Restless Legs Syndrome (RLS) Discussion Board

Hi, I wonder if it would be a good addition to the forum if we hade a RLS wiki somewhere. A forum works very well for some purposes, especially discussing specific questions. However, a Wiki is better suited to assemble information and keep it updated (like the "Compilation of what's worked&quo...

I take amino acids every day and find they help my WED. From what I could ascertain, they increase the amount of dopamine in my system. I actually found that they help my cognitive functioning significantly enough that I really missed the effect when I stopped taking them - I felt foggy-headed. Add...

I just tried Clonazepam (up to 1mg/evening), additional to Tilidin (opioid). After two weeks the WED symptoms were worse than before, so we stopped the Clonazepam. It did knock me out to some degree, but so did Sifrol when I was still taking it.

I've tried lyrica and it gave some relief. Lyrica was designed as "faster acting Gabapentin", so I expect they work pretty similar - although Lyrica is used to treat anxiety. I did put on some weight under Gabapentin and Lyrica (maybe 5-7 pounds in 3 months), but I did develop depressions ...

I will echo the others in that I avoid all artificial sweeteners, especially Nutrasweet (aspartame) and Splenda (sucralose). I don't avoid saccharine but rarely consume it as it's not used much anymore. I take amino acids every day and find they help my WED. From what I could ascertain, they increa...

We need a programming nerd with WED/RLS, or who has a friend with WED/RLS, and then there will be an app. You're right, it should be straightforward. You could do what I did - check out a few of the apps that promise to measure sleep cycles (they must already detect motion), write to them and reque...

Even though I said that, I think it's smart to see if you can stop the omeprazole for awhile, increase the iron, and see what happens. You may find that low iron is the problem. I can't remember....do you know both your serum ferritin and your hemoglobin levels? Yes. Ferritin was checked twice in t...

I was never aware of a possible connection, and several of my neurologists know (or should know) that I take Omeprazole. I checked it out: I first took Omeprazole roughly two months before my wife observed my PLMS for the first time ever, and before I developed any WED symptoms. I've been taking it ...

Hi, just another thought, as a thousand questions seem to run through my mind (lots of sleepless nights, and time to think): I'm been taking Omeprazole for a number of years, and in fact I think I started taking it a couple of years before my WED symptoms started. Now, I've read in an old thread tha...

Hi, I think I found a reference to this somewhere on the board, but the search function turned up nothing. Is it possible to monitor PLMS with a smartphone attached to a leg? The sensors of a modern smartphone should be easily precise enough to pick this up. I tried "Sleep as android", but...

Where have you heard that augmentation is not reversible? I've not seen that - here in the US, I've always seen the opposite: that after you stop the offending substance, the symptoms will return to prior levels. In my time here - I guess close to ten years - I can only remember 4 or 5 people who b...

When I went in for my appointment with the doctor my position was that I needed to get off of DAs. However, I am already on gabapentin for migraines and that was not been addressing the urge to move part of WED. I could therefore not expect any of the other alpha-2-delta drugs to provide much help....

I strongly recommend to talk to your doctor about tapering the dopamine agonists, and switching to one of the other drug classes effective against RLS. I experienced augmentation with all three DAs I took: ropinirole, pramipexole and rotigotine, and I do think that augmentation is to be expected fro...

I wasn't tested for sleep apnea while on Mirapex, but I was later diagnosed with a medium, non-obstructive apnea (on opioids). What I can tell: I did not put on weight while on Mirapex, but my snoring intensified significantly. My wife also reported occasional pauses in my breathing while asleep. Af...

Three remarks: (A) Don't try to add vitamin and mineral supplements to your diet without checking what it can do to your body, and what dosages are feasible. The mayo clinic ( http://www.mayoclinic.org/ has an excellent website where you can enter the name of a substance (or medication) and they wil...