Search found 561 matches

by legsbestill
Sat Jan 05, 2019 7:02 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Proferrin/Iron Heme Polypeptide Tablet
Replies: 23
Views: 14825

Re: Proferrin/Iron Heme Polypeptide Tablet

https://juniperpublishers.com/jgwh/pdf/ ... 555822.pdf
This also suggests it is a useful alternative to iv iron. I think I will order some.
by legsbestill
Mon Dec 31, 2018 6:18 pm
Forum: Just Joined?
Topic: introducing myself. very much in crisis
Replies: 7
Views: 1071

Re: introducing myself. very much in crisis

I had this exact problem and it resolved completely the day after I took the last mirapexin. 0.5mg is a high dose of mirapexin - twice the current recommended upper limit for rls as I understand it. You will likely need opioids to help withdraw from the drug and will need to be strategic as to how t...
by legsbestill
Sun Dec 30, 2018 11:20 am
Forum: General Topics: RLS
Topic: RLS and Adrenaline - it's an ill wind ...
Replies: 4
Views: 912

RLS and Adrenaline - it's an ill wind ...

I am going through a difficult relationship breakdown which is throwing up all sorts of very worrisome issues. This has caused me to experience pronounced fight or flight symptoms on a more or less daily basis over the last 3 or 4 months. These often occur most significantly in the evening as time z...
by legsbestill
Sun Dec 30, 2018 10:43 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 326
Views: 53119

Re: Attempting to get off Ropinirole - again

Dear Betty, Well done for taking the first step in reducing your ropinerole and many good wishes for the forthcoming gradual elimination. I am certain you will not regret it ultimately. You may find your symptoms settle down quite a lot and are much more treatable once you have washed the dopamine a...
by legsbestill
Tue Dec 11, 2018 8:26 am
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 93
Views: 16357

Re: Experience with Injectafer?

Fingers crossed for you, Holland. Rachel
by legsbestill
Sat Dec 01, 2018 11:39 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Melatonin
Replies: 17
Views: 2756

Re: Melatonin

Dear Betty, I would think it would be wise to wean given a dose of 4mg. You might be pleasantly surprised initially at how little impact reducing the dose has. I got quite low before symptoms worsened appreciably. It was the calm before the storm however because it was torture from then on. I was su...
by legsbestill
Sat Dec 01, 2018 11:21 pm
Forum: Just Joined?
Topic: New to group.
Replies: 33
Views: 3270

Re: New to group.

Gayle, if you are really desperate it might be worth trying Kratom. It’s not legal everywhere but it can be ordered by post and is usually effective against rls - I find it more effective (and also easier to discontinue) than prescription opioids. Also, cannabis, taken as an edible can be very effec...
by legsbestill
Mon Nov 12, 2018 7:51 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom and insomnia
Replies: 8
Views: 1428

Re: Kratom and insomnia

I really sympathise with your husband. Opioid induced insomnia was a real problem for me when I was using oxycontin to treat my legs and it was definitely dose sensitive - ie the more opioid I took the worse the insomnia. Unfortunately, I have found that kratom can also induce insomnia. Some reports...
by legsbestill
Sun Sep 30, 2018 8:01 am
Forum: Prescription Medications
Topic: Personal Update
Replies: 5
Views: 913

Re: Personal Update

It’s great to read of people who manage to control the dopamine agonist rather than it controlling them. You give me hope that I may manage to keep a low dose of pramipexole as part of my armory for some time to come. Thank you for posting.
by legsbestill
Fri Sep 28, 2018 12:05 am
Forum: General Topics: RLS
Topic: RLS and Alcohol remedies....?
Replies: 5
Views: 1154

Re: RLS and Alcohol remedies....?

I find wine far worse than spirits. My legs will tolerate whiskey or two without playing up but wine gets them going every time. I find it difficult enough to control them at the best of times - haven’t come across a neutralising agent for the effects of wine ... except time.
by legsbestill
Sun Sep 23, 2018 10:22 pm
Forum: Just Joined?
Topic: An old member just returning
Replies: 5
Views: 1244

Re: An old member just returning

Sorry, just saw that Steve already mentioned the a2d drugs. My bad! They seem sometimes to be slightly less effective for those who have been through dopamine agonist induced augmentation - but may be worth a try ...
by legsbestill
Sun Sep 23, 2018 10:20 pm
Forum: Just Joined?
Topic: An old member just returning
Replies: 5
Views: 1244

Re: An old member just returning

The other potential treatment option is an alpha2delta ligand such as pregabalin or gabapentin. I know these are sometimes prescribed for back pain so maybe they would help with nerve damage also? I don’t know enough about them to say but they do work well for some for rls.
by legsbestill
Fri Sep 21, 2018 10:38 am
Forum: General Topics: RLS
Topic: Published Research - General Sleep and RLS (WED)
Replies: 534
Views: 412249

Re: Published Research - General Sleep and RLS (WED)

Interesting that out of 16,600+ men the highest incidence of rls was 5%. I see an estimate of 10% of the population being afflicted with rls often but it does not accord with my anecdotal experience. I would say it is lower than that. I appreciate that more women than men get it but could the differ...
by legsbestill
Sat Sep 15, 2018 10:32 pm
Forum: Prescription Medications
Topic: Antipsychotics? Car accedent???
Replies: 17
Views: 1844

Re: Antipsychotics? Car accedent???

There is some suggestion that the alpha-2-delta ligands work less well for those who have been through augmentation (although they do work for many). They are well worth trying however. I have seen some people report that weight lifting can be helpful for rls and many, many variations of diet recomm...