Restless Legs Syndrome (RLS) Discussion Board

Hello Polar Bear and yes I do understand.

Thanks so much for all the support from you and Ann and everyone!

I still have one Q If I don't use a DA then I just endure the RLS? or do I discuss with my doc what to take for the symptoms?

Sorry for all of my confusion.

Thank You All
Ocean

Hello Ann and thanks so so much for your reply. I just didn't know if you meant? *In 2nd Paragraph* "I wouldn't start ropinirole again, however. The algorithm says that once you've augmented multiple times that you should use DAs again?? is it should or shouldn't Ann? so sorry ...it's all so co...

Am augmenting (mirapex) My doctor's been extremely helpful and understanding. It's a God Send. I guess in one way we are both learning. Saw my doctor today and we discussed weaning off of .37.5 (one and a half tablets of .25 mirapex) He gave me a large amount of emtec (tylenol&codeine) and of co...

Absolutely we all should.
Many of us (ahem lol) wish we had one that totally understood us more.
But...we don't . So we forge on.

Thanks so much from my heart for all your help

Sincerely,
Ocean

You are so so right Ann!!! We are doing ok. Getting by is more than we could ask for. Your attitude is awesome:) Anyways just wanted you to know..I faxed, emailed 2x and will call on Monday Dr Lawrece Pauluk. Didn't wish for you nor Beth to think I was not doing any footwork. LOL Praying and hoping ...

Oh thank you so very much Ann:) I will PM her and again..many thanks.

I also know I am augmenting.

Even though no WED/RLS I still took my daily Rx of pramipexole ; so hmm

Anyways again many thanks Ann and Hope and Pray you're doing fine.

Hello Ann and TY .. Well tis life I suppose. It's back and I am in midst of some research. If anyone sees this post and has seen or heard of a Dr. Lawrence Pawluk in Alberta BC Canada Please let me know. It's our Canadian ThanksGiving today so I won't be able to access anybody/thing on the net/phone...

Hi ..well I am back to let you all know..it's been a very long time BUT WED/RLS is back! Not yet with that vengeance;but it's starting bout 2pm every day .. by the time I take my pramipexole (mirapex) one and one half of a .25 tablet/ @6pm I have had sensations for 4 hours. Now I am not complaining ...

Ahh ONE thing an important thing is .... that I don't and haven't been able to sleep more than 3 or so hours. There were some days I slept to 5am wow!!!! but it's all good and super as long as the mirapex is working along with the gabapentin, rivotril aka clonazepam and emtec aka ty#3 at night. I do...

Just wishing to say Hello..it's been a while and still I seem to be okay. However; I did have some sensations past month..but the same amount of mirapex seems to still be working. Anyways I sure Hope and Pray so!

Praying that everyone's okay.

Sincerely ..Oceanwalker

Hello Polar Bear, Beth, Ann and everyone. Happy to say ..to date all's still ok. Sleeping's not much. Only bout hmm 2.5 to 3 hours in a row but I wouldn't change it for the world. I will keep you all posted. I do nap in the day. Keep well ...Oceanwalker... Praying one day at a time..... for this lov...

I am still very happy to say that without this wonderful group and the amazing people in it; I would NOT be as educated as I am (much room to grow lol) with WED.

I wish to thank you all for helping me to date.
So far it's okay..and I hope and Pray it stays this way.

Sincerely,
OceanWalker

oh Thank you Beth!!

I wish that doc all the best.

Thanks so much for all of your information.

Sincerely,
OceanWalker

Thanks Ann and I will keep you all posted.

I always like your Quote ..it's so so true and cool! Take what you nee, leave the rest.

And yes..we all need a doctor that understands us and yes- goes out of his/her way to help. It's so so important and what a wonderful feeling.

OceanWalker

Hello Beth and thanks so much for the reply. Oh re: the infusion..I only stated that cos I doubted the fact that I would get one. That's why the word "out of the Q" lol I think it's great!! I had iron infusions when I was a teenager and again when I was in my 20's ..so yes !!! I would take...