bag. After a very short time, maybe under an hour, I had wiggled out of it. My husband, who is a sound sleeper without RLS hated it too. The sleeping pods would be torture for me. I guess the price is not...
- Mon May 10, 2021 1:47 am
- Forum: Just Joined?
- Topic: going "cold turkey"
- Replies: 45
- Views: 22376
Re: going "cold turkey"
It's so important to notify the anesthesiologists, they really don't want any surprises during surgery.
- Tue May 04, 2021 4:32 am
- Forum: Prescription Medications
- Topic: Latest struggles with treatment
- Replies: 11
- Views: 5794
Re: Latest struggles with treatment
What an amazing story! Well done to you and the doc.
- Thu Apr 22, 2021 12:57 am
- Forum: Prescription Medications
- Topic: Follow up and Requip questions
- Replies: 30
- Views: 18283
Re: Follow up and Requip questions
Sinemet is excelent for rare occasional use such as a concert or plane or car trip but I agree with Rustsmith that it should not be used for continuous use. I found out the hard way decades ago when my GP didn't know about augmentation.
- Wed Apr 14, 2021 6:08 am
- Forum: Prescription Medications
- Topic: Tramadol Experience
- Replies: 9
- Views: 4920
Re: Tramadol Experience
I took 100mg slow release Tramadol at bed time for years. About a year ago I had acute kidney failure due to a botched prescription. The kidney failure came on slowly and I was not aware of it, then quickly as too much calcium built up in my bloodstream. By the time I knew what was happening I was l...
- Mon Apr 05, 2021 2:35 am
- Forum: General Topics: RLS
- Topic: How many hours do you sleep?
- Replies: 19
- Views: 12933
Re: How many hours do you sleep?
For years I got only around four hours of sleep, broken sleep to boot. That is not enough. I had big red circles under my eyes during that time. After starting to take iron tablets I was able to get about six hours, sometimes seven each night. Of course, to get that much meant devoting 10 or more ho...
- Sun Apr 04, 2021 1:19 am
- Forum: Just Joined?
- Topic: RLS and the COVID Vaccine
- Replies: 12
- Views: 10866
Re: RLS and the COVID Vaccine
At the roll out rate in New Zealand it will take years before we are all vaccinated. Yes, we're safe now but the economy will still be in the dumps when the rest of the world is recovering.
- Fri Apr 02, 2021 11:24 pm
- Forum: General Topics: RLS
- Topic: How many hours do you sleep?
- Replies: 19
- Views: 12933
Re: How many hours do you sleep?
Sometimes it's my RLS that wakes me up, other times it's just random. Upon my first wake up it's as if my brain says "that was a nice nap". I try not to nap during the day or if I do to keep it short. The Sleep Book: How to Sleep Well Every Night · By: Dr. Guy Meadows I found this book very interest...
- Fri Apr 02, 2021 8:01 am
- Forum: General Topics: RLS
- Topic: How many hours do you sleep?
- Replies: 19
- Views: 12933
Re: How many hours do you sleep?
I get between five and seven, usually in three or four segments over nine or ten hours from going to bed to getting up.
When I'm lucky I'm only awake a third of the night. On a bad night it can be half.
When I'm lucky I'm only awake a third of the night. On a bad night it can be half.
- Wed Mar 31, 2021 10:06 pm
- Forum: Non-prescription Medicines, Supplements, Diet
- Topic: Stressless Chairs
- Replies: 12
- Views: 9404
Re: Stressless Chairs
I keep a journal on my phone every night (10.30 went to bed; 12.30 woke up, 1.45 went back to sleep etc) and then put a month at a time on my computer. At my regular doctor's appointment a few times a year I give herthe current month's printout which she scans and puts into my records. She says it i...